Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England

PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently...

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Veröffentlicht in:BMJ open 2018-07, Vol.8 (7), p.e020980-e020980
Hauptverfasser: Henson, Katherine E, Brock, Rachael, Shand, Brian, Coupland, Victoria H, Elliss-Brookes, Lucy, Lyratzopoulos, Georgios, Godfrey, Philip, Haigh, Abigail, Hunter, Kelvin, McCabe, Martin G, Mitchell, Graham, Monckton, Nina, Robson, Robert, Round, Thomas, Wong, Kwok, Rashbass, Jem
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container_end_page e020980
container_issue 7
container_start_page e020980
container_title BMJ open
container_volume 8
creator Henson, Katherine E
Brock, Rachael
Shand, Brian
Coupland, Victoria H
Elliss-Brookes, Lucy
Lyratzopoulos, Georgios
Godfrey, Philip
Haigh, Abigail
Hunter, Kelvin
McCabe, Martin G
Mitchell, Graham
Monckton, Nina
Robson, Robert
Round, Thomas
Wong, Kwok
Rashbass, Jem
description PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently available for April to July 2015, for all patients diagnosed with cancer in England with a dispensed prescription in that time frame.The dispensed prescriptions data are collected by National Health Service (NHS) Prescription Services, and the cancer registry data are processed by Public Health England. All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.
doi_str_mv 10.1136/bmjopen-2017-020980
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All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.</description><identifier>ISSN: 2044-6055</identifier><identifier>EISSN: 2044-6055</identifier><identifier>DOI: 10.1136/bmjopen-2017-020980</identifier><identifier>PMID: 29991628</identifier><language>eng</language><publisher>England: BMJ Publishing Group LTD</publisher><subject>Adolescent ; Adult ; Aged ; Aged, 80 and over ; Cancer ; Child ; Child, Preschool ; Computerized physician order entry ; Data Accuracy ; Data Anonymization ; Data dictionaries ; Datasets ; Drug Prescriptions - statistics &amp; numerical data ; England ; Epidemiology ; Female ; Health services ; Hospitals ; Humans ; Infant ; Infant, Newborn ; Information Storage and Retrieval ; Male ; Medical diagnosis ; Medical Record Linkage ; Medical research ; Middle Aged ; Neoplasms - diagnosis ; Neoplasms - pathology ; Oncology ; Patients ; Pharmacy ; Population ; Prescription drugs ; Primary care ; Prostate cancer ; Public health ; Registration ; Registries ; Tariffs ; Young Adult</subject><ispartof>BMJ open, 2018-07, Vol.8 (7), p.e020980-e020980</ispartof><rights>Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted.</rights><rights>2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. 2018</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b472t-2a1526b3a94f08bbe96a4c6f3a6bcbc6ef2fc68df53a99fd2486e09f41bfa9e53</citedby><cites>FETCH-LOGICAL-b472t-2a1526b3a94f08bbe96a4c6f3a6bcbc6ef2fc68df53a99fd2486e09f41bfa9e53</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://bmjopen.bmj.com/content/8/7/e020980.full.pdf$$EPDF$$P50$$Gbmj$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://bmjopen.bmj.com/content/8/7/e020980.full$$EHTML$$P50$$Gbmj$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,27548,27549,27923,27924,53790,53792,77372,77403</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29991628$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Henson, Katherine E</creatorcontrib><creatorcontrib>Brock, Rachael</creatorcontrib><creatorcontrib>Shand, Brian</creatorcontrib><creatorcontrib>Coupland, Victoria H</creatorcontrib><creatorcontrib>Elliss-Brookes, Lucy</creatorcontrib><creatorcontrib>Lyratzopoulos, Georgios</creatorcontrib><creatorcontrib>Godfrey, Philip</creatorcontrib><creatorcontrib>Haigh, Abigail</creatorcontrib><creatorcontrib>Hunter, Kelvin</creatorcontrib><creatorcontrib>McCabe, Martin G</creatorcontrib><creatorcontrib>Mitchell, Graham</creatorcontrib><creatorcontrib>Monckton, Nina</creatorcontrib><creatorcontrib>Robson, Robert</creatorcontrib><creatorcontrib>Round, Thomas</creatorcontrib><creatorcontrib>Wong, Kwok</creatorcontrib><creatorcontrib>Rashbass, Jem</creatorcontrib><title>Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England</title><title>BMJ open</title><addtitle>BMJ Open</addtitle><description>PurposeThe linked prescriptions cancer registry data resource was set up to extend our understanding of the pathway for patients with cancer past secondary care into the community, to ultimately improve patient outcomes.ParticipantsThe linked prescriptions cancer registry data resource is currently available for April to July 2015, for all patients diagnosed with cancer in England with a dispensed prescription in that time frame.The dispensed prescriptions data are collected by National Health Service (NHS) Prescription Services, and the cancer registry data are processed by Public Health England. All data are routine healthcare data, used for secondary purposes, linked using a pseudonymised version of the patient’s NHS number and date of birth.Detailed demographic and clinical information on the type of cancer diagnosed and treatment is collected by the cancer registry. The dispensed prescriptions data contain basic demographic information, geography measures of the dispensed prescription, drug information (quantity, strength and presentation), cost of the drug and the date that the dispensed prescription was submitted to NHS Business Services Authority.Findings to dateFindings include a study of end of life prescribing in the community among patients with cancer, an investigation of repeat prescriptions to derive measures of prior morbidity status in patients with cancer and studies of prescription activity surrounding the date of cancer diagnosis.Future plansThis English linked resource could be used for cancer epidemiological studies of diagnostic pathways, health outcomes and inequalities; to establish primary care comorbidity indices and for guideline concordance studies of treatment, particularly hormonal therapy, as a major treatment modality for breast and prostate cancer which has been largely delivered in the community setting for a number of years.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Cancer</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Computerized physician order entry</subject><subject>Data Accuracy</subject><subject>Data Anonymization</subject><subject>Data dictionaries</subject><subject>Datasets</subject><subject>Drug Prescriptions - statistics &amp; 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source BMJ Open Access Journals; MEDLINE; DOAJ Directory of Open Access Journals; PubMed Central Open Access; EZB-FREE-00999 freely available EZB journals; PubMed Central
subjects Adolescent
Adult
Aged
Aged, 80 and over
Cancer
Child
Child, Preschool
Computerized physician order entry
Data Accuracy
Data Anonymization
Data dictionaries
Datasets
Drug Prescriptions - statistics & numerical data
England
Epidemiology
Female
Health services
Hospitals
Humans
Infant
Infant, Newborn
Information Storage and Retrieval
Male
Medical diagnosis
Medical Record Linkage
Medical research
Middle Aged
Neoplasms - diagnosis
Neoplasms - pathology
Oncology
Patients
Pharmacy
Population
Prescription drugs
Primary care
Prostate cancer
Public health
Registration
Registries
Tariffs
Young Adult
title Cohort profile: prescriptions dispensed in the community linked to the national cancer registry in England
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