Netherton syndrome; neuropsychological and psychosocial functioning of child and adult patients and their parents

Background: Netherton syndrome is a rare severe skin disease. Clinical experience showed considerable psychosocial burdens among Netherton syndrome patients/families. Their (neuro)psychological functioning has never been investigated. Objective: To investigate neuropsychological/psychosocial functio...

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Veröffentlicht in:	Journal of health psychology 2020-11, Vol.25 (13-14), p.2296-2316
Hauptverfasser:	Versteegh, Josette JWM, Dulfer, Karolijn, Stuvel, Kira, Pasmans, Suzanne GMA, Utens, Elisabeth MWJ
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Bullying Child Clinical experience Female Health status Humans Intelligence Male Netherton Syndrome - psychology Neuropsychological assessment Normative data Parents Parents & parenting Psychological functioning Psychosocial factors Psychosocial Functioning Psychosocial problems Quality of Life Skin disorders Stigma Surveys and Questionnaires
Online-Zugang:	Volltext
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