An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies
Persons with chronic conditions and disabilities (PwCCDs) are vulnerable to secondary complications. Many of these secondary complications are preventable with proactive self-management and proper support. To enhance PwCCDs' self-management skills and conveniently receive desired support, we ha...
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| Veröffentlicht in: | JMIR formative research 2019-04, Vol.3 (2), p.e12982 |
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| creator | Setiawan, I Made Agus Zhou, Leming Alfikri, Zakiy Saptono, Andi Fairman, Andrea D Dicianno, Brad Edward Parmanto, Bambang |
| description | Persons with chronic conditions and disabilities (PwCCDs) are vulnerable to secondary complications. Many of these secondary complications are preventable with proactive self-management and proper support. To enhance PwCCDs' self-management skills and conveniently receive desired support, we have developed a mobile health (mHealth) system called iMHere. In 2 previous clinical trials, iMHere was successfully used to improve health outcomes of adult participants with spina bifida and spinal cord injury. To further expand use of iMHere among people with various types of disabilities and chronic diseases, the system needs to be more adaptive to address 3 unique challenges: 1) PwCCDs have very diverse needs with regards to self-management support, 2) PwCCDs' self-management needs may change over time, and 3) it is a challenge to keep PwCCDs engaged and interested in long-term self-management.
The aim of this study was to develop an adaptive mHealth system capable of supporting long-term self-management and adapting to the various needs and conditions of PwCCDs.
A scalable and adaptive architecture was designed and implemented for the new version, iMHere 2.0. In this scalable architecture, a set of mobile app modules was created to provide various types of self-management support to PwCCDs with the ability to add more as needed. The adaptive architecture empowers PwCCDs with personally relevant app modules and allows clinicians to adapt these modules in response to PwCCDs' evolving needs and conditions over time. Persuasive technologies, social support, and personalization features were integrated into iMHere 2.0 to engage and motivate PwCCDs and support long-term usage. Two initial studies were performed to evaluate the usability and feasibility of the iMHere 2.0 system.
The iMHere 2.0 system consists of cross-platform client and caregiver apps, a Web-based clinician portal, and a secure 2-way communication protocol for providing interactions among these 3 front-end components, all supported by a back-end server. The client and caregiver apps have 12 adaptive app modules to support various types of self-management tasks. The adaptive architecture makes it possible for PwCCDs to receive personalized app modules relevant to their conditions with or without support from various types of caregivers. The personalization and persuasive technologies in the architecture can be used to engage PwCCDs for long-term usage of the iMHere 2.0 system. Participants of the usabi |
| doi_str_mv | 10.2196/12982 |
| format | Article |
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The aim of this study was to develop an adaptive mHealth system capable of supporting long-term self-management and adapting to the various needs and conditions of PwCCDs.
A scalable and adaptive architecture was designed and implemented for the new version, iMHere 2.0. In this scalable architecture, a set of mobile app modules was created to provide various types of self-management support to PwCCDs with the ability to add more as needed. The adaptive architecture empowers PwCCDs with personally relevant app modules and allows clinicians to adapt these modules in response to PwCCDs' evolving needs and conditions over time. Persuasive technologies, social support, and personalization features were integrated into iMHere 2.0 to engage and motivate PwCCDs and support long-term usage. Two initial studies were performed to evaluate the usability and feasibility of the iMHere 2.0 system.
The iMHere 2.0 system consists of cross-platform client and caregiver apps, a Web-based clinician portal, and a secure 2-way communication protocol for providing interactions among these 3 front-end components, all supported by a back-end server. The client and caregiver apps have 12 adaptive app modules to support various types of self-management tasks. The adaptive architecture makes it possible for PwCCDs to receive personalized app modules relevant to their conditions with or without support from various types of caregivers. The personalization and persuasive technologies in the architecture can be used to engage PwCCDs for long-term usage of the iMHere 2.0 system. Participants of the usability study were satisfied with the iMHere 2.0 client app. The feasibility evaluation revealed several practical issues to consider when implementing the system on a large scale.
We developed an adaptive mHealth system as a novel method to support diverse needs in self-management for PwCCDs that can dynamically change over time. The usability of the client app is high, and it was feasible for PwCCDs to use in supporting personalized and evolving self-care needs.</description><identifier>ISSN: 2561-326X</identifier><identifier>EISSN: 2561-326X</identifier><identifier>DOI: 10.2196/12982</identifier><identifier>PMID: 31021324</identifier><language>eng</language><publisher>Canada: JMIR Publications</publisher><subject>Caregivers ; Cerebral palsy ; Chronic illnesses ; Disability ; Feasibility studies ; Health care expenditures ; Health care policy ; Original Paper ; Precision medicine ; Pressure ulcers ; Quality of life ; Social support ; Systems development ; Telemedicine</subject><ispartof>JMIR formative research, 2019-04, Vol.3 (2), p.e12982</ispartof><rights>I Made Agus Setiawan, Leming Zhou, Zakiy Alfikri, Andi Saptono, Andrea D Fairman, Brad Edward Dicianno, Bambang Parmanto. Originally published in JMIR Formative Research (http://formative.jmir.org), 25.04.2019.</rights><rights>2019. This work is licensed under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>I Made Agus Setiawan, Leming Zhou, Zakiy Alfikri, Andi Saptono, Andrea D Fairman, Brad Edward Dicianno, Bambang Parmanto. Originally published in JMIR Formative Research (http://formative.jmir.org), 25.04.2019. 2019</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3762-3b656fe80104a9446a562e82f8b041688338f7b3fb4914ac58989e36291db7013</citedby><cites>FETCH-LOGICAL-c3762-3b656fe80104a9446a562e82f8b041688338f7b3fb4914ac58989e36291db7013</cites><orcidid>0000-0002-0933-8150 ; 0000-0002-6777-5391 ; 0000-0001-8383-8471 ; 0000-0003-1661-1079 ; 0000-0003-0738-0192 ; 0000-0002-4907-8402 ; 0000-0003-4398-0267</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6658284/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6658284/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31021324$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Setiawan, I Made Agus</creatorcontrib><creatorcontrib>Zhou, Leming</creatorcontrib><creatorcontrib>Alfikri, Zakiy</creatorcontrib><creatorcontrib>Saptono, Andi</creatorcontrib><creatorcontrib>Fairman, Andrea D</creatorcontrib><creatorcontrib>Dicianno, Brad Edward</creatorcontrib><creatorcontrib>Parmanto, Bambang</creatorcontrib><title>An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies</title><title>JMIR formative research</title><addtitle>JMIR Form Res</addtitle><description>Persons with chronic conditions and disabilities (PwCCDs) are vulnerable to secondary complications. Many of these secondary complications are preventable with proactive self-management and proper support. To enhance PwCCDs' self-management skills and conveniently receive desired support, we have developed a mobile health (mHealth) system called iMHere. In 2 previous clinical trials, iMHere was successfully used to improve health outcomes of adult participants with spina bifida and spinal cord injury. To further expand use of iMHere among people with various types of disabilities and chronic diseases, the system needs to be more adaptive to address 3 unique challenges: 1) PwCCDs have very diverse needs with regards to self-management support, 2) PwCCDs' self-management needs may change over time, and 3) it is a challenge to keep PwCCDs engaged and interested in long-term self-management.
The aim of this study was to develop an adaptive mHealth system capable of supporting long-term self-management and adapting to the various needs and conditions of PwCCDs.
A scalable and adaptive architecture was designed and implemented for the new version, iMHere 2.0. In this scalable architecture, a set of mobile app modules was created to provide various types of self-management support to PwCCDs with the ability to add more as needed. The adaptive architecture empowers PwCCDs with personally relevant app modules and allows clinicians to adapt these modules in response to PwCCDs' evolving needs and conditions over time. Persuasive technologies, social support, and personalization features were integrated into iMHere 2.0 to engage and motivate PwCCDs and support long-term usage. Two initial studies were performed to evaluate the usability and feasibility of the iMHere 2.0 system.
The iMHere 2.0 system consists of cross-platform client and caregiver apps, a Web-based clinician portal, and a secure 2-way communication protocol for providing interactions among these 3 front-end components, all supported by a back-end server. The client and caregiver apps have 12 adaptive app modules to support various types of self-management tasks. The adaptive architecture makes it possible for PwCCDs to receive personalized app modules relevant to their conditions with or without support from various types of caregivers. The personalization and persuasive technologies in the architecture can be used to engage PwCCDs for long-term usage of the iMHere 2.0 system. Participants of the usability study were satisfied with the iMHere 2.0 client app. The feasibility evaluation revealed several practical issues to consider when implementing the system on a large scale.
We developed an adaptive mHealth system as a novel method to support diverse needs in self-management for PwCCDs that can dynamically change over time. The usability of the client app is high, and it was feasible for PwCCDs to use in supporting personalized and evolving self-care needs.</description><subject>Caregivers</subject><subject>Cerebral palsy</subject><subject>Chronic illnesses</subject><subject>Disability</subject><subject>Feasibility studies</subject><subject>Health care expenditures</subject><subject>Health care policy</subject><subject>Original Paper</subject><subject>Precision medicine</subject><subject>Pressure ulcers</subject><subject>Quality of life</subject><subject>Social support</subject><subject>Systems development</subject><subject>Telemedicine</subject><issn>2561-326X</issn><issn>2561-326X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>BENPR</sourceid><recordid>eNpVkd9KHDEUxoNUVOy-ggSkl6P5M5NJelFYtrUKisIqehcyM2fcyGwyTTLCPocv3KhbsVfJd84v3znhQ2hGyQmjSpxSpiTbQQesErTgTDx8-XTfR7MYnwghjFJRK76H9jnNgrPyAL3MHZ53Zkz2GfCVb-wA-BzMkFZ4uYkJ1jh5vJzG0YeElzD0xZVx5hHW4BLufcA3EKJ3Ed_b_GSxCt7ZFi-862yyr3XjOvzTRpOdcwXid3y3FZu33hmYaLd6maYuI1_Rbm-GCLPteYjuzn7dLs6Ly-vfF4v5ZdHyWrCCN6ISPUhCSWlUWQpTCQaS9bIhJRVSci77uuF9UypamraSSirgginaNTWh_BD9ePcdp2YNXZu_FMygx2DXJmy0N1b_33F2pR_9sxaikkyW2eB4axD8nwli0k9-Ci7vrFlFGVd1VZFMfXun2uBjDNB_TKBEv8an3-LL3NHndT6of2Hxv3iclWI</recordid><startdate>20190425</startdate><enddate>20190425</enddate><creator>Setiawan, I Made Agus</creator><creator>Zhou, Leming</creator><creator>Alfikri, Zakiy</creator><creator>Saptono, Andi</creator><creator>Fairman, Andrea D</creator><creator>Dicianno, Brad Edward</creator><creator>Parmanto, Bambang</creator><general>JMIR Publications</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-0933-8150</orcidid><orcidid>https://orcid.org/0000-0002-6777-5391</orcidid><orcidid>https://orcid.org/0000-0001-8383-8471</orcidid><orcidid>https://orcid.org/0000-0003-1661-1079</orcidid><orcidid>https://orcid.org/0000-0003-0738-0192</orcidid><orcidid>https://orcid.org/0000-0002-4907-8402</orcidid><orcidid>https://orcid.org/0000-0003-4398-0267</orcidid></search><sort><creationdate>20190425</creationdate><title>An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies</title><author>Setiawan, I Made Agus ; Zhou, Leming ; Alfikri, Zakiy ; Saptono, Andi ; Fairman, Andrea D ; Dicianno, Brad Edward ; Parmanto, Bambang</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3762-3b656fe80104a9446a562e82f8b041688338f7b3fb4914ac58989e36291db7013</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Caregivers</topic><topic>Cerebral palsy</topic><topic>Chronic illnesses</topic><topic>Disability</topic><topic>Feasibility studies</topic><topic>Health care expenditures</topic><topic>Health care policy</topic><topic>Original Paper</topic><topic>Precision medicine</topic><topic>Pressure ulcers</topic><topic>Quality of life</topic><topic>Social support</topic><topic>Systems development</topic><topic>Telemedicine</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Setiawan, I Made Agus</creatorcontrib><creatorcontrib>Zhou, Leming</creatorcontrib><creatorcontrib>Alfikri, Zakiy</creatorcontrib><creatorcontrib>Saptono, Andi</creatorcontrib><creatorcontrib>Fairman, Andrea D</creatorcontrib><creatorcontrib>Dicianno, Brad Edward</creatorcontrib><creatorcontrib>Parmanto, Bambang</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Nursing & Allied Health Premium</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>JMIR formative research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Setiawan, I Made Agus</au><au>Zhou, Leming</au><au>Alfikri, Zakiy</au><au>Saptono, Andi</au><au>Fairman, Andrea D</au><au>Dicianno, Brad Edward</au><au>Parmanto, Bambang</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies</atitle><jtitle>JMIR formative research</jtitle><addtitle>JMIR Form Res</addtitle><date>2019-04-25</date><risdate>2019</risdate><volume>3</volume><issue>2</issue><spage>e12982</spage><pages>e12982-</pages><issn>2561-326X</issn><eissn>2561-326X</eissn><abstract>Persons with chronic conditions and disabilities (PwCCDs) are vulnerable to secondary complications. Many of these secondary complications are preventable with proactive self-management and proper support. To enhance PwCCDs' self-management skills and conveniently receive desired support, we have developed a mobile health (mHealth) system called iMHere. In 2 previous clinical trials, iMHere was successfully used to improve health outcomes of adult participants with spina bifida and spinal cord injury. To further expand use of iMHere among people with various types of disabilities and chronic diseases, the system needs to be more adaptive to address 3 unique challenges: 1) PwCCDs have very diverse needs with regards to self-management support, 2) PwCCDs' self-management needs may change over time, and 3) it is a challenge to keep PwCCDs engaged and interested in long-term self-management.
The aim of this study was to develop an adaptive mHealth system capable of supporting long-term self-management and adapting to the various needs and conditions of PwCCDs.
A scalable and adaptive architecture was designed and implemented for the new version, iMHere 2.0. In this scalable architecture, a set of mobile app modules was created to provide various types of self-management support to PwCCDs with the ability to add more as needed. The adaptive architecture empowers PwCCDs with personally relevant app modules and allows clinicians to adapt these modules in response to PwCCDs' evolving needs and conditions over time. Persuasive technologies, social support, and personalization features were integrated into iMHere 2.0 to engage and motivate PwCCDs and support long-term usage. Two initial studies were performed to evaluate the usability and feasibility of the iMHere 2.0 system.
The iMHere 2.0 system consists of cross-platform client and caregiver apps, a Web-based clinician portal, and a secure 2-way communication protocol for providing interactions among these 3 front-end components, all supported by a back-end server. The client and caregiver apps have 12 adaptive app modules to support various types of self-management tasks. The adaptive architecture makes it possible for PwCCDs to receive personalized app modules relevant to their conditions with or without support from various types of caregivers. The personalization and persuasive technologies in the architecture can be used to engage PwCCDs for long-term usage of the iMHere 2.0 system. Participants of the usability study were satisfied with the iMHere 2.0 client app. The feasibility evaluation revealed several practical issues to consider when implementing the system on a large scale.
We developed an adaptive mHealth system as a novel method to support diverse needs in self-management for PwCCDs that can dynamically change over time. The usability of the client app is high, and it was feasible for PwCCDs to use in supporting personalized and evolving self-care needs.</abstract><cop>Canada</cop><pub>JMIR Publications</pub><pmid>31021324</pmid><doi>10.2196/12982</doi><orcidid>https://orcid.org/0000-0002-0933-8150</orcidid><orcidid>https://orcid.org/0000-0002-6777-5391</orcidid><orcidid>https://orcid.org/0000-0001-8383-8471</orcidid><orcidid>https://orcid.org/0000-0003-1661-1079</orcidid><orcidid>https://orcid.org/0000-0003-0738-0192</orcidid><orcidid>https://orcid.org/0000-0002-4907-8402</orcidid><orcidid>https://orcid.org/0000-0003-4398-0267</orcidid><oa>free_for_read</oa></addata></record> |
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| source | DOAJ Directory of Open Access Journals; EZB-FREE-00999 freely available EZB journals; PubMed Central; PubMed Central Open Access |
| subjects | Caregivers Cerebral palsy Chronic illnesses Disability Feasibility studies Health care expenditures Health care policy Original Paper Precision medicine Pressure ulcers Quality of life Social support Systems development Telemedicine |
| title | An Adaptive Mobile Health System to Support Self-Management for Persons With Chronic Conditions and Disabilities: Usability and Feasibility Studies |
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