Involving consumers successfully in NHS research: a national survey

Objectives  To investigate how far and in what way consumers are involved in NHS research. Background  There is guidance from the UK Department of Health on involving consumers in research, but it is not known how these policies have been implemented. Design  A national postal survey was conducted o...

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Veröffentlicht in:Health expectations : an international journal of public participation in health care and health policy 2007-12, Vol.10 (4), p.380-391
Hauptverfasser: Barber, Rosemary, Boote, Jonathan D., Cooper, Cindy L.
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container_title Health expectations : an international journal of public participation in health care and health policy
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creator Barber, Rosemary
Boote, Jonathan D.
Cooper, Cindy L.
description Objectives  To investigate how far and in what way consumers are involved in NHS research. Background  There is guidance from the UK Department of Health on involving consumers in research, but it is not known how these policies have been implemented. Design  A national postal survey was conducted of 884 researchers selected randomly from the National Research Register, 16 researchers registered on the INVOLVE database and 15 consumers nominated by researchers who collaborated in the same research projects. Setting  The survey participants were drawn from diverse settings including NHS organizations and universities. Participants  Researchers and consumers collaborating in the same projects. Main outcome measures  Details of how consumers were involved and the number of projects that met previously developed consensus‐derived indicators of successful consumer involvement in NHS research. Results  Of the 900 researchers who were sent a postal questionnaire, 518 responded, giving a response rate of 58%. Nine of the 15 consumers responded. Eighty‐eight (17%) researchers reported involving consumers, mainly as members of a project steering group, designing research instruments and/or planning or designing the research methods. Most projects met between one and four indicators. Conclusions  This national survey revealed that only a small proportion of NHS researchers were actively involving consumers. This study provides a useful marker of how far the Department of Health’s policy on consumer involvement in NHS research has been implemented and in what way.
doi_str_mv 10.1111/j.1369-7625.2007.00457.x
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Background  There is guidance from the UK Department of Health on involving consumers in research, but it is not known how these policies have been implemented. Design  A national postal survey was conducted of 884 researchers selected randomly from the National Research Register, 16 researchers registered on the INVOLVE database and 15 consumers nominated by researchers who collaborated in the same research projects. Setting  The survey participants were drawn from diverse settings including NHS organizations and universities. Participants  Researchers and consumers collaborating in the same projects. Main outcome measures  Details of how consumers were involved and the number of projects that met previously developed consensus‐derived indicators of successful consumer involvement in NHS research. Results  Of the 900 researchers who were sent a postal questionnaire, 518 responded, giving a response rate of 58%. Nine of the 15 consumers responded. Eighty‐eight (17%) researchers reported involving consumers, mainly as members of a project steering group, designing research instruments and/or planning or designing the research methods. Most projects met between one and four indicators. Conclusions  This national survey revealed that only a small proportion of NHS researchers were actively involving consumers. This study provides a useful marker of how far the Department of Health’s policy on consumer involvement in NHS research has been implemented and in what way.</description><identifier>ISSN: 1369-6513</identifier><identifier>EISSN: 1369-7625</identifier><identifier>DOI: 10.1111/j.1369-7625.2007.00457.x</identifier><identifier>PMID: 17986074</identifier><identifier>CODEN: HEHPFM</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Publishing Ltd</publisher><subject>Cancer research ; Citizen participation ; Community Participation - statistics &amp; numerical data ; consumer ; Consumer behavior ; consumer involvement ; Consumer Involvement in Research ; Consumers ; Councils ; Data analysis ; Great Britain National health service ; Guidance ; Health services ; Health technology assessment ; Humans ; Indicators ; Medical research ; Mental health ; National Health Programs ; National health services ; National surveys ; NHS research ; Polls &amp; surveys ; Primary care ; R&amp;D ; Research &amp; development ; Research methodology ; Research methods ; Research projects ; Response rate ; survey ; Surveys ; Surveys and Questionnaires ; United Kingdom</subject><ispartof>Health expectations : an international journal of public participation in health care and health policy, 2007-12, Vol.10 (4), p.380-391</ispartof><rights>2007. 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Background  There is guidance from the UK Department of Health on involving consumers in research, but it is not known how these policies have been implemented. Design  A national postal survey was conducted of 884 researchers selected randomly from the National Research Register, 16 researchers registered on the INVOLVE database and 15 consumers nominated by researchers who collaborated in the same research projects. Setting  The survey participants were drawn from diverse settings including NHS organizations and universities. Participants  Researchers and consumers collaborating in the same projects. Main outcome measures  Details of how consumers were involved and the number of projects that met previously developed consensus‐derived indicators of successful consumer involvement in NHS research. Results  Of the 900 researchers who were sent a postal questionnaire, 518 responded, giving a response rate of 58%. Nine of the 15 consumers responded. Eighty‐eight (17%) researchers reported involving consumers, mainly as members of a project steering group, designing research instruments and/or planning or designing the research methods. Most projects met between one and four indicators. Conclusions  This national survey revealed that only a small proportion of NHS researchers were actively involving consumers. 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Background  There is guidance from the UK Department of Health on involving consumers in research, but it is not known how these policies have been implemented. Design  A national postal survey was conducted of 884 researchers selected randomly from the National Research Register, 16 researchers registered on the INVOLVE database and 15 consumers nominated by researchers who collaborated in the same research projects. Setting  The survey participants were drawn from diverse settings including NHS organizations and universities. Participants  Researchers and consumers collaborating in the same projects. Main outcome measures  Details of how consumers were involved and the number of projects that met previously developed consensus‐derived indicators of successful consumer involvement in NHS research. Results  Of the 900 researchers who were sent a postal questionnaire, 518 responded, giving a response rate of 58%. Nine of the 15 consumers responded. Eighty‐eight (17%) researchers reported involving consumers, mainly as members of a project steering group, designing research instruments and/or planning or designing the research methods. Most projects met between one and four indicators. Conclusions  This national survey revealed that only a small proportion of NHS researchers were actively involving consumers. This study provides a useful marker of how far the Department of Health’s policy on consumer involvement in NHS research has been implemented and in what way.</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>17986074</pmid><doi>10.1111/j.1369-7625.2007.00457.x</doi><tpages>12</tpages><oa>free_for_read</oa></addata></record>
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source Wiley Online Library (Open Access Collection)
subjects Cancer research
Citizen participation
Community Participation - statistics & numerical data
consumer
Consumer behavior
consumer involvement
Consumer Involvement in Research
Consumers
Councils
Data analysis
Great Britain National health service
Guidance
Health services
Health technology assessment
Humans
Indicators
Medical research
Mental health
National Health Programs
National health services
National surveys
NHS research
Polls & surveys
Primary care
R&D
Research & development
Research methodology
Research methods
Research projects
Response rate
survey
Surveys
Surveys and Questionnaires
United Kingdom
title Involving consumers successfully in NHS research: a national survey
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