Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohn's and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners)

The Crohn's and Colitis Foundation of America Partners Patient-Powered Research Network (PPRN) seeks to advance and accelerate comparative effectiveness and translational research in inflammatory bowel diseases (IBDs). Our IBD-focused PCORnet PPRN has been designed to overcome the major obstacl...

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Veröffentlicht in:	Journal of the American Medical Informatics Association : JAMIA 2016-05, Vol.23 (3), p.485-490
Hauptverfasser:	Chung, Arlene E, Sandler, Robert S, Long, Millie D, Ahrens, Sean, Burris, Jessica L, Martin, Christopher F, Anton, Kristen, Robb, Amber, Caruso, Thomas P, Jaeger, Elizabeth L, Chen, Wenli, Clark, Marshall, Myers, Kelly, Dobes, Angela, Kappelman, Michael D
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Aged Colitis, Ulcerative Crohn Disease Data Collection - methods Female Health Surveys Humans Information Dissemination Internet Male Middle Aged Monitoring, Physiologic - methods Patient Outcome Assessment Patient Participation Self Report Special Focus on Person-Generated Health and Wellness Data Telemedicine - instrumentation United States Wearable Electronic Devices Young Adult
Online-Zugang:	Volltext
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