Keeping all options open: Parents’ approaches to advance care planning

Background Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life‐limiting condition (LLC). However, most families have little knowledge or experience of ACP. Objective To investigate how parents of c...

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Veröffentlicht in:	Health expectations : an international journal of public participation in health care and health policy 2017-08, Vol.20 (4), p.675-684
Hauptverfasser:	Beecham, Emma, Oostendorp, Linda, Crocker, Joanna, Kelly, Paula, Dinsdale, Andrew, Hemsley, June, Russell, Jessica, Jones, Louise, Bluebond‐Langner, Myra
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Advance Care Planning Advance directives Care plans Child Child, Preschool Children Children & youth children and young people Clinical decision making Decision Making Families & family life Female Grounded Theory Humans Infant Infant, Newborn Interviews Interviews as Topic life‐limiting conditions life‐threatening illnesses Limited liability companies Male Original Research Paper Original Research Papers Palliative Care Palliative treatment Parent participation Parents Parents & parenting Parents - psychology Participation Patient care planning Planning Qualitative research Researchers Terminally Ill - psychology Terminally Ill - statistics & numerical data Young adults
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