The international diffuse intrinsic pontine glioma registry: an infrastructure to accelerate collaborative research for an orphan disease

Diffuse intrinsic pontine glioma (DIPG), a rare, often fatal childhood brain tumor, remains a major therapeutic challenge. In 2012, investigators, funded by the DIPG Collaborative (a philanthropic partnership among 29 private foundations), launched the International DIPG Registry (IDIPGR) to advance...

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Veröffentlicht in:	Journal of neuro-oncology 2017-04, Vol.132 (2), p.323-331
Hauptverfasser:	Baugh, Joshua, Bartels, Ute, Leach, James, Jones, Blaise, Chaney, Brooklyn, Warren, Katherine E., Kirkendall, Jenavieve, Doughman, Renee, Hawkins, Cynthia, Miles, Lili, Fuller, Christine, Hassall, Tim, Bouffet, Eric, Lane, Adam, Hargrave, Darren, Grill, Jacques, Hoffman, Lindsey M., Jones, Chris, Towbin, Alex, Savage, Sharon A., Monje, Michelle, Li, Xiao-Nan, Ziegler, David S., Veldhuijzen van Zanten, Sophie, Kramm, Christof M., van Vuurden, Dannis G., Fouladi, Maryam
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adult Australia Brain Stem Neoplasms - diagnostic imaging Brain Stem Neoplasms - epidemiology Brain Stem Neoplasms - pathology Brain Stem Neoplasms - therapy Canada Child Child, Preschool Clinical Study Female Glioma - diagnostic imaging Glioma - epidemiology Glioma - pathology Glioma - therapy Humans Infant International Cooperation Magnetic Resonance Imaging Male Medicine Medicine & Public Health Neurology New Zealand Oncology Pons - diagnostic imaging Pons - pathology Registries United States Young Adult
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