Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England
PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently...
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creator | Henson, Katherine E Brock, Rachael Shand, Brian Coupland, Victoria H Elliss-Brookes, Lucy Lyratzopoulos, Georgios Godfrey, Philip Haigh, Abigail Hunter, Kelvin McCabe, Martin G Mitchell, Graham Monckton, Nina Robson, Robert Round, Thomas Wong, Kwok Rashbass, Jem |
description | PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently available for April to July 2015, for all patients diagnosed with cancer in England with a dispensed prescription in that time frame.The dispensed prescriptions data are collected by National Health Service (NHS) Prescription Services, and the cancer registry data are processed by Public Health England. All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years. |
doi_str_mv | 10.1136/bmjopen-2017-020980 |
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All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.</description><identifier>ISSN: 2044-6055</identifier><identifier>EISSN: 2044-6055</identifier><identifier>DOI: 10.1136/bmjopen-2017-020980</identifier><identifier>PMID: 29991628</identifier><language>eng</language><publisher>England: BMJ Publishing Group LTD</publisher><subject>Adolescent ; Adult ; Aged ; Aged, 80 and over ; Cancer ; Child ; Child, Preschool ; Computerized physician order entry ; Data Accuracy ; Data Anonymization ; Data dictionaries ; Datasets ; Drug Prescriptions - statistics & numerical data ; England ; Epidemiology ; Female ; Health services ; Hospitals ; Humans ; Infant ; Infant, Newborn ; Information Storage and Retrieval ; Male ; Medical diagnosis ; Medical Record Linkage ; Medical research ; Middle Aged ; Neoplasms - diagnosis ; Neoplasms - pathology ; Oncology ; Patients ; Pharmacy ; Population ; Prescription drugs ; Primary care ; Prostate cancer ; Public health ; Registration ; Registries ; Tariffs ; Young Adult</subject><ispartof>BMJ open, 2018-07, Vol.8 (7), p.e020980-e020980</ispartof><rights>Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted.</rights><rights>2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. 2018</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b472t-2a1526b3a94f08bbe96a4c6f3a6bcbc6ef2fc68df53a99fd2486e09f41bfa9e53</citedby><cites>FETCH-LOGICAL-b472t-2a1526b3a94f08bbe96a4c6f3a6bcbc6ef2fc68df53a99fd2486e09f41bfa9e53</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://bmjopen.bmj.com/content/8/7/e020980.full.pdf$$EPDF$$P50$$Gbmj$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://bmjopen.bmj.com/content/8/7/e020980.full$$EHTML$$P50$$Gbmj$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,27548,27549,27923,27924,53790,53792,77372,77403</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29991628$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Henson, Katherine E</creatorcontrib><creatorcontrib>Brock, Rachael</creatorcontrib><creatorcontrib>Shand, Brian</creatorcontrib><creatorcontrib>Coupland, Victoria H</creatorcontrib><creatorcontrib>Elliss-Brookes, Lucy</creatorcontrib><creatorcontrib>Lyratzopoulos, Georgios</creatorcontrib><creatorcontrib>Godfrey, Philip</creatorcontrib><creatorcontrib>Haigh, Abigail</creatorcontrib><creatorcontrib>Hunter, Kelvin</creatorcontrib><creatorcontrib>McCabe, Martin G</creatorcontrib><creatorcontrib>Mitchell, Graham</creatorcontrib><creatorcontrib>Monckton, Nina</creatorcontrib><creatorcontrib>Robson, Robert</creatorcontrib><creatorcontrib>Round, Thomas</creatorcontrib><creatorcontrib>Wong, Kwok</creatorcontrib><creatorcontrib>Rashbass, Jem</creatorcontrib><title>Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England</title><title>BMJ open</title><addtitle>BMJ Open</addtitle><description>PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently available for April to July 2015, for all patients diagnosed with cancer in England with a dispensed prescription in that time frame.The dispensed prescriptions data are collected by National Health Service (NHS) Prescription Services, and the cancer registry data are processed by Public Health England. All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Cancer</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Computerized physician order entry</subject><subject>Data Accuracy</subject><subject>Data Anonymization</subject><subject>Data dictionaries</subject><subject>Datasets</subject><subject>Drug Prescriptions - statistics & numerical data</subject><subject>England</subject><subject>Epidemiology</subject><subject>Female</subject><subject>Health services</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Newborn</subject><subject>Information Storage and Retrieval</subject><subject>Male</subject><subject>Medical diagnosis</subject><subject>Medical Record Linkage</subject><subject>Medical research</subject><subject>Middle Aged</subject><subject>Neoplasms - diagnosis</subject><subject>Neoplasms - pathology</subject><subject>Oncology</subject><subject>Patients</subject><subject>Pharmacy</subject><subject>Population</subject><subject>Prescription drugs</subject><subject>Primary care</subject><subject>Prostate cancer</subject><subject>Public health</subject><subject>Registration</subject><subject>Registries</subject><subject>Tariffs</subject><subject>Young Adult</subject><issn>2044-6055</issn><issn>2044-6055</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>9YT</sourceid><sourceid>ACMMV</sourceid><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNqNkU-P1SAUxYnROJNxPoGJaeLGTUdKgRYXJuZl_JNM4kbXBOjlPZ4tVKCTvG8vtc_J6Eo23Fx-58DlIPSywTdN0_K3ejqGGXxNcNPVmGDR4yfokmBKa44Ze_qovkDXKR1xWZQJxshzdEGEEA0n_SU67sIhxFzNMVg3wrtSQDLRzdkFn6rBpXJLgqFyvsoHqEyYpsW7fKpG53-Ufg6_-16tAjVWRnkDsYqwdynH06q79ftR-eEFembVmOD6vF-h7x9vv-0-13dfP33ZfbirNe1IrolqGOG6VYJa3GsNgitquG0V10YbDpZYw_vBsoIIOxDac8DC0kZbJYC1V-j95jsveoLBgM9RjXKOblLxJINy8u8T7w5yH-4lxz2hbDV4czaI4ecCKcvJJQNjGQLCkiTBvG8p60RX0Nf_oMewxPIPG9V1uBW8UO1GmRhSimAfHtNgucYpz3HKNU65xVlUrx7P8aD5E14BbjagqP_L8RfJXq8K</recordid><startdate>20180710</startdate><enddate>20180710</enddate><creator>Henson, Katherine E</creator><creator>Brock, Rachael</creator><creator>Shand, Brian</creator><creator>Coupland, Victoria H</creator><creator>Elliss-Brookes, Lucy</creator><creator>Lyratzopoulos, Georgios</creator><creator>Godfrey, Philip</creator><creator>Haigh, Abigail</creator><creator>Hunter, Kelvin</creator><creator>McCabe, Martin G</creator><creator>Mitchell, Graham</creator><creator>Monckton, Nina</creator><creator>Robson, Robert</creator><creator>Round, Thomas</creator><creator>Wong, Kwok</creator><creator>Rashbass, Jem</creator><general>BMJ Publishing Group LTD</general><general>BMJ Publishing Group</general><scope>9YT</scope><scope>ACMMV</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88G</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BTHHO</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K9-</scope><scope>K9.</scope><scope>KB0</scope><scope>M0R</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20180710</creationdate><title>Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England</title><author>Henson, Katherine E ; Brock, Rachael ; Shand, Brian ; Coupland, Victoria H ; Elliss-Brookes, Lucy ; Lyratzopoulos, Georgios ; Godfrey, Philip ; Haigh, Abigail ; Hunter, Kelvin ; McCabe, Martin G ; Mitchell, Graham ; Monckton, Nina ; Robson, Robert ; Round, Thomas ; Wong, Kwok ; Rashbass, Jem</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b472t-2a1526b3a94f08bbe96a4c6f3a6bcbc6ef2fc68df53a99fd2486e09f41bfa9e53</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Cancer</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Computerized physician order entry</topic><topic>Data Accuracy</topic><topic>Data Anonymization</topic><topic>Data dictionaries</topic><topic>Datasets</topic><topic>Drug Prescriptions - statistics & numerical data</topic><topic>England</topic><topic>Epidemiology</topic><topic>Female</topic><topic>Health services</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Newborn</topic><topic>Information Storage and Retrieval</topic><topic>Male</topic><topic>Medical diagnosis</topic><topic>Medical Record Linkage</topic><topic>Medical research</topic><topic>Middle Aged</topic><topic>Neoplasms - diagnosis</topic><topic>Neoplasms - pathology</topic><topic>Oncology</topic><topic>Patients</topic><topic>Pharmacy</topic><topic>Population</topic><topic>Prescription drugs</topic><topic>Primary care</topic><topic>Prostate cancer</topic><topic>Public health</topic><topic>Registration</topic><topic>Registries</topic><topic>Tariffs</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Henson, Katherine E</creatorcontrib><creatorcontrib>Brock, Rachael</creatorcontrib><creatorcontrib>Shand, Brian</creatorcontrib><creatorcontrib>Coupland, Victoria H</creatorcontrib><creatorcontrib>Elliss-Brookes, Lucy</creatorcontrib><creatorcontrib>Lyratzopoulos, Georgios</creatorcontrib><creatorcontrib>Godfrey, Philip</creatorcontrib><creatorcontrib>Haigh, Abigail</creatorcontrib><creatorcontrib>Hunter, Kelvin</creatorcontrib><creatorcontrib>McCabe, Martin G</creatorcontrib><creatorcontrib>Mitchell, Graham</creatorcontrib><creatorcontrib>Monckton, Nina</creatorcontrib><creatorcontrib>Robson, Robert</creatorcontrib><creatorcontrib>Round, Thomas</creatorcontrib><creatorcontrib>Wong, Kwok</creatorcontrib><creatorcontrib>Rashbass, Jem</creatorcontrib><collection>BMJ Open Access Journals</collection><collection>BMJ Journals:Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>BMJ Journals</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Consumer Health Database (Alumni Edition)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Consumer Health Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Psychology Database</collection><collection>Nursing & Allied Health Premium</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>BMJ open</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Henson, Katherine E</au><au>Brock, Rachael</au><au>Shand, Brian</au><au>Coupland, Victoria H</au><au>Elliss-Brookes, Lucy</au><au>Lyratzopoulos, Georgios</au><au>Godfrey, Philip</au><au>Haigh, Abigail</au><au>Hunter, Kelvin</au><au>McCabe, Martin G</au><au>Mitchell, Graham</au><au>Monckton, Nina</au><au>Robson, Robert</au><au>Round, Thomas</au><au>Wong, Kwok</au><au>Rashbass, Jem</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England</atitle><jtitle>BMJ open</jtitle><addtitle>BMJ Open</addtitle><date>2018-07-10</date><risdate>2018</risdate><volume>8</volume><issue>7</issue><spage>e020980</spage><epage>e020980</epage><pages>e020980-e020980</pages><issn>2044-6055</issn><eissn>2044-6055</eissn><abstract>PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently available for April to July 2015, for all patients diagnosed with cancer in England with a dispensed prescription in that time frame.The dispensed prescriptions data are collected by National Health Service (NHS) Prescription Services, and the cancer registry data are processed by Public Health England. All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.</abstract><cop>England</cop><pub>BMJ Publishing Group LTD</pub><pmid>29991628</pmid><doi>10.1136/bmjopen-2017-020980</doi><oa>free_for_read</oa></addata></record> |
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subjects | Adolescent Adult Aged Aged, 80 and over Cancer Child Child, Preschool Computerized physician order entry Data Accuracy Data Anonymization Data dictionaries Datasets Drug Prescriptions - statistics & numerical data England Epidemiology Female Health services Hospitals Humans Infant Infant, Newborn Information Storage and Retrieval Male Medical diagnosis Medical Record Linkage Medical research Middle Aged Neoplasms - diagnosis Neoplasms - pathology Oncology Patients Pharmacy Population Prescription drugs Primary care Prostate cancer Public health Registration Registries Tariffs Young Adult |
title | Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England |
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