"Babies born early?" - silences about prematurity and their consequences
The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected us...
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creator | Miele, Maria J O Pacagnella, Rodolfo C Osis, Maria J D Angelini, Carina R Souza, Jussara L Cecatti, José G |
description | The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit.
This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil.
The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission.
There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission. |
doi_str_mv | 10.1186/s12978-018-0594-4 |
format | Article |
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This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil.
The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission.
There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</description><identifier>ISSN: 1742-4755</identifier><identifier>EISSN: 1742-4755</identifier><identifier>DOI: 10.1186/s12978-018-0594-4</identifier><identifier>PMID: 30208906</identifier><language>eng</language><publisher>England: BioMed Central Ltd</publisher><subject>Analysis ; Brazil ; Child ; Delivery (Childbirth) ; Female ; Focus groups ; Health aspects ; Health Knowledge, Attitudes, Practice ; Health literacy ; Humans ; Infant ; Infant, Low Birth Weight ; Infant, Newborn ; Infant, Premature ; Intensive care ; Intensive Care Units, Neonatal ; Management ; Medical communication ; Medical personnel ; Neonatal care ; Neonatal intensive care units ; Newborn babies ; Practice ; Pregnancy ; Premature Birth ; Premature infants ; Prenatal Care - methods ; Qualitative Research ; Reproductive health ; Womens health</subject><ispartof>Reproductive health, 2018-09, Vol.15 (1), p.154-154, Article 154</ispartof><rights>COPYRIGHT 2018 BioMed Central Ltd.</rights><rights>Copyright © 2018. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>The Author(s). 2018</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</citedby><cites>FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</cites><orcidid>0000-0002-5739-0009</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136169/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136169/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30208906$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Miele, Maria J O</creatorcontrib><creatorcontrib>Pacagnella, Rodolfo C</creatorcontrib><creatorcontrib>Osis, Maria J D</creatorcontrib><creatorcontrib>Angelini, Carina R</creatorcontrib><creatorcontrib>Souza, Jussara L</creatorcontrib><creatorcontrib>Cecatti, José G</creatorcontrib><title>"Babies born early?" - silences about prematurity and their consequences</title><title>Reproductive health</title><addtitle>Reprod Health</addtitle><description>The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit.
This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil.
The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission.
There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</description><subject>Analysis</subject><subject>Brazil</subject><subject>Child</subject><subject>Delivery (Childbirth)</subject><subject>Female</subject><subject>Focus groups</subject><subject>Health aspects</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Health literacy</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Low Birth Weight</subject><subject>Infant, Newborn</subject><subject>Infant, Premature</subject><subject>Intensive care</subject><subject>Intensive Care Units, Neonatal</subject><subject>Management</subject><subject>Medical communication</subject><subject>Medical personnel</subject><subject>Neonatal care</subject><subject>Neonatal intensive care units</subject><subject>Newborn babies</subject><subject>Practice</subject><subject>Pregnancy</subject><subject>Premature Birth</subject><subject>Premature infants</subject><subject>Prenatal Care - methods</subject><subject>Qualitative Research</subject><subject>Reproductive health</subject><subject>Womens health</subject><issn>1742-4755</issn><issn>1742-4755</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNptkU1vFSEUhonR2A_9AW7MpG66mcrhYxg2mtqoNWniRtcEuGdamhm4wozJ_fcy3lpbYwiBwPO-HM5LyCugZwB997YA06pvKdQptWjFE3IISrBWKCmfPtgfkKNSbinl0FP1nBxwymivaXdILk8-WBewNC7l2KDN4-79SdM2JYwYfT23Li1zs8042XnJYd41Nm6a-QZDbnyKBX8sv8EX5Nlgx4Iv79Zj8v3Tx28Xl-3V189fLs6vWi-0mFtBOeskWs-4sN5JQM6plZwxoABg3eAEaIeWMseZtOg9BzUwTcGJoaf8mLzb-24XN-HGY5yzHc02h8nmnUk2mMc3MdyY6_TTdMA76HQ1OL0zyKnWXmYzheJxHG3EtBRTC-FdT2mvKvrmH_Q2LTnW761Ur7VWnfxLXdsRTYhDqu_61dScS6kUlxpW6uw_VB0bnEJtJA61448FsBf4nErJONz_EahZ4zf7-E2N36zxG1E1rx82517xJ2_-C4kjqKo</recordid><startdate>20180912</startdate><enddate>20180912</enddate><creator>Miele, Maria J O</creator><creator>Pacagnella, Rodolfo C</creator><creator>Osis, Maria J D</creator><creator>Angelini, Carina R</creator><creator>Souza, Jussara L</creator><creator>Cecatti, José G</creator><general>BioMed Central Ltd</general><general>BioMed Central</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-5739-0009</orcidid></search><sort><creationdate>20180912</creationdate><title>"Babies born early?" - silences about prematurity and their consequences</title><author>Miele, Maria J O ; Pacagnella, Rodolfo C ; Osis, Maria J D ; Angelini, Carina R ; Souza, Jussara L ; Cecatti, José G</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Analysis</topic><topic>Brazil</topic><topic>Child</topic><topic>Delivery (Childbirth)</topic><topic>Female</topic><topic>Focus groups</topic><topic>Health aspects</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Health literacy</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Low Birth Weight</topic><topic>Infant, Newborn</topic><topic>Infant, Premature</topic><topic>Intensive care</topic><topic>Intensive Care Units, Neonatal</topic><topic>Management</topic><topic>Medical communication</topic><topic>Medical personnel</topic><topic>Neonatal care</topic><topic>Neonatal intensive care units</topic><topic>Newborn babies</topic><topic>Practice</topic><topic>Pregnancy</topic><topic>Premature Birth</topic><topic>Premature infants</topic><topic>Prenatal Care - methods</topic><topic>Qualitative Research</topic><topic>Reproductive health</topic><topic>Womens health</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Miele, Maria J O</creatorcontrib><creatorcontrib>Pacagnella, Rodolfo C</creatorcontrib><creatorcontrib>Osis, Maria J D</creatorcontrib><creatorcontrib>Angelini, Carina R</creatorcontrib><creatorcontrib>Souza, Jussara L</creatorcontrib><creatorcontrib>Cecatti, José G</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Reproductive health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Miele, Maria J O</au><au>Pacagnella, Rodolfo C</au><au>Osis, Maria J D</au><au>Angelini, Carina R</au><au>Souza, Jussara L</au><au>Cecatti, José G</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>"Babies born early?" - silences about prematurity and their consequences</atitle><jtitle>Reproductive health</jtitle><addtitle>Reprod Health</addtitle><date>2018-09-12</date><risdate>2018</risdate><volume>15</volume><issue>1</issue><spage>154</spage><epage>154</epage><pages>154-154</pages><artnum>154</artnum><issn>1742-4755</issn><eissn>1742-4755</eissn><abstract>The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit.
This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil.
The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission.
There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</abstract><cop>England</cop><pub>BioMed Central Ltd</pub><pmid>30208906</pmid><doi>10.1186/s12978-018-0594-4</doi><tpages>1</tpages><orcidid>https://orcid.org/0000-0002-5739-0009</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | Analysis Brazil Child Delivery (Childbirth) Female Focus groups Health aspects Health Knowledge, Attitudes, Practice Health literacy Humans Infant Infant, Low Birth Weight Infant, Newborn Infant, Premature Intensive care Intensive Care Units, Neonatal Management Medical communication Medical personnel Neonatal care Neonatal intensive care units Newborn babies Practice Pregnancy Premature Birth Premature infants Prenatal Care - methods Qualitative Research Reproductive health Womens health |
title | "Babies born early?" - silences about prematurity and their consequences |
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