Focus group interview regarding the accessibility of health information for people with disabilities and means of improving this accessibility in the future
This study concerns the accessibility of health information for people with disabilities. More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilit...
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| Veröffentlicht in: | Medicine (Baltimore) 2020-02, Vol.99 (8), p.e19188-e19188 |
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| container_title | Medicine (Baltimore) |
| container_volume | 99 |
| creator | Shon, Changwoo Jeon, Boyoung Lim, Jae Hee Park, So Youn Lee, Ye-Rin Kim, Young-Eun Park, Saengryeol Lee, Na-Eun Oh, In-Hwan |
| description | This study concerns the accessibility of health information for people with disabilities. More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilities overall awareness of such information. Based on the information obtained, we also aim to identify methods of improving this accessibility.A focus group interview was conducted involving policy elites who had previously participated in decision-making processes for health policy. These elites were sourced from the fields of academia, medicine, and government. Content analysis was performed using NVivo 10, which is a computer-assisted/aided qualitative data-analysis software.The focus-group participants felt that relevant information for people with disabilities is provided in a fragmentary manner through several channels that have relatively low reliability, which creates difficulties for a significant portion of the target recipients. Discussions regarding the type of health information required by people with disabilities yielded the following topic clusters: information regarding health-care providers who specialize in specific disability types and regarding health behaviors for certain lifecycles, and information that helps people with disabilities return to society. Further, the focus group recommended 2 means of providing essential health information to PWDs in the future. As short-term strategies, the participants proposed simplifying the existing, fragmented information channels and the creation of a comprehensive web-based information portal with an associated call center. As a long-term strategy, they proposed the development of smart-device-based information services that are tailored to the needs of individuals.Efforts to reduce the disparities in health information for people with disabilities are essential for addressing the existing inequality regarding the availability of health information. |
| doi_str_mv | 10.1097/MD.0000000000019188 |
| format | Article |
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More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilities overall awareness of such information. Based on the information obtained, we also aim to identify methods of improving this accessibility.A focus group interview was conducted involving policy elites who had previously participated in decision-making processes for health policy. These elites were sourced from the fields of academia, medicine, and government. Content analysis was performed using NVivo 10, which is a computer-assisted/aided qualitative data-analysis software.The focus-group participants felt that relevant information for people with disabilities is provided in a fragmentary manner through several channels that have relatively low reliability, which creates difficulties for a significant portion of the target recipients. Discussions regarding the type of health information required by people with disabilities yielded the following topic clusters: information regarding health-care providers who specialize in specific disability types and regarding health behaviors for certain lifecycles, and information that helps people with disabilities return to society. Further, the focus group recommended 2 means of providing essential health information to PWDs in the future. As short-term strategies, the participants proposed simplifying the existing, fragmented information channels and the creation of a comprehensive web-based information portal with an associated call center. As a long-term strategy, they proposed the development of smart-device-based information services that are tailored to the needs of individuals.Efforts to reduce the disparities in health information for people with disabilities are essential for addressing the existing inequality regarding the availability of health information.</description><identifier>ISSN: 0025-7974</identifier><identifier>EISSN: 1536-5964</identifier><identifier>DOI: 10.1097/MD.0000000000019188</identifier><identifier>PMID: 32080101</identifier><language>eng</language><publisher>United States: the Author(s). Published by Wolters Kluwer Health, Inc</publisher><subject>Consumer Health Information - organization & administration ; Consumer Health Information - standards ; Disabled Persons ; Female ; Focus Groups ; Health Behavior ; Health Personnel - standards ; Health Services Accessibility - organization & administration ; Humans ; Internet ; Male ; Observational Study ; Telephone</subject><ispartof>Medicine (Baltimore), 2020-02, Vol.99 (8), p.e19188-e19188</ispartof><rights>the Author(s). Published by Wolters Kluwer Health, Inc.</rights><rights>Copyright © 2020 the Author(s). Published by Wolters Kluwer Health, Inc. 2020</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4501-c0f4b2a139cafe5bc6fe098fda38c0acee06a707d63d89d29bc9b5870245a4a43</citedby><cites>FETCH-LOGICAL-c4501-c0f4b2a139cafe5bc6fe098fda38c0acee06a707d63d89d29bc9b5870245a4a43</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7034670/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7034670/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,724,777,781,861,882,27905,27906,53772,53774</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32080101$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Shon, Changwoo</creatorcontrib><creatorcontrib>Jeon, Boyoung</creatorcontrib><creatorcontrib>Lim, Jae Hee</creatorcontrib><creatorcontrib>Park, So Youn</creatorcontrib><creatorcontrib>Lee, Ye-Rin</creatorcontrib><creatorcontrib>Kim, Young-Eun</creatorcontrib><creatorcontrib>Park, Saengryeol</creatorcontrib><creatorcontrib>Lee, Na-Eun</creatorcontrib><creatorcontrib>Oh, In-Hwan</creatorcontrib><title>Focus group interview regarding the accessibility of health information for people with disabilities and means of improving this accessibility in the future</title><title>Medicine (Baltimore)</title><addtitle>Medicine (Baltimore)</addtitle><description>This study concerns the accessibility of health information for people with disabilities. More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilities overall awareness of such information. Based on the information obtained, we also aim to identify methods of improving this accessibility.A focus group interview was conducted involving policy elites who had previously participated in decision-making processes for health policy. These elites were sourced from the fields of academia, medicine, and government. Content analysis was performed using NVivo 10, which is a computer-assisted/aided qualitative data-analysis software.The focus-group participants felt that relevant information for people with disabilities is provided in a fragmentary manner through several channels that have relatively low reliability, which creates difficulties for a significant portion of the target recipients. Discussions regarding the type of health information required by people with disabilities yielded the following topic clusters: information regarding health-care providers who specialize in specific disability types and regarding health behaviors for certain lifecycles, and information that helps people with disabilities return to society. Further, the focus group recommended 2 means of providing essential health information to PWDs in the future. As short-term strategies, the participants proposed simplifying the existing, fragmented information channels and the creation of a comprehensive web-based information portal with an associated call center. As a long-term strategy, they proposed the development of smart-device-based information services that are tailored to the needs of individuals.Efforts to reduce the disparities in health information for people with disabilities are essential for addressing the existing inequality regarding the availability of health information.</description><subject>Consumer Health Information - organization & administration</subject><subject>Consumer Health Information - standards</subject><subject>Disabled Persons</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Health Behavior</subject><subject>Health Personnel - standards</subject><subject>Health Services Accessibility - organization & administration</subject><subject>Humans</subject><subject>Internet</subject><subject>Male</subject><subject>Observational Study</subject><subject>Telephone</subject><issn>0025-7974</issn><issn>1536-5964</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpdks1u1DAUhS0EosPAEyAhL9mkvf5JHG-QUH8AqRUbWFuOczNjSOJgJzPqu_CwuDOlhXphX_l-51xLx4S8ZXDKQKuzm4tTeFxMs7p-RlasFFVR6ko-JysAXhZKK3lCXqX0I0NCcfmSnAgONTBgK_L7Krgl0U0My0T9OGPcedzTiBsbWz9u6LxFap3DlHzjez_f0tDRLdp-3ma-C3Gwsw8jzRWdMEw90r3PvdYnexB4TNSOLR3QjulO7Icpht3R26cn5n48TOyWeYn4mrzobJ_wzf25Jt-vLr-dfy6uv376cv7xunCyBFY46GTDLRPa2Q7LxlUdgq671oragXWIUFkFqq1EW-uW68bppqwVcFlaaaVYkw9H32lpBmwdjnO0vZmiH2y8NcF6839n9FuzCTujQMgqb2vy_t4ghl8LptkMPjnseztiWJLhQpWaC-BVRsURdTGkFLF7GMPA3OVqbi7M01yz6t2_L3zQ_A0yA_II7EOfQ0w_-2WP0RyDOviVSvOCA8-fgjMo8o1g4g9qorNR</recordid><startdate>20200201</startdate><enddate>20200201</enddate><creator>Shon, Changwoo</creator><creator>Jeon, Boyoung</creator><creator>Lim, Jae Hee</creator><creator>Park, So Youn</creator><creator>Lee, Ye-Rin</creator><creator>Kim, Young-Eun</creator><creator>Park, Saengryeol</creator><creator>Lee, Na-Eun</creator><creator>Oh, In-Hwan</creator><general>the Author(s). Published by Wolters Kluwer Health, Inc</general><general>Wolters Kluwer Health</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20200201</creationdate><title>Focus group interview regarding the accessibility of health information for people with disabilities and means of improving this accessibility in the future</title><author>Shon, Changwoo ; Jeon, Boyoung ; Lim, Jae Hee ; Park, So Youn ; Lee, Ye-Rin ; Kim, Young-Eun ; Park, Saengryeol ; Lee, Na-Eun ; Oh, In-Hwan</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4501-c0f4b2a139cafe5bc6fe098fda38c0acee06a707d63d89d29bc9b5870245a4a43</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Consumer Health Information - organization & administration</topic><topic>Consumer Health Information - standards</topic><topic>Disabled Persons</topic><topic>Female</topic><topic>Focus Groups</topic><topic>Health Behavior</topic><topic>Health Personnel - standards</topic><topic>Health Services Accessibility - organization & administration</topic><topic>Humans</topic><topic>Internet</topic><topic>Male</topic><topic>Observational Study</topic><topic>Telephone</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Shon, Changwoo</creatorcontrib><creatorcontrib>Jeon, Boyoung</creatorcontrib><creatorcontrib>Lim, Jae Hee</creatorcontrib><creatorcontrib>Park, So Youn</creatorcontrib><creatorcontrib>Lee, Ye-Rin</creatorcontrib><creatorcontrib>Kim, Young-Eun</creatorcontrib><creatorcontrib>Park, Saengryeol</creatorcontrib><creatorcontrib>Lee, Na-Eun</creatorcontrib><creatorcontrib>Oh, In-Hwan</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Medicine (Baltimore)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Shon, Changwoo</au><au>Jeon, Boyoung</au><au>Lim, Jae Hee</au><au>Park, So Youn</au><au>Lee, Ye-Rin</au><au>Kim, Young-Eun</au><au>Park, Saengryeol</au><au>Lee, Na-Eun</au><au>Oh, In-Hwan</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Focus group interview regarding the accessibility of health information for people with disabilities and means of improving this accessibility in the future</atitle><jtitle>Medicine (Baltimore)</jtitle><addtitle>Medicine (Baltimore)</addtitle><date>2020-02-01</date><risdate>2020</risdate><volume>99</volume><issue>8</issue><spage>e19188</spage><epage>e19188</epage><pages>e19188-e19188</pages><issn>0025-7974</issn><eissn>1536-5964</eissn><abstract>This study concerns the accessibility of health information for people with disabilities. More specifically, by interviewing policy elites who have backgrounds in this area, we seek to obtain their opinions regarding the type of information people with disabilities require, and people with disabilities overall awareness of such information. Based on the information obtained, we also aim to identify methods of improving this accessibility.A focus group interview was conducted involving policy elites who had previously participated in decision-making processes for health policy. These elites were sourced from the fields of academia, medicine, and government. Content analysis was performed using NVivo 10, which is a computer-assisted/aided qualitative data-analysis software.The focus-group participants felt that relevant information for people with disabilities is provided in a fragmentary manner through several channels that have relatively low reliability, which creates difficulties for a significant portion of the target recipients. Discussions regarding the type of health information required by people with disabilities yielded the following topic clusters: information regarding health-care providers who specialize in specific disability types and regarding health behaviors for certain lifecycles, and information that helps people with disabilities return to society. Further, the focus group recommended 2 means of providing essential health information to PWDs in the future. As short-term strategies, the participants proposed simplifying the existing, fragmented information channels and the creation of a comprehensive web-based information portal with an associated call center. As a long-term strategy, they proposed the development of smart-device-based information services that are tailored to the needs of individuals.Efforts to reduce the disparities in health information for people with disabilities are essential for addressing the existing inequality regarding the availability of health information.</abstract><cop>United States</cop><pub>the Author(s). Published by Wolters Kluwer Health, Inc</pub><pmid>32080101</pmid><doi>10.1097/MD.0000000000019188</doi><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0025-7974 |
| ispartof | Medicine (Baltimore), 2020-02, Vol.99 (8), p.e19188-e19188 |
| issn | 0025-7974 1536-5964 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7034670 |
| source | MEDLINE; DOAJ Directory of Open Access Journals; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; Wolters Kluwer Open Health; IngentaConnect Free/Open Access Journals; PubMed Central; Alma/SFX Local Collection |
| subjects | Consumer Health Information - organization & administration Consumer Health Information - standards Disabled Persons Female Focus Groups Health Behavior Health Personnel - standards Health Services Accessibility - organization & administration Humans Internet Male Observational Study Telephone |
| title | Focus group interview regarding the accessibility of health information for people with disabilities and means of improving this accessibility in the future |
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