Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort
The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK...
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| Veröffentlicht in: | Journal of autism and developmental disorders 2021-10, Vol.51 (10), p.3766-3773 |
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| container_issue | 10 |
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| container_title | Journal of autism and developmental disorders |
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| creator | White, L. Casey Law, J. Kiely Daniels, Amy M. Toroney, Jaimie Vernoia, Brianna Xiao, Sabrina Feliciano, Pamela Chung, Wendy K. |
| description | The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented. |
| doi_str_mv | 10.1007/s10803-020-04816-6 |
| format | Article |
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Casey ; Law, J. Kiely ; Daniels, Amy M. ; Toroney, Jaimie ; Vernoia, Brianna ; Xiao, Sabrina ; Feliciano, Pamela ; Chung, Wendy K.</creator><creatorcontrib>White, L. Casey ; Law, J. Kiely ; Daniels, Amy M. ; Toroney, Jaimie ; Vernoia, Brianna ; Xiao, Sabrina ; Feliciano, Pamela ; Chung, Wendy K. ; SPARK Consortium ; The SPARK Consortium</creatorcontrib><description>The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.</description><identifier>ISSN: 0162-3257</identifier><identifier>EISSN: 1573-3432</identifier><identifier>DOI: 10.1007/s10803-020-04816-6</identifier><identifier>PMID: 33387233</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Autism ; Autism Spectrum Disorder - therapy ; Autistic children ; Autistic Disorder ; Behavioral Science and Psychology ; Brief Report ; Care and treatment ; Caregivers ; Child ; Child and School Psychology ; Children ; Coronaviruses ; COVID-19 ; Delivery Systems ; Epidemics ; Experience ; Health aspects ; Humans ; Neurosciences ; Pandemics ; Pediatrics ; Pervasive Developmental Disorders ; Psychological aspects ; Psychological distress ; Psychology ; Public Health ; SARS-CoV-2 ; Telemedicine ; Therapy ; United States</subject><ispartof>Journal of autism and developmental disorders, 2021-10, Vol.51 (10), p.3766-3773</ispartof><rights>The Author(s) 2021</rights><rights>2021. The Author(s).</rights><rights>COPYRIGHT 2021 Springer</rights><rights>The Author(s) 2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). 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We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. 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Casey</au><au>Law, J. Kiely</au><au>Daniels, Amy M.</au><au>Toroney, Jaimie</au><au>Vernoia, Brianna</au><au>Xiao, Sabrina</au><au>Feliciano, Pamela</au><au>Chung, Wendy K.</au><aucorp>SPARK Consortium</aucorp><aucorp>The SPARK Consortium</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1310605</ericid><atitle>Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort</atitle><jtitle>Journal of autism and developmental disorders</jtitle><stitle>J Autism Dev Disord</stitle><addtitle>J Autism Dev Disord</addtitle><date>2021-10-01</date><risdate>2021</risdate><volume>51</volume><issue>10</issue><spage>3766</spage><epage>3773</epage><pages>3766-3773</pages><issn>0162-3257</issn><eissn>1573-3432</eissn><abstract>The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. 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| identifier | ISSN: 0162-3257 |
| ispartof | Journal of autism and developmental disorders, 2021-10, Vol.51 (10), p.3766-3773 |
| issn | 0162-3257 1573-3432 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7775834 |
| source | Applied Social Sciences Index & Abstracts (ASSIA); MEDLINE; Education Source; SpringerLink Journals |
| subjects | Autism Autism Spectrum Disorder - therapy Autistic children Autistic Disorder Behavioral Science and Psychology Brief Report Care and treatment Caregivers Child Child and School Psychology Children Coronaviruses COVID-19 Delivery Systems Epidemics Experience Health aspects Humans Neurosciences Pandemics Pediatrics Pervasive Developmental Disorders Psychological aspects Psychological distress Psychology Public Health SARS-CoV-2 Telemedicine Therapy United States |
| title | Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort |
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