Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process
Aim To understand the expectations held by type 1 and 2 diabetes mellitus (DM 1 & 2) patients and their relatives regarding the health‐care provided to them. Design Qualitative. Focus groups. Setting and participants Andalusia. A theoretical sample that includes the most characteristic profil...
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| Veröffentlicht in: | Health expectations : an international journal of public participation in health care and health policy 2007-12, Vol.10 (4), p.337-349 |
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| creator | Escudero-Carretero, María J. Prieto-Rodríguez, MaÁngeles Fernández-Fernández, Isabel March-Cerdá, Joan Carles |
| description | Aim To understand the expectations held by type 1 and 2 diabetes mellitus (DM 1 & 2) patients and their relatives regarding the health‐care provided to them.
Design Qualitative. Focus groups.
Setting and participants Andalusia. A theoretical sample that includes the most characteristic profiles. Thirty‐one subjects with DM. Segmentation characteristics: receiving health‐care for DM in Primary or Specialized care, living in urban and rural areas, men and women, age, varying diagnosis times, DM course and consequences. Subjects were recruited by health‐care professionals at reference care centres.
Results Patients expect their health‐care professionals to be understanding, to treat them with kindness and respect, to have good communication skills, to provide information in a non‐authoritarian manner while fully acknowledging patients’ know‐how. Regarding the health‐care system, their expectations focus on the system’s ability to respond when required to do so, through a relevant professional, along with readily available equipment for treatment.
The expectations of people affected by DM1 focus on leading a normal life and not having their educational, labour, social and family opportunities limited by the disease. Expectations in people with DM2 tend towards avoiding what they know has happened to other patients.
Conclusions ‘Facilitating’, is a key word. Both the health‐care system and its professionals must pay keener attention to the emotional aspects of the disease and its process, adopting a comprehensive approach to care. It is vital that health‐care professionals take an active interest in the course of their patient’s disease, promoting accessibility and an atmosphere of trust and flexibility. |
| doi_str_mv | 10.1111/j.1369-7625.2007.00452.x |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_24P</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_5060416</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>57228943</sourcerecordid><originalsourceid>FETCH-LOGICAL-c6002-9a58cb2444ccc0378c559ff143d2b9c1069654ec7ba1e4cf420f682e445c93e93</originalsourceid><addsrcrecordid>eNqNkttu1DAQhiMEoqXwCsgSElxl8dkJQpXQatsilcIFqBU3luNMul6ySbCdsvsGPDbeg5bDBeAbWzPf_0sz_rMMETwh6bxcTAiTZa4kFROKsZpgzAWdrO5lx4fG_f1bCsKOskchLDAmihXqYXZEVFlIrPBx9n22GsBGE13fBTSHtkbVGsX1AIgg09WIotqZCiIEtIS2dXEMaEg4dDFsgTgH55GHNhXvILzaFJBbDr2PprOA-gY1xrqkTEB3u23PwbRxnlvjAQ2-txDC4-xBY9oAT_b3SfbpbPZxepFfvj9_O31zmVuJMc1LIwpbUc65tRYzVVghyqYhnNW0Ki3BspSCg1WVIcBtwyluZEGBc2FLBiU7yU53vsNYLaG2aQ5vWj14tzR-rXvj9O-dzs31bX-nBZaYE5kMXuwNfP91hBD10gWbVmM66MegleSMS6l4Ip__lZQFL9J_iH-CQlFalJwl8Nkf4KIffZf2pRmWSpKywCpRxY6yvg_BQ3OYjmC9yY9e6E009CYmepMfvc2PXiXp01-381O4D0wCXu-Ab66F9X8b64vZTXokeb6TuxBhdZAb_0VLxZTQ11fn-sPZO_b55upaT9kPGvbkzA</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3067619807</pqid></control><display><type>article</type><title>Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process</title><source>Wiley Online Library Open Access</source><creator>Escudero-Carretero, María J. ; Prieto-Rodríguez, MaÁngeles ; Fernández-Fernández, Isabel ; March-Cerdá, Joan Carles</creator><creatorcontrib>Escudero-Carretero, María J. ; Prieto-Rodríguez, MaÁngeles ; Fernández-Fernández, Isabel ; March-Cerdá, Joan Carles</creatorcontrib><description>Aim To understand the expectations held by type 1 and 2 diabetes mellitus (DM 1 & 2) patients and their relatives regarding the health‐care provided to them.
Design Qualitative. Focus groups.
Setting and participants Andalusia. A theoretical sample that includes the most characteristic profiles. Thirty‐one subjects with DM. Segmentation characteristics: receiving health‐care for DM in Primary or Specialized care, living in urban and rural areas, men and women, age, varying diagnosis times, DM course and consequences. Subjects were recruited by health‐care professionals at reference care centres.
Results Patients expect their health‐care professionals to be understanding, to treat them with kindness and respect, to have good communication skills, to provide information in a non‐authoritarian manner while fully acknowledging patients’ know‐how. Regarding the health‐care system, their expectations focus on the system’s ability to respond when required to do so, through a relevant professional, along with readily available equipment for treatment.
The expectations of people affected by DM1 focus on leading a normal life and not having their educational, labour, social and family opportunities limited by the disease. Expectations in people with DM2 tend towards avoiding what they know has happened to other patients.
Conclusions ‘Facilitating’, is a key word. Both the health‐care system and its professionals must pay keener attention to the emotional aspects of the disease and its process, adopting a comprehensive approach to care. It is vital that health‐care professionals take an active interest in the course of their patient’s disease, promoting accessibility and an atmosphere of trust and flexibility.</description><identifier>ISSN: 1369-6513</identifier><identifier>EISSN: 1369-7625</identifier><identifier>DOI: 10.1111/j.1369-7625.2007.00452.x</identifier><identifier>PMID: 17986070</identifier><identifier>CODEN: HEHPFM</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Publishing Ltd</publisher><subject>Access ; Accessibility ; Adolescent ; Adult ; Aged ; Aged, 80 and over ; Beliefs and Expectations about Health Services ; Communication skills ; Diabetes ; Diabetes mellitus ; Diabetes mellitus (insulin dependent) ; diabetes mellitus 1 & 2 ; Diabetes Mellitus, Type 1 - psychology ; Diabetes Mellitus, Type 2 - psychology ; Emotions ; Family - psychology ; Female ; Flexibility ; Focus Groups ; Health care ; Health services ; Humans ; informal care ; Kindness ; Knowledge management ; Male ; Medical diagnosis ; Medical personnel ; Medicine ; Middle Aged ; National service ; patient expectations ; Patient Satisfaction ; patient views ; patient-centred care ; Patients ; qualitative design ; Qualitative research ; Quality of Health Care ; Quality of life ; Relatives ; Rural areas ; Rural communities ; Segmentation ; Social sciences ; Systematic review ; Type 1 diabetes mellitus ; Women</subject><ispartof>Health expectations : an international journal of public participation in health care and health policy, 2007-12, Vol.10 (4), p.337-349</ispartof><rights>2007. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c6002-9a58cb2444ccc0378c559ff143d2b9c1069654ec7ba1e4cf420f682e445c93e93</citedby><cites>FETCH-LOGICAL-c6002-9a58cb2444ccc0378c559ff143d2b9c1069654ec7ba1e4cf420f682e445c93e93</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC5060416/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC5060416/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,723,776,780,881,1411,11542,27903,27904,30978,30979,45553,45554,46031,46455,53770,53772</link.rule.ids><linktorsrc>$$Uhttps://onlinelibrary.wiley.com/doi/abs/10.1111%2Fj.1369-7625.2007.00452.x$$EView_record_in_Wiley-Blackwell$$FView_record_in_$$GWiley-Blackwell</linktorsrc><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/17986070$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Escudero-Carretero, María J.</creatorcontrib><creatorcontrib>Prieto-Rodríguez, MaÁngeles</creatorcontrib><creatorcontrib>Fernández-Fernández, Isabel</creatorcontrib><creatorcontrib>March-Cerdá, Joan Carles</creatorcontrib><title>Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process</title><title>Health expectations : an international journal of public participation in health care and health policy</title><addtitle>Health Expect</addtitle><description>Aim To understand the expectations held by type 1 and 2 diabetes mellitus (DM 1 & 2) patients and their relatives regarding the health‐care provided to them.
Design Qualitative. Focus groups.
Setting and participants Andalusia. A theoretical sample that includes the most characteristic profiles. Thirty‐one subjects with DM. Segmentation characteristics: receiving health‐care for DM in Primary or Specialized care, living in urban and rural areas, men and women, age, varying diagnosis times, DM course and consequences. Subjects were recruited by health‐care professionals at reference care centres.
Results Patients expect their health‐care professionals to be understanding, to treat them with kindness and respect, to have good communication skills, to provide information in a non‐authoritarian manner while fully acknowledging patients’ know‐how. Regarding the health‐care system, their expectations focus on the system’s ability to respond when required to do so, through a relevant professional, along with readily available equipment for treatment.
The expectations of people affected by DM1 focus on leading a normal life and not having their educational, labour, social and family opportunities limited by the disease. Expectations in people with DM2 tend towards avoiding what they know has happened to other patients.
Conclusions ‘Facilitating’, is a key word. Both the health‐care system and its professionals must pay keener attention to the emotional aspects of the disease and its process, adopting a comprehensive approach to care. It is vital that health‐care professionals take an active interest in the course of their patient’s disease, promoting accessibility and an atmosphere of trust and flexibility.</description><subject>Access</subject><subject>Accessibility</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Beliefs and Expectations about Health Services</subject><subject>Communication skills</subject><subject>Diabetes</subject><subject>Diabetes mellitus</subject><subject>Diabetes mellitus (insulin dependent)</subject><subject>diabetes mellitus 1 & 2</subject><subject>Diabetes Mellitus, Type 1 - psychology</subject><subject>Diabetes Mellitus, Type 2 - psychology</subject><subject>Emotions</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Flexibility</subject><subject>Focus Groups</subject><subject>Health care</subject><subject>Health services</subject><subject>Humans</subject><subject>informal care</subject><subject>Kindness</subject><subject>Knowledge management</subject><subject>Male</subject><subject>Medical diagnosis</subject><subject>Medical personnel</subject><subject>Medicine</subject><subject>Middle Aged</subject><subject>National service</subject><subject>patient expectations</subject><subject>Patient Satisfaction</subject><subject>patient views</subject><subject>patient-centred care</subject><subject>Patients</subject><subject>qualitative design</subject><subject>Qualitative research</subject><subject>Quality of Health Care</subject><subject>Quality of life</subject><subject>Relatives</subject><subject>Rural areas</subject><subject>Rural communities</subject><subject>Segmentation</subject><subject>Social sciences</subject><subject>Systematic review</subject><subject>Type 1 diabetes mellitus</subject><subject>Women</subject><issn>1369-6513</issn><issn>1369-7625</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2007</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNkttu1DAQhiMEoqXwCsgSElxl8dkJQpXQatsilcIFqBU3luNMul6ySbCdsvsGPDbeg5bDBeAbWzPf_0sz_rMMETwh6bxcTAiTZa4kFROKsZpgzAWdrO5lx4fG_f1bCsKOskchLDAmihXqYXZEVFlIrPBx9n22GsBGE13fBTSHtkbVGsX1AIgg09WIotqZCiIEtIS2dXEMaEg4dDFsgTgH55GHNhXvILzaFJBbDr2PprOA-gY1xrqkTEB3u23PwbRxnlvjAQ2-txDC4-xBY9oAT_b3SfbpbPZxepFfvj9_O31zmVuJMc1LIwpbUc65tRYzVVghyqYhnNW0Ki3BspSCg1WVIcBtwyluZEGBc2FLBiU7yU53vsNYLaG2aQ5vWj14tzR-rXvj9O-dzs31bX-nBZaYE5kMXuwNfP91hBD10gWbVmM66MegleSMS6l4Ip__lZQFL9J_iH-CQlFalJwl8Nkf4KIffZf2pRmWSpKywCpRxY6yvg_BQ3OYjmC9yY9e6E009CYmepMfvc2PXiXp01-381O4D0wCXu-Ab66F9X8b64vZTXokeb6TuxBhdZAb_0VLxZTQ11fn-sPZO_b55upaT9kPGvbkzA</recordid><startdate>200712</startdate><enddate>200712</enddate><creator>Escudero-Carretero, María J.</creator><creator>Prieto-Rodríguez, MaÁngeles</creator><creator>Fernández-Fernández, Isabel</creator><creator>March-Cerdá, Joan Carles</creator><general>Blackwell Publishing Ltd</general><general>John Wiley & Sons, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7T2</scope><scope>ASE</scope><scope>C1K</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>200712</creationdate><title>Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process</title><author>Escudero-Carretero, María J. ; Prieto-Rodríguez, MaÁngeles ; Fernández-Fernández, Isabel ; March-Cerdá, Joan Carles</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c6002-9a58cb2444ccc0378c559ff143d2b9c1069654ec7ba1e4cf420f682e445c93e93</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2007</creationdate><topic>Access</topic><topic>Accessibility</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Beliefs and Expectations about Health Services</topic><topic>Communication skills</topic><topic>Diabetes</topic><topic>Diabetes mellitus</topic><topic>Diabetes mellitus (insulin dependent)</topic><topic>diabetes mellitus 1 & 2</topic><topic>Diabetes Mellitus, Type 1 - psychology</topic><topic>Diabetes Mellitus, Type 2 - psychology</topic><topic>Emotions</topic><topic>Family - psychology</topic><topic>Female</topic><topic>Flexibility</topic><topic>Focus Groups</topic><topic>Health care</topic><topic>Health services</topic><topic>Humans</topic><topic>informal care</topic><topic>Kindness</topic><topic>Knowledge management</topic><topic>Male</topic><topic>Medical diagnosis</topic><topic>Medical personnel</topic><topic>Medicine</topic><topic>Middle Aged</topic><topic>National service</topic><topic>patient expectations</topic><topic>Patient Satisfaction</topic><topic>patient views</topic><topic>patient-centred care</topic><topic>Patients</topic><topic>qualitative design</topic><topic>Qualitative research</topic><topic>Quality of Health Care</topic><topic>Quality of life</topic><topic>Relatives</topic><topic>Rural areas</topic><topic>Rural communities</topic><topic>Segmentation</topic><topic>Social sciences</topic><topic>Systematic review</topic><topic>Type 1 diabetes mellitus</topic><topic>Women</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Escudero-Carretero, María J.</creatorcontrib><creatorcontrib>Prieto-Rodríguez, MaÁngeles</creatorcontrib><creatorcontrib>Fernández-Fernández, Isabel</creatorcontrib><creatorcontrib>March-Cerdá, Joan Carles</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Health and Safety Science Abstracts (Full archive)</collection><collection>British Nursing Index</collection><collection>Environmental Sciences and Pollution Management</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Health expectations : an international journal of public participation in health care and health policy</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext_linktorsrc</fulltext></delivery><addata><au>Escudero-Carretero, María J.</au><au>Prieto-Rodríguez, MaÁngeles</au><au>Fernández-Fernández, Isabel</au><au>March-Cerdá, Joan Carles</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process</atitle><jtitle>Health expectations : an international journal of public participation in health care and health policy</jtitle><addtitle>Health Expect</addtitle><date>2007-12</date><risdate>2007</risdate><volume>10</volume><issue>4</issue><spage>337</spage><epage>349</epage><pages>337-349</pages><issn>1369-6513</issn><eissn>1369-7625</eissn><coden>HEHPFM</coden><abstract>Aim To understand the expectations held by type 1 and 2 diabetes mellitus (DM 1 & 2) patients and their relatives regarding the health‐care provided to them.
Design Qualitative. Focus groups.
Setting and participants Andalusia. A theoretical sample that includes the most characteristic profiles. Thirty‐one subjects with DM. Segmentation characteristics: receiving health‐care for DM in Primary or Specialized care, living in urban and rural areas, men and women, age, varying diagnosis times, DM course and consequences. Subjects were recruited by health‐care professionals at reference care centres.
Results Patients expect their health‐care professionals to be understanding, to treat them with kindness and respect, to have good communication skills, to provide information in a non‐authoritarian manner while fully acknowledging patients’ know‐how. Regarding the health‐care system, their expectations focus on the system’s ability to respond when required to do so, through a relevant professional, along with readily available equipment for treatment.
The expectations of people affected by DM1 focus on leading a normal life and not having their educational, labour, social and family opportunities limited by the disease. Expectations in people with DM2 tend towards avoiding what they know has happened to other patients.
Conclusions ‘Facilitating’, is a key word. Both the health‐care system and its professionals must pay keener attention to the emotional aspects of the disease and its process, adopting a comprehensive approach to care. It is vital that health‐care professionals take an active interest in the course of their patient’s disease, promoting accessibility and an atmosphere of trust and flexibility.</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>17986070</pmid><doi>10.1111/j.1369-7625.2007.00452.x</doi><tpages>13</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Access Accessibility Adolescent Adult Aged Aged, 80 and over Beliefs and Expectations about Health Services Communication skills Diabetes Diabetes mellitus Diabetes mellitus (insulin dependent) diabetes mellitus 1 & 2 Diabetes Mellitus, Type 1 - psychology Diabetes Mellitus, Type 2 - psychology Emotions Family - psychology Female Flexibility Focus Groups Health care Health services Humans informal care Kindness Knowledge management Male Medical diagnosis Medical personnel Medicine Middle Aged National service patient expectations Patient Satisfaction patient views patient-centred care Patients qualitative design Qualitative research Quality of Health Care Quality of life Relatives Rural areas Rural communities Segmentation Social sciences Systematic review Type 1 diabetes mellitus Women |
| title | Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process |
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