"Babies born early?" - silences about prematurity and their consequences

The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected us...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:Reproductive health 2018-09, Vol.15 (1), p.154-154, Article 154
Hauptverfasser: Miele, Maria J O, Pacagnella, Rodolfo C, Osis, Maria J D, Angelini, Carina R, Souza, Jussara L, Cecatti, José G
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
container_end_page 154
container_issue 1
container_start_page 154
container_title Reproductive health
container_volume 15
creator Miele, Maria J O
Pacagnella, Rodolfo C
Osis, Maria J D
Angelini, Carina R
Souza, Jussara L
Cecatti, José G
description The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil. The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission. There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.
doi_str_mv 10.1186/s12978-018-0594-4
format Article
fullrecord <record><control><sourceid>gale_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_6136169</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><galeid>A557735915</galeid><sourcerecordid>A557735915</sourcerecordid><originalsourceid>FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</originalsourceid><addsrcrecordid>eNptkU1vFSEUhonR2A_9AW7MpG66mcrhYxg2mtqoNWniRtcEuGdamhm4wozJ_fcy3lpbYwiBwPO-HM5LyCugZwB997YA06pvKdQptWjFE3IISrBWKCmfPtgfkKNSbinl0FP1nBxwymivaXdILk8-WBewNC7l2KDN4-79SdM2JYwYfT23Li1zs8042XnJYd41Nm6a-QZDbnyKBX8sv8EX5Nlgx4Iv79Zj8v3Tx28Xl-3V189fLs6vWi-0mFtBOeskWs-4sN5JQM6plZwxoABg3eAEaIeWMseZtOg9BzUwTcGJoaf8mLzb-24XN-HGY5yzHc02h8nmnUk2mMc3MdyY6_TTdMA76HQ1OL0zyKnWXmYzheJxHG3EtBRTC-FdT2mvKvrmH_Q2LTnW761Ur7VWnfxLXdsRTYhDqu_61dScS6kUlxpW6uw_VB0bnEJtJA61448FsBf4nErJONz_EahZ4zf7-E2N36zxG1E1rx82517xJ2_-C4kjqKo</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2108999765</pqid></control><display><type>article</type><title>"Babies born early?" - silences about prematurity and their consequences</title><source>MEDLINE</source><source>DOAJ Directory of Open Access Journals</source><source>EZB-FREE-00999 freely available EZB journals</source><source>PubMed Central</source><source>SpringerLink Journals - AutoHoldings</source><source>PubMed Central Open Access</source><source>Springer Nature OA Free Journals</source><creator>Miele, Maria J O ; Pacagnella, Rodolfo C ; Osis, Maria J D ; Angelini, Carina R ; Souza, Jussara L ; Cecatti, José G</creator><creatorcontrib>Miele, Maria J O ; Pacagnella, Rodolfo C ; Osis, Maria J D ; Angelini, Carina R ; Souza, Jussara L ; Cecatti, José G</creatorcontrib><description>The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil. The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission. There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</description><identifier>ISSN: 1742-4755</identifier><identifier>EISSN: 1742-4755</identifier><identifier>DOI: 10.1186/s12978-018-0594-4</identifier><identifier>PMID: 30208906</identifier><language>eng</language><publisher>England: BioMed Central Ltd</publisher><subject>Analysis ; Brazil ; Child ; Delivery (Childbirth) ; Female ; Focus groups ; Health aspects ; Health Knowledge, Attitudes, Practice ; Health literacy ; Humans ; Infant ; Infant, Low Birth Weight ; Infant, Newborn ; Infant, Premature ; Intensive care ; Intensive Care Units, Neonatal ; Management ; Medical communication ; Medical personnel ; Neonatal care ; Neonatal intensive care units ; Newborn babies ; Practice ; Pregnancy ; Premature Birth ; Premature infants ; Prenatal Care - methods ; Qualitative Research ; Reproductive health ; Womens health</subject><ispartof>Reproductive health, 2018-09, Vol.15 (1), p.154-154, Article 154</ispartof><rights>COPYRIGHT 2018 BioMed Central Ltd.</rights><rights>Copyright © 2018. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>The Author(s). 2018</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</citedby><cites>FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</cites><orcidid>0000-0002-5739-0009</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136169/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6136169/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30208906$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Miele, Maria J O</creatorcontrib><creatorcontrib>Pacagnella, Rodolfo C</creatorcontrib><creatorcontrib>Osis, Maria J D</creatorcontrib><creatorcontrib>Angelini, Carina R</creatorcontrib><creatorcontrib>Souza, Jussara L</creatorcontrib><creatorcontrib>Cecatti, José G</creatorcontrib><title>"Babies born early?" - silences about prematurity and their consequences</title><title>Reproductive health</title><addtitle>Reprod Health</addtitle><description>The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil. The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission. There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</description><subject>Analysis</subject><subject>Brazil</subject><subject>Child</subject><subject>Delivery (Childbirth)</subject><subject>Female</subject><subject>Focus groups</subject><subject>Health aspects</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Health literacy</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Low Birth Weight</subject><subject>Infant, Newborn</subject><subject>Infant, Premature</subject><subject>Intensive care</subject><subject>Intensive Care Units, Neonatal</subject><subject>Management</subject><subject>Medical communication</subject><subject>Medical personnel</subject><subject>Neonatal care</subject><subject>Neonatal intensive care units</subject><subject>Newborn babies</subject><subject>Practice</subject><subject>Pregnancy</subject><subject>Premature Birth</subject><subject>Premature infants</subject><subject>Prenatal Care - methods</subject><subject>Qualitative Research</subject><subject>Reproductive health</subject><subject>Womens health</subject><issn>1742-4755</issn><issn>1742-4755</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNptkU1vFSEUhonR2A_9AW7MpG66mcrhYxg2mtqoNWniRtcEuGdamhm4wozJ_fcy3lpbYwiBwPO-HM5LyCugZwB997YA06pvKdQptWjFE3IISrBWKCmfPtgfkKNSbinl0FP1nBxwymivaXdILk8-WBewNC7l2KDN4-79SdM2JYwYfT23Li1zs8042XnJYd41Nm6a-QZDbnyKBX8sv8EX5Nlgx4Iv79Zj8v3Tx28Xl-3V189fLs6vWi-0mFtBOeskWs-4sN5JQM6plZwxoABg3eAEaIeWMseZtOg9BzUwTcGJoaf8mLzb-24XN-HGY5yzHc02h8nmnUk2mMc3MdyY6_TTdMA76HQ1OL0zyKnWXmYzheJxHG3EtBRTC-FdT2mvKvrmH_Q2LTnW761Ur7VWnfxLXdsRTYhDqu_61dScS6kUlxpW6uw_VB0bnEJtJA61448FsBf4nErJONz_EahZ4zf7-E2N36zxG1E1rx82517xJ2_-C4kjqKo</recordid><startdate>20180912</startdate><enddate>20180912</enddate><creator>Miele, Maria J O</creator><creator>Pacagnella, Rodolfo C</creator><creator>Osis, Maria J D</creator><creator>Angelini, Carina R</creator><creator>Souza, Jussara L</creator><creator>Cecatti, José G</creator><general>BioMed Central Ltd</general><general>BioMed Central</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-5739-0009</orcidid></search><sort><creationdate>20180912</creationdate><title>"Babies born early?" - silences about prematurity and their consequences</title><author>Miele, Maria J O ; Pacagnella, Rodolfo C ; Osis, Maria J D ; Angelini, Carina R ; Souza, Jussara L ; Cecatti, José G</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c494t-403265eac234acb51e330a532210111abfb419bea02b325aecc317f2901b4f803</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Analysis</topic><topic>Brazil</topic><topic>Child</topic><topic>Delivery (Childbirth)</topic><topic>Female</topic><topic>Focus groups</topic><topic>Health aspects</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Health literacy</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Low Birth Weight</topic><topic>Infant, Newborn</topic><topic>Infant, Premature</topic><topic>Intensive care</topic><topic>Intensive Care Units, Neonatal</topic><topic>Management</topic><topic>Medical communication</topic><topic>Medical personnel</topic><topic>Neonatal care</topic><topic>Neonatal intensive care units</topic><topic>Newborn babies</topic><topic>Practice</topic><topic>Pregnancy</topic><topic>Premature Birth</topic><topic>Premature infants</topic><topic>Prenatal Care - methods</topic><topic>Qualitative Research</topic><topic>Reproductive health</topic><topic>Womens health</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Miele, Maria J O</creatorcontrib><creatorcontrib>Pacagnella, Rodolfo C</creatorcontrib><creatorcontrib>Osis, Maria J D</creatorcontrib><creatorcontrib>Angelini, Carina R</creatorcontrib><creatorcontrib>Souza, Jussara L</creatorcontrib><creatorcontrib>Cecatti, José G</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health &amp; Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>Health &amp; Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Reproductive health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Miele, Maria J O</au><au>Pacagnella, Rodolfo C</au><au>Osis, Maria J D</au><au>Angelini, Carina R</au><au>Souza, Jussara L</au><au>Cecatti, José G</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>"Babies born early?" - silences about prematurity and their consequences</atitle><jtitle>Reproductive health</jtitle><addtitle>Reprod Health</addtitle><date>2018-09-12</date><risdate>2018</risdate><volume>15</volume><issue>1</issue><spage>154</spage><epage>154</epage><pages>154-154</pages><artnum>154</artnum><issn>1742-4755</issn><eissn>1742-4755</eissn><abstract>The principal aim of this study was to understand how communication between parents and health professionals concerning prematurity occurs, from delivery to admission to the neonatal Intensive Care Unit. This is an exploratory, descriptive study with a qualitative methodology. Data were collected using tape-recorded and Focal Groups technique interview with mothers of premature newborns and health professionals involved in caring for preterm infants, at southeast Brazil. The word "premature" was not said or heard during prenatal care. From the narratives, it was observed that there was a lack of information available to pregnant women about preterm birth, failure in medical care regarding signs and symptoms reported by pregnant women, and lack of communication between the medical teams, mothers and family during delivery and Neonatal Intensive Care Unit (NICU) admission. There is a fine line between born too soon and die too soon, that increases stress, fear and distance impacting negatively over communication between mothers and health professionals during antenatal care, childbirth and NICU admission.</abstract><cop>England</cop><pub>BioMed Central Ltd</pub><pmid>30208906</pmid><doi>10.1186/s12978-018-0594-4</doi><tpages>1</tpages><orcidid>https://orcid.org/0000-0002-5739-0009</orcidid><oa>free_for_read</oa></addata></record>
fulltext fulltext
identifier ISSN: 1742-4755
ispartof Reproductive health, 2018-09, Vol.15 (1), p.154-154, Article 154
issn 1742-4755
1742-4755
language eng
recordid cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_6136169
source MEDLINE; DOAJ Directory of Open Access Journals; EZB-FREE-00999 freely available EZB journals; PubMed Central; SpringerLink Journals - AutoHoldings; PubMed Central Open Access; Springer Nature OA Free Journals
subjects Analysis
Brazil
Child
Delivery (Childbirth)
Female
Focus groups
Health aspects
Health Knowledge, Attitudes, Practice
Health literacy
Humans
Infant
Infant, Low Birth Weight
Infant, Newborn
Infant, Premature
Intensive care
Intensive Care Units, Neonatal
Management
Medical communication
Medical personnel
Neonatal care
Neonatal intensive care units
Newborn babies
Practice
Pregnancy
Premature Birth
Premature infants
Prenatal Care - methods
Qualitative Research
Reproductive health
Womens health
title "Babies born early?" - silences about prematurity and their consequences
url https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-08T12%3A56%3A16IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-gale_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=%22Babies%20born%20early?%22%20-%20silences%20about%20prematurity%20and%20their%20consequences&rft.jtitle=Reproductive%20health&rft.au=Miele,%20Maria%20J%20O&rft.date=2018-09-12&rft.volume=15&rft.issue=1&rft.spage=154&rft.epage=154&rft.pages=154-154&rft.artnum=154&rft.issn=1742-4755&rft.eissn=1742-4755&rft_id=info:doi/10.1186/s12978-018-0594-4&rft_dat=%3Cgale_pubme%3EA557735915%3C/gale_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2108999765&rft_id=info:pmid/30208906&rft_galeid=A557735915&rfr_iscdi=true