Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study
Social media technologies have become increasingly useful tools for research-based interventions. However, participants and social media users have expressed ethical concerns with these studies, such as risks and benefits of participation, as well as privacy, confidentiality, and informed consent is...
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| Veröffentlicht in: | Prevention science 2017-02, Vol.18 (2), p.225-232 |
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| creator | Garett, Renee Menacho, Luis Young, Sean D. |
| description | Social media technologies have become increasingly useful tools for research-based interventions. However, participants and social media users have expressed ethical concerns with these studies, such as risks and benefits of participation, as well as privacy, confidentiality, and informed consent issues. This study was designed to follow up with and assess experiences and perceptions of ethics-related issues among a sample of 211 men who have sex with men who participated in the Harnessing Online Peer Education (HOPE) Peru study, a randomized controlled HIV prevention intervention conducted in Peru. We found that after adjusting for age, highest educational attainment, race, sexual orientation, and prior HIV research experience, participants in the intervention group were more likely than those in the control group to have safe sex (
p
= 0.0051) and get tested for HIV regularly (
p
= 0.0051). As a result of their participation, those in the intervention group benefited more positively than participants in the control group in improving HIV care (
p
= 0.0077) and learning where to receive sexual health services (
p
= 0.0021). Participants in the intervention group expressed higher levels of comfort than those in the control group in joining and seeing other people in the Facebook group (
p
= 0.039), seeing other people’s posts (
p
= 0.038) and having other group members talk to them online (
p
= 0.040). We discuss the implications of these results as they relate to social media-based HIV research. |
| doi_str_mv | 10.1007/s11121-016-0739-z |
| format | Article |
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p
= 0.0051) and get tested for HIV regularly (
p
= 0.0051). As a result of their participation, those in the intervention group benefited more positively than participants in the control group in improving HIV care (
p
= 0.0077) and learning where to receive sexual health services (
p
= 0.0021). Participants in the intervention group expressed higher levels of comfort than those in the control group in joining and seeing other people in the Facebook group (
p
= 0.039), seeing other people’s posts (
p
= 0.038) and having other group members talk to them online (
p
= 0.040). We discuss the implications of these results as they relate to social media-based HIV research.</description><identifier>ISSN: 1389-4986</identifier><identifier>EISSN: 1573-6695</identifier><identifier>DOI: 10.1007/s11121-016-0739-z</identifier><identifier>PMID: 27933425</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Acquired immune deficiency syndrome ; AIDS ; Child and School Psychology ; Confidentiality ; Educational attainment ; Ethics ; Health Psychology ; Health services ; HIV ; Human immunodeficiency virus ; Informed consent ; Internet ; Intervention ; Males ; Mass media ; Medicine ; Medicine & Public Health ; Participation ; Prevention ; Public Health ; Race ; Social networks</subject><ispartof>Prevention science, 2017-02, Vol.18 (2), p.225-232</ispartof><rights>Society for Prevention Research 2016</rights><rights>Prevention Science is a copyright of Springer, 2017.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c470t-7ebae0cf997a3a7b1e86ad24699c8514575148295c95a5b2610efe3c3dc041323</citedby><cites>FETCH-LOGICAL-c470t-7ebae0cf997a3a7b1e86ad24699c8514575148295c95a5b2610efe3c3dc041323</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s11121-016-0739-z$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s11121-016-0739-z$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>230,314,780,784,885,27866,27924,27925,41488,42557,51319</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27933425$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Garett, Renee</creatorcontrib><creatorcontrib>Menacho, Luis</creatorcontrib><creatorcontrib>Young, Sean D.</creatorcontrib><title>Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study</title><title>Prevention science</title><addtitle>Prev Sci</addtitle><addtitle>Prev Sci</addtitle><description>Social media technologies have become increasingly useful tools for research-based interventions. However, participants and social media users have expressed ethical concerns with these studies, such as risks and benefits of participation, as well as privacy, confidentiality, and informed consent issues. This study was designed to follow up with and assess experiences and perceptions of ethics-related issues among a sample of 211 men who have sex with men who participated in the Harnessing Online Peer Education (HOPE) Peru study, a randomized controlled HIV prevention intervention conducted in Peru. We found that after adjusting for age, highest educational attainment, race, sexual orientation, and prior HIV research experience, participants in the intervention group were more likely than those in the control group to have safe sex (
p
= 0.0051) and get tested for HIV regularly (
p
= 0.0051). As a result of their participation, those in the intervention group benefited more positively than participants in the control group in improving HIV care (
p
= 0.0077) and learning where to receive sexual health services (
p
= 0.0021). Participants in the intervention group expressed higher levels of comfort than those in the control group in joining and seeing other people in the Facebook group (
p
= 0.039), seeing other people’s posts (
p
= 0.038) and having other group members talk to them online (
p
= 0.040). We discuss the implications of these results as they relate to social media-based HIV research.</description><subject>Acquired immune deficiency syndrome</subject><subject>AIDS</subject><subject>Child and School Psychology</subject><subject>Confidentiality</subject><subject>Educational attainment</subject><subject>Ethics</subject><subject>Health Psychology</subject><subject>Health services</subject><subject>HIV</subject><subject>Human immunodeficiency virus</subject><subject>Informed consent</subject><subject>Internet</subject><subject>Intervention</subject><subject>Males</subject><subject>Mass media</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Participation</subject><subject>Prevention</subject><subject>Public Health</subject><subject>Race</subject><subject>Social networks</subject><issn>1389-4986</issn><issn>1573-6695</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>7TQ</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNp1kU1vEzEQhlcIREvhB3BBlrhwWeqP9RcHJFRSEqlVI0q5Wo53NnG1sVN7N1L76-sqaVWQerE9nmdez_itqo8EfyUYy-NMCKGkxkTUWDJd372qDgmXrBZC89flzJSuG63EQfUu52tcQM7w2-qASs1YQ_lhtZkMK-9sj2Y5j5CRD-gq-7BEl9H5cn0OrbdoiOgn9H4LCdmAprO_aJ5gC2HwMaBZGCDtg2_oN-SxHzLqUlyjYQVoejGfoDmkEV0OY3v7vnrT2T7Dh_1-VF2dTv6cTOuzi1-zkx9ntWskHmoJCwvYdVpLy6xcEFDCtrQRWjvFScNlWRTV3Glu-YIKgqED5ljrcEMYZUfV953uZlysoXWlv2R7s0l-bdOtidabfzPBr8wybg2XVDRYFIEve4EUb8rXDGbts4O-twHimA1RjVQaK64L-vk_9DqOKZTxCiU4bZQUslBkR7kUc07QPTVDsHnw0-z8NMUm8-CnuSs1n55P8VTxaGAB6A7IJRWWkJ49_aLqPWgoq58</recordid><startdate>20170201</startdate><enddate>20170201</enddate><creator>Garett, Renee</creator><creator>Menacho, Luis</creator><creator>Young, Sean D.</creator><general>Springer US</general><general>Springer Nature B.V</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7TQ</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88G</scope><scope>8AM</scope><scope>8AO</scope><scope>8BJ</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BGRYB</scope><scope>CCPQU</scope><scope>DHY</scope><scope>DON</scope><scope>DPSOV</scope><scope>DWQXO</scope><scope>FQK</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>JBE</scope><scope>K7.</scope><scope>K9.</scope><scope>KC-</scope><scope>M0O</scope><scope>M0S</scope><scope>M1P</scope><scope>M2L</scope><scope>M2M</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20170201</creationdate><title>Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study</title><author>Garett, Renee ; Menacho, Luis ; Young, Sean D.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c470t-7ebae0cf997a3a7b1e86ad24699c8514575148295c95a5b2610efe3c3dc041323</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Acquired immune deficiency syndrome</topic><topic>AIDS</topic><topic>Child and School Psychology</topic><topic>Confidentiality</topic><topic>Educational attainment</topic><topic>Ethics</topic><topic>Health Psychology</topic><topic>Health services</topic><topic>HIV</topic><topic>Human immunodeficiency virus</topic><topic>Informed consent</topic><topic>Internet</topic><topic>Intervention</topic><topic>Males</topic><topic>Mass media</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Participation</topic><topic>Prevention</topic><topic>Public Health</topic><topic>Race</topic><topic>Social networks</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Garett, Renee</creatorcontrib><creatorcontrib>Menacho, Luis</creatorcontrib><creatorcontrib>Young, Sean D.</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>PAIS Index</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>Criminal Justice Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Criminology Collection</collection><collection>ProQuest One Community College</collection><collection>PAIS International</collection><collection>PAIS International (Ovid)</collection><collection>Politics Collection</collection><collection>ProQuest Central Korea</collection><collection>International Bibliography of the Social Sciences</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>International Bibliography of the Social Sciences</collection><collection>ProQuest Criminal Justice (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>ProQuest Politics Collection</collection><collection>Criminal Justice Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Political Science Database</collection><collection>Psychology Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Prevention science</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Garett, Renee</au><au>Menacho, Luis</au><au>Young, Sean D.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study</atitle><jtitle>Prevention science</jtitle><stitle>Prev Sci</stitle><addtitle>Prev Sci</addtitle><date>2017-02-01</date><risdate>2017</risdate><volume>18</volume><issue>2</issue><spage>225</spage><epage>232</epage><pages>225-232</pages><issn>1389-4986</issn><eissn>1573-6695</eissn><abstract>Social media technologies have become increasingly useful tools for research-based interventions. However, participants and social media users have expressed ethical concerns with these studies, such as risks and benefits of participation, as well as privacy, confidentiality, and informed consent issues. This study was designed to follow up with and assess experiences and perceptions of ethics-related issues among a sample of 211 men who have sex with men who participated in the Harnessing Online Peer Education (HOPE) Peru study, a randomized controlled HIV prevention intervention conducted in Peru. We found that after adjusting for age, highest educational attainment, race, sexual orientation, and prior HIV research experience, participants in the intervention group were more likely than those in the control group to have safe sex (
p
= 0.0051) and get tested for HIV regularly (
p
= 0.0051). As a result of their participation, those in the intervention group benefited more positively than participants in the control group in improving HIV care (
p
= 0.0077) and learning where to receive sexual health services (
p
= 0.0021). Participants in the intervention group expressed higher levels of comfort than those in the control group in joining and seeing other people in the Facebook group (
p
= 0.039), seeing other people’s posts (
p
= 0.038) and having other group members talk to them online (
p
= 0.040). We discuss the implications of these results as they relate to social media-based HIV research.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>27933425</pmid><doi>10.1007/s11121-016-0739-z</doi><tpages>8</tpages><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1389-4986 |
| ispartof | Prevention science, 2017-02, Vol.18 (2), p.225-232 |
| issn | 1389-4986 1573-6695 |
| language | eng |
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| source | Springer Online Journals Complete; PAIS Index |
| subjects | Acquired immune deficiency syndrome AIDS Child and School Psychology Confidentiality Educational attainment Ethics Health Psychology Health services HIV Human immunodeficiency virus Informed consent Internet Intervention Males Mass media Medicine Medicine & Public Health Participation Prevention Public Health Race Social networks |
| title | Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study |
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