Evaluating outpatient transition clinics: a mixed-methods study protocol
IntroductionTo support young people in their transition to adulthood and transfer to adult care, a number of interventions have been developed. One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best pra...
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| Veröffentlicht in: | BMJ open 2016-08, Vol.6 (8), p.e011926-e011926 |
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| creator | Sattoe, Jane N T Peeters, Mariëlle A C Hilberink, Sander R Ista, Erwin van Staa, AnneLoes |
| description | IntroductionTo support young people in their transition to adulthood and transfer to adult care, a number of interventions have been developed. One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in transition care for young people with chronic conditions, but little is known about TC models and effects. The proposed study aims to gain insight into the added value of a TC compared with usual care (without a TC).Methods and analysisWe propose a mixed-methods study with a retrospective controlled design consisting of semistructured interviews among healthcare professionals, observations of consultations with young people, chart reviews of young people transferred 2–4 years prior to data collection and questionnaires among the young people included in the chart reviews. Qualitative data will be analysed through thematic analysis and results will provide insights into structures and daily routines of TCs, and experienced barriers and facilitators in transitional care. Quantitatively, within-group differences on clinical outcomes and healthcare use will be studied over the four measurement moments. Subsequently, comparisons will be made between intervention and control groups on all outcomes at all measurement moments. Primary outcomes are ‘no-show after transfer’ (process outcome) and ‘experiences and satisfaction with the transfer’ (patient-reported outcome). Secondary outcomes consider clinical outcomes, healthcare usage, self-management outcomes and perceived quality of care.EthicsThe Medical Ethical Committee of the Erasmus Medical Centre approved the study protocol (MEC-2014-246).DisseminationStudy results will be disseminated through peer-reviewed journals and conferences. The study started in September 2014 and will continue until December 2016. The same study design will be used in a national study in 20 diabetes settings (2016–2018). |
| doi_str_mv | 10.1136/bmjopen-2016-011926 |
| format | Article |
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One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in transition care for young people with chronic conditions, but little is known about TC models and effects. The proposed study aims to gain insight into the added value of a TC compared with usual care (without a TC).Methods and analysisWe propose a mixed-methods study with a retrospective controlled design consisting of semistructured interviews among healthcare professionals, observations of consultations with young people, chart reviews of young people transferred 2–4 years prior to data collection and questionnaires among the young people included in the chart reviews. Qualitative data will be analysed through thematic analysis and results will provide insights into structures and daily routines of TCs, and experienced barriers and facilitators in transitional care. Quantitatively, within-group differences on clinical outcomes and healthcare use will be studied over the four measurement moments. Subsequently, comparisons will be made between intervention and control groups on all outcomes at all measurement moments. Primary outcomes are ‘no-show after transfer’ (process outcome) and ‘experiences and satisfaction with the transfer’ (patient-reported outcome). Secondary outcomes consider clinical outcomes, healthcare usage, self-management outcomes and perceived quality of care.EthicsThe Medical Ethical Committee of the Erasmus Medical Centre approved the study protocol (MEC-2014-246).DisseminationStudy results will be disseminated through peer-reviewed journals and conferences. The study started in September 2014 and will continue until December 2016. The same study design will be used in a national study in 20 diabetes settings (2016–2018).</description><identifier>ISSN: 2044-6055</identifier><identifier>EISSN: 2044-6055</identifier><identifier>DOI: 10.1136/bmjopen-2016-011926</identifier><identifier>PMID: 27566639</identifier><language>eng</language><publisher>England: BMJ Publishing Group LTD</publisher><subject>Ambulatory Care Facilities - statistics & numerical data ; Chronic Disease - therapy ; Chronic illnesses ; Clinical outcomes ; Collaboration ; Departments ; Female ; Humans ; Intervention ; Interviews as Topic ; Lost to Follow-Up ; Male ; Netherlands ; Outpatients ; Paediatrics ; Patient Reported Outcome Measures ; Patient Satisfaction ; Qualitative Research ; Quality of Life ; Research Design ; Response rates ; Retrospective Studies ; Self Care - methods ; Studies ; Surveys and Questionnaires ; Transition to Adult Care - standards ; Young adults</subject><ispartof>BMJ open, 2016-08, Vol.6 (8), p.e011926-e011926</ispartof><rights>Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing</rights><rights>Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ 2016 This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ 2016</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b472t-506f271589b73efaaa8dbbd5f014685607116e322de7e7e6efe110a640dad5f03</citedby><cites>FETCH-LOGICAL-b472t-506f271589b73efaaa8dbbd5f014685607116e322de7e7e6efe110a640dad5f03</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttp://bmjopen.bmj.com/content/6/8/e011926.full.pdf$$EPDF$$P50$$Gbmj$$Hfree_for_read</linktopdf><linktohtml>$$Uhttp://bmjopen.bmj.com/content/6/8/e011926.full$$EHTML$$P50$$Gbmj$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,27549,27550,27924,27925,53791,53793,77601,77632</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/27566639$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sattoe, Jane N T</creatorcontrib><creatorcontrib>Peeters, Mariëlle A C</creatorcontrib><creatorcontrib>Hilberink, Sander R</creatorcontrib><creatorcontrib>Ista, Erwin</creatorcontrib><creatorcontrib>van Staa, AnneLoes</creatorcontrib><title>Evaluating outpatient transition clinics: a mixed-methods study protocol</title><title>BMJ open</title><addtitle>BMJ Open</addtitle><description>IntroductionTo support young people in their transition to adulthood and transfer to adult care, a number of interventions have been developed. One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in transition care for young people with chronic conditions, but little is known about TC models and effects. The proposed study aims to gain insight into the added value of a TC compared with usual care (without a TC).Methods and analysisWe propose a mixed-methods study with a retrospective controlled design consisting of semistructured interviews among healthcare professionals, observations of consultations with young people, chart reviews of young people transferred 2–4 years prior to data collection and questionnaires among the young people included in the chart reviews. Qualitative data will be analysed through thematic analysis and results will provide insights into structures and daily routines of TCs, and experienced barriers and facilitators in transitional care. Quantitatively, within-group differences on clinical outcomes and healthcare use will be studied over the four measurement moments. Subsequently, comparisons will be made between intervention and control groups on all outcomes at all measurement moments. Primary outcomes are ‘no-show after transfer’ (process outcome) and ‘experiences and satisfaction with the transfer’ (patient-reported outcome). Secondary outcomes consider clinical outcomes, healthcare usage, self-management outcomes and perceived quality of care.EthicsThe Medical Ethical Committee of the Erasmus Medical Centre approved the study protocol (MEC-2014-246).DisseminationStudy results will be disseminated through peer-reviewed journals and conferences. The study started in September 2014 and will continue until December 2016. 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One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in transition care for young people with chronic conditions, but little is known about TC models and effects. The proposed study aims to gain insight into the added value of a TC compared with usual care (without a TC).Methods and analysisWe propose a mixed-methods study with a retrospective controlled design consisting of semistructured interviews among healthcare professionals, observations of consultations with young people, chart reviews of young people transferred 2–4 years prior to data collection and questionnaires among the young people included in the chart reviews. Qualitative data will be analysed through thematic analysis and results will provide insights into structures and daily routines of TCs, and experienced barriers and facilitators in transitional care. Quantitatively, within-group differences on clinical outcomes and healthcare use will be studied over the four measurement moments. Subsequently, comparisons will be made between intervention and control groups on all outcomes at all measurement moments. Primary outcomes are ‘no-show after transfer’ (process outcome) and ‘experiences and satisfaction with the transfer’ (patient-reported outcome). Secondary outcomes consider clinical outcomes, healthcare usage, self-management outcomes and perceived quality of care.EthicsThe Medical Ethical Committee of the Erasmus Medical Centre approved the study protocol (MEC-2014-246).DisseminationStudy results will be disseminated through peer-reviewed journals and conferences. The study started in September 2014 and will continue until December 2016. The same study design will be used in a national study in 20 diabetes settings (2016–2018).</abstract><cop>England</cop><pub>BMJ Publishing Group LTD</pub><pmid>27566639</pmid><doi>10.1136/bmjopen-2016-011926</doi><oa>free_for_read</oa></addata></record> |
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| subjects | Ambulatory Care Facilities - statistics & numerical data Chronic Disease - therapy Chronic illnesses Clinical outcomes Collaboration Departments Female Humans Intervention Interviews as Topic Lost to Follow-Up Male Netherlands Outpatients Paediatrics Patient Reported Outcome Measures Patient Satisfaction Qualitative Research Quality of Life Research Design Response rates Retrospective Studies Self Care - methods Studies Surveys and Questionnaires Transition to Adult Care - standards Young adults |
| title | Evaluating outpatient transition clinics: a mixed-methods study protocol |
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