The Burden of Spinal Muscular Atrophy on Informal Caregivers

Spinal muscular atrophy (SMA) is one of the most common severe hereditary diseases of infancy and early childhood. The progression of this illness causes a high degree of disability; hence, a significant burden is experienced by individuals with this disease and their families. We analyzed the time...

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Veröffentlicht in:	International journal of environmental research and public health 2020-12, Vol.17 (23), p.8989
Hauptverfasser:	Aranda-Reneo, Isaac, Peña-Longobardo, Luz María, Oliva-Moreno, Juan, Litzkendorf, Svenja, Durand-Zaleski, Isabelle, Tizzano, Eduardo F, López-Bastida, Julio
Format:	Artikel
Sprache:	eng
Schlagworte:	Activities of daily living Atrophy Caregivers Child Child, Preschool Children Cost of Illness Costs Cross-Sectional Studies Disease Europe Families & family life France Germany Hereditary diseases Humans Illnesses Muscular Atrophy, Spinal - epidemiology Neuromuscular diseases Patients Questionnaires Spain Spinal muscular atrophy Surveys and Questionnaires United Kingdom
Online-Zugang:	Volltext
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