Ethical Issues in Social Media Research for Public Health
Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no c...
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| Veröffentlicht in: | American journal of public health (1971) 2018-03, Vol.108 (3), p.343-348 |
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| container_title | American journal of public health (1971) |
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| creator | Hunter, Ruth F Gough, Aisling O'Kane, Niamh McKeown, Gary Fitzpatrick, Aine Walker, Tom McKinley, Michelle Lee, Mandy Kee, Frank |
| description | Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. Most importantly, public health researchers must work within the ethical principles set out by the Declaration of Helsinki that protect individual users first and foremost. |
| doi_str_mv | 10.2105/AJPH.2017.304249 |
| format | Article |
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However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. Most importantly, public health researchers must work within the ethical principles set out by the Declaration of Helsinki that protect individual users first and foremost.</description><subject>AJPH Law & Ethics</subject><subject>Authenticity</subject><subject>Automation</subject><subject>Communication</subject><subject>Computer networks</subject><subject>Confidentiality</subject><subject>Consent</subject><subject>Cybersecurity</subject><subject>Data integrity</subject><subject>Digital media</subject><subject>Ethics</subject><subject>Health research</subject><subject>Health Services Research - ethics</subject><subject>Health surveillance</subject><subject>Humans</subject><subject>Informed Consent</subject><subject>Internet</subject><subject>Mass media</subject><subject>Medical research</subject><subject>Participation</subject><subject>Personal information</subject><subject>Privacy</subject><subject>Public health</subject><subject>Public Health - methods</subject><subject>Recruitment</subject><subject>Research Design</subject><subject>Sampling</subject><subject>Security</subject><subject>Social Media</subject><subject>Social networks</subject><subject>Social research</subject><subject>Social Science</subject><subject>Surveillance</subject><subject>Systematic review</subject><subject>Traffic surveillance</subject><subject>Ubiquitous 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(1971)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hunter, Ruth F</au><au>Gough, Aisling</au><au>O'Kane, Niamh</au><au>McKeown, Gary</au><au>Fitzpatrick, Aine</au><au>Walker, Tom</au><au>McKinley, Michelle</au><au>Lee, Mandy</au><au>Kee, Frank</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Ethical Issues in Social Media Research for Public Health</atitle><jtitle>American journal of public health (1971)</jtitle><addtitle>Am J Public Health</addtitle><date>2018-03</date><risdate>2018</risdate><volume>108</volume><issue>3</issue><spage>343</spage><epage>348</epage><pages>343-348</pages><issn>0090-0036</issn><eissn>1541-0048</eissn><abstract>Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. 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| ispartof | American journal of public health (1971), 2018-03, Vol.108 (3), p.343-348 |
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| language | eng |
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| source | MEDLINE; PAIS Index; EBSCOhost Business Source Complete; EBSCOhost Education Source; PubMed Central; Alma/SFX Local Collection |
| subjects | AJPH Law & Ethics Authenticity Automation Communication Computer networks Confidentiality Consent Cybersecurity Data integrity Digital media Ethics Health research Health Services Research - ethics Health surveillance Humans Informed Consent Internet Mass media Medical research Participation Personal information Privacy Public health Public Health - methods Recruitment Research Design Sampling Security Social Media Social networks Social research Social Science Surveillance Systematic review Traffic surveillance Ubiquitous computing |
| title | Ethical Issues in Social Media Research for Public Health |
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