Access to Psychological Support for Young People Following Stoma Surgery: Exploring Patients’ and Clinicians’ Perspectives
Psychological problems are common among people with inflammatory bowel disease (IBD) following stoma surgery. However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young...
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Veröffentlicht in: | Qualitative health research 2021-02, Vol.31 (3), p.535-549 |
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description | Psychological problems are common among people with inflammatory bowel disease (IBD) following stoma surgery. However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and health care professionals about access to psychological support. Semi-structured interviews were conducted with young people with an IBD stoma (18–29 years, n = 13) and health care professionals (n = 15), including colorectal surgeons, gastroenterologists, specialist nurses in IBD and stoma care, and general practitioners in England. Data collection and analysis were informed by constructivist grounded theory. Three analytic categories were developed: “initiating support-seeking,” “affirming psychological needs,” and “mobilizing psychological support,” which capture young peoples’ trajectory to access psychological support. Based on the findings, we highlight the need for both patients and health care professionals to assign greater priority to the identification of psychological symptoms post-stoma surgery. More effective care pathways, which include responsive psychological services, would enhance access to psychological support for young people with a stoma. |
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However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and health care professionals about access to psychological support. Semi-structured interviews were conducted with young people with an IBD stoma (18–29 years, n = 13) and health care professionals (n = 15), including colorectal surgeons, gastroenterologists, specialist nurses in IBD and stoma care, and general practitioners in England. Data collection and analysis were informed by constructivist grounded theory. Three analytic categories were developed: “initiating support-seeking,” “affirming psychological needs,” and “mobilizing psychological support,” which capture young peoples’ trajectory to access psychological support. Based on the findings, we highlight the need for both patients and health care professionals to assign greater priority to the identification of psychological symptoms post-stoma surgery. More effective care pathways, which include responsive psychological services, would enhance access to psychological support for young people with a stoma.</description><identifier>ISSN: 1049-7323</identifier><identifier>EISSN: 1552-7557</identifier><identifier>DOI: 10.1177/1049732320972338</identifier><identifier>PMID: 33228473</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Adolescent ; England ; Family physicians ; Grounded Theory ; Health care ; Humans ; Inflammatory bowel disease ; Inflammatory Bowel Diseases - surgery ; Medical personnel ; Mental health care ; Nurses ; Ostomy ; Psychological needs ; Psychological problems ; Psychological services ; Qualitative Research ; Quality of care ; Stoma care ; Surgery ; Surgical Stomas ; Teenagers ; Young adults ; Youth</subject><ispartof>Qualitative health research, 2021-02, Vol.31 (3), p.535-549</ispartof><rights>The Author(s) 2020</rights><rights>The Author(s) 2020 2020 SAGE Publications</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c462t-be4f6a679bda58803aee83a10cf65a56da100442ac93499111019c05ddc024c33</citedby><cites>FETCH-LOGICAL-c462t-be4f6a679bda58803aee83a10cf65a56da100442ac93499111019c05ddc024c33</cites><orcidid>0000-0001-5074-1120 ; 0000-0002-0856-1596</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/1049732320972338$$EPDF$$P50$$Gsage$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/1049732320972338$$EHTML$$P50$$Gsage$$Hfree_for_read</linktohtml><link.rule.ids>230,314,776,780,881,21799,27903,27904,30978,43600,43601</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33228473$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Polidano, Kay</creatorcontrib><creatorcontrib>Chew-Graham, Carolyn A.</creatorcontrib><creatorcontrib>Farmer, Adam D.</creatorcontrib><creatorcontrib>Saunders, Benjamin</creatorcontrib><title>Access to Psychological Support for Young People Following Stoma Surgery: Exploring Patients’ and Clinicians’ Perspectives</title><title>Qualitative health research</title><addtitle>Qual Health Res</addtitle><description>Psychological problems are common among people with inflammatory bowel disease (IBD) following stoma surgery. However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and health care professionals about access to psychological support. Semi-structured interviews were conducted with young people with an IBD stoma (18–29 years, n = 13) and health care professionals (n = 15), including colorectal surgeons, gastroenterologists, specialist nurses in IBD and stoma care, and general practitioners in England. Data collection and analysis were informed by constructivist grounded theory. Three analytic categories were developed: “initiating support-seeking,” “affirming psychological needs,” and “mobilizing psychological support,” which capture young peoples’ trajectory to access psychological support. Based on the findings, we highlight the need for both patients and health care professionals to assign greater priority to the identification of psychological symptoms post-stoma surgery. More effective care pathways, which include responsive psychological services, would enhance access to psychological support for young people with a stoma.</description><subject>Adolescent</subject><subject>England</subject><subject>Family physicians</subject><subject>Grounded Theory</subject><subject>Health care</subject><subject>Humans</subject><subject>Inflammatory bowel disease</subject><subject>Inflammatory Bowel Diseases - surgery</subject><subject>Medical personnel</subject><subject>Mental health care</subject><subject>Nurses</subject><subject>Ostomy</subject><subject>Psychological needs</subject><subject>Psychological problems</subject><subject>Psychological services</subject><subject>Qualitative Research</subject><subject>Quality of care</subject><subject>Stoma care</subject><subject>Surgery</subject><subject>Surgical Stomas</subject><subject>Teenagers</subject><subject>Young adults</subject><subject>Youth</subject><issn>1049-7323</issn><issn>1552-7557</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kctu1DAUhi0EomVgzwpZYtNN4PgWJyyQqlELSJUYqbBgFXmck9SVJw52UpgN4jV4PZ4ET6cUqMTKR-f_zs0_IU8ZvGBM65cMZK0FFxxqzYWo7pFDphQvtFL6fo6zXOz0A_IopUsA0CDEQ3IgBOeV1OKQfDu2FlOiU6CrtLUXwYfeWePp-TyOIU60C5F-CvPQ0xWG0SM9Dd6HLy4nzqewMRmMPcbtK3rydfQh7oSVmRwOU_r5_Qc1Q0uX3g3OOjNcZ1YY04h2cleYHpMHnfEJn9y8C_Lx9OTD8m1x9v7Nu-XxWWFlyadijbIrTanrdWtUVYEwiJUwDGxXKqPKNocgJTe2FrKuGWPAaguqbS1waYVYkNf7vuO83mBr83bR-GaMbmPitgnGNf8qg7to-nDV6Ao45J9akKObBjF8njFNzcYli96bAcOcGi5LyRSoa_T5HfQyzHHI52VKlxVjvOaZgj1lY0gpYne7DINmZ25z19xc8uzvI24LfruZgWIPJNPjn6n_bfgL0L-v1Q</recordid><startdate>20210201</startdate><enddate>20210201</enddate><creator>Polidano, Kay</creator><creator>Chew-Graham, Carolyn A.</creator><creator>Farmer, Adam D.</creator><creator>Saunders, Benjamin</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>AFRWT</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0001-5074-1120</orcidid><orcidid>https://orcid.org/0000-0002-0856-1596</orcidid></search><sort><creationdate>20210201</creationdate><title>Access to Psychological Support for Young People Following Stoma Surgery: Exploring Patients’ and Clinicians’ Perspectives</title><author>Polidano, Kay ; 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However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and health care professionals about access to psychological support. Semi-structured interviews were conducted with young people with an IBD stoma (18–29 years, n = 13) and health care professionals (n = 15), including colorectal surgeons, gastroenterologists, specialist nurses in IBD and stoma care, and general practitioners in England. Data collection and analysis were informed by constructivist grounded theory. Three analytic categories were developed: “initiating support-seeking,” “affirming psychological needs,” and “mobilizing psychological support,” which capture young peoples’ trajectory to access psychological support. 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subjects | Adolescent England Family physicians Grounded Theory Health care Humans Inflammatory bowel disease Inflammatory Bowel Diseases - surgery Medical personnel Mental health care Nurses Ostomy Psychological needs Psychological problems Psychological services Qualitative Research Quality of care Stoma care Surgery Surgical Stomas Teenagers Young adults Youth |
title | Access to Psychological Support for Young People Following Stoma Surgery: Exploring Patients’ and Clinicians’ Perspectives |
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