Clinical trial network for the promotion of clinical research for rare diseases in Japan: muscular dystrophy clinical trial network

Duchenne muscular dystrophy (DMD) is the most commonly inherited neuromuscular disease. Therapeutic agents for the treatment of rare disease, namely "orphan drugs", have recently drawn the attention of researchers and pharmaceutical companies. To ensure the successful conduction of clinica...

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Veröffentlicht in:	BMC health services research 2016-07, Vol.16 (1), p.241-241, Article 241
Hauptverfasser:	Shimizu, Reiko, Ogata, Katsuhisa, Tamaura, Akemi, Kimura, En, Ohata, Maki, Takeshita, Eri, Nakamura, Harumasa, Takeda, Shin'ichi, Komaki, Hirofumi
Format:	Artikel
Sprache:	eng
Schlagworte:	Biomedical Research - organization & administration Care and treatment Clinical trials Clinical Trials as Topic - organization & administration Collaboration Communication Consent Cooperative Behavior Disease Drugs Forecasts and trends Health promotion Hospitals Humans Japan Male Management Medical equipment Medical research Medical technology Methods Muscular Dystrophies - drug therapy Muscular dystrophy Neuromuscular diseases Orphan Drug Production Patient Selection Patients Pediatrics Pharmaceutical industry Physical therapists Public health administration Questionnaires Rare diseases Rare Diseases - drug therapy Registries Researchers Studies Technical Advance Ventilators Working groups
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