Nurses' experience with relatives of patients receiving end‐of‐life care in nursing homes and at home: A questionnaire‐based cross‐sectional study
Aim The aim of this study was to explore any differences between nurses working in nursing home and home‐based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to con...
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| Veröffentlicht in: | Nursing open 2018-07, Vol.5 (3), p.431-441 |
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| creator | Paulsen, Bård Johnsen, Roar Hadders, Hans |
| description | Aim
The aim of this study was to explore any differences between nurses working in nursing home and home‐based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.
Design
An electronic questionnaire‐based cross‐sectional study.
Method
An electronically distributed survey to 884 nurses in long‐term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home‐based care.
Results
Nurses in home‐based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life‐prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient. |
| doi_str_mv | 10.1002/nop2.155 |
| format | Article |
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The aim of this study was to explore any differences between nurses working in nursing home and home‐based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.
Design
An electronic questionnaire‐based cross‐sectional study.
Method
An electronically distributed survey to 884 nurses in long‐term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home‐based care.
Results
Nurses in home‐based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life‐prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient.</description><identifier>ISSN: 2054-1058</identifier><identifier>EISSN: 2054-1058</identifier><identifier>DOI: 10.1002/nop2.155</identifier><identifier>PMID: 30062037</identifier><language>eng</language><publisher>United States: John Wiley & Sons, Inc</publisher><subject>awareness of dying ; Cross-sectional studies ; end‐of‐life care ; home‐based care ; Nurses ; nursing ; Nursing homes ; relatives</subject><ispartof>Nursing open, 2018-07, Vol.5 (3), p.431-441</ispartof><rights>2018 The Authors. published by John Wiley & Sons Ltd.</rights><rights>2018. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4665-a0a275c6c415a6e1921f5369f25c0e24cf47723dcd2f5f2d1bef7a10882d37133</citedby><cites>FETCH-LOGICAL-c4665-a0a275c6c415a6e1921f5369f25c0e24cf47723dcd2f5f2d1bef7a10882d37133</cites><orcidid>0000-0003-4515-2780</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6056440/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6056440/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,1411,11542,27903,27904,45553,45554,46031,46455,53770,53772</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30062037$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Paulsen, Bård</creatorcontrib><creatorcontrib>Johnsen, Roar</creatorcontrib><creatorcontrib>Hadders, Hans</creatorcontrib><title>Nurses' experience with relatives of patients receiving end‐of‐life care in nursing homes and at home: A questionnaire‐based cross‐sectional study</title><title>Nursing open</title><addtitle>Nurs Open</addtitle><description>Aim
The aim of this study was to explore any differences between nurses working in nursing home and home‐based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.
Design
An electronic questionnaire‐based cross‐sectional study.
Method
An electronically distributed survey to 884 nurses in long‐term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home‐based care.
Results
Nurses in home‐based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life‐prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient.</description><subject>awareness of dying</subject><subject>Cross-sectional studies</subject><subject>end‐of‐life care</subject><subject>home‐based care</subject><subject>Nurses</subject><subject>nursing</subject><subject>Nursing homes</subject><subject>relatives</subject><issn>2054-1058</issn><issn>2054-1058</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><recordid>eNp1kc9u1DAQxi0EolWpxBMgSxzoJWXsxE6WA1JV8U-qWg5wtrz2uOsqawc72bI3HoEzj8eT4GxLKUhc7BnPNz_N-CPkKYNjBsBfhjjwYybEA7LPQTQVA9E9vBfvkcOcrwCAia4FWDwmezWA5FC3--TH-ZQy5hcUvw6YPAaD9NqPK5qw16PfYKbR0aGEGMZcXg36jQ-XFIP9-e17dOXovUNqdELqAw2FN9dXcV16dbBUj7vkFT2hXybMo48haJ-wdC51RktNijmXLKOZi7qneZzs9gl55HSf8fD2PiCf3775dPq-Ort49-H05KwyjZSi0qB5K4w0DRNaIltw5kQtF44LA8gb45q25bU1ljvhuGVLdK1m0HXc1i2r6wPy-oY7TMs1WlMWTbpXQ_JrnbYqaq_-rgS_UpdxoyQI2TRQAEe3gBR3G6q1zwb7XgeMU1YcOujqBZddkT7_R3oVp1RWnlVt3UkuOv4HuPuZhO5uGAZq9lzNnqvieZE-uz_8nfC3w0VQ3QiufY_b_4LU-cVHPgN_AaesvDY</recordid><startdate>201807</startdate><enddate>201807</enddate><creator>Paulsen, Bård</creator><creator>Johnsen, Roar</creator><creator>Hadders, Hans</creator><general>John Wiley & Sons, Inc</general><general>John Wiley and Sons Inc</general><scope>24P</scope><scope>WIN</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7XB</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ASE</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FPQ</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K6X</scope><scope>KB0</scope><scope>NAPCQ</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-4515-2780</orcidid></search><sort><creationdate>201807</creationdate><title>Nurses' experience with relatives of patients receiving end‐of‐life care in nursing homes and at home: A questionnaire‐based cross‐sectional study</title><author>Paulsen, Bård ; Johnsen, Roar ; Hadders, Hans</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4665-a0a275c6c415a6e1921f5369f25c0e24cf47723dcd2f5f2d1bef7a10882d37133</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>awareness of dying</topic><topic>Cross-sectional studies</topic><topic>end‐of‐life care</topic><topic>home‐based care</topic><topic>Nurses</topic><topic>nursing</topic><topic>Nursing homes</topic><topic>relatives</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Paulsen, Bård</creatorcontrib><creatorcontrib>Johnsen, Roar</creatorcontrib><creatorcontrib>Hadders, Hans</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Wiley Online Library Free Content</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Index</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Nursing & Allied Health Premium</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Nursing open</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Paulsen, Bård</au><au>Johnsen, Roar</au><au>Hadders, Hans</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Nurses' experience with relatives of patients receiving end‐of‐life care in nursing homes and at home: A questionnaire‐based cross‐sectional study</atitle><jtitle>Nursing open</jtitle><addtitle>Nurs Open</addtitle><date>2018-07</date><risdate>2018</risdate><volume>5</volume><issue>3</issue><spage>431</spage><epage>441</epage><pages>431-441</pages><issn>2054-1058</issn><eissn>2054-1058</eissn><abstract>Aim
The aim of this study was to explore any differences between nurses working in nursing home and home‐based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.
Design
An electronic questionnaire‐based cross‐sectional study.
Method
An electronically distributed survey to 884 nurses in long‐term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home‐based care.
Results
Nurses in home‐based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life‐prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient.</abstract><cop>United States</cop><pub>John Wiley & Sons, Inc</pub><pmid>30062037</pmid><doi>10.1002/nop2.155</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0003-4515-2780</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Nursing open, 2018-07, Vol.5 (3), p.431-441 |
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| source | DOAJ Directory of Open Access Journals; Wiley Online Library Journals Frontfile Complete; Wiley Online Library Open Access; EZB-FREE-00999 freely available EZB journals; PubMed Central |
| subjects | awareness of dying Cross-sectional studies end‐of‐life care home‐based care Nurses nursing Nursing homes relatives |
| title | Nurses' experience with relatives of patients receiving end‐of‐life care in nursing homes and at home: A questionnaire‐based cross‐sectional study |
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