Linking databases on perinatal health: a review of the literature and current practices in Europe
International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess t...
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| Veröffentlicht in: | European journal of public health 2016-06, Vol.26 (3), p.422-430 |
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| creator | Delnord, M Szamotulska, K Hindori-Mohangoo, A D Blondel, B Macfarlane, A J Dattani, N Barona, C Berrut, S Zile, I Wood, R Sakkeus, L Gissler, M Zeitlin, J |
| description | International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting.
We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance.
516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring.
Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance. |
| doi_str_mv | 10.1093/eurpub/ckv231 |
| format | Article |
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We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance.
516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring.
Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.</description><identifier>ISSN: 1101-1262</identifier><identifier>EISSN: 1464-360X</identifier><identifier>DOI: 10.1093/eurpub/ckv231</identifier><identifier>PMID: 26891058</identifier><language>eng</language><publisher>England: Oxford Publishing Limited (England)</publisher><subject>Cancer ; Censuses ; Congenital anomalies ; Congenital defects ; Criteria ; Data quality ; Databases, Factual - statistics & numerical data ; Europe ; Female ; Health ; Health insurance ; Health research ; Heterogeneity ; Humans ; Indexes ; Infant Health - statistics & numerical data ; Infant, Newborn ; Literature reviews ; Maternal Health - statistics & numerical data ; Medical personnel ; Medical research ; Methodologocial Studies ; Neonates ; Perinatal care ; Perinatal Care - statistics & numerical data ; Pregnancy ; Public health ; Statistics ; Surveillance ; Systematic review ; Vital statistics</subject><ispartof>European journal of public health, 2016-06, Vol.26 (3), p.422-430</ispartof><rights>The Author 2016. Published by Oxford University Press on behalf of the European Public Health Association.</rights><rights>Copyright Oxford Publishing Limited(England) Jun 1, 2016</rights><rights>The Author 2016. Published by Oxford University Press on behalf of the European Public Health Association. 2015</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c448t-468385e14b14e3e40d5d294e3b44ce94b66d6578192ef276dd8423315cf3d83d3</citedby><cites>FETCH-LOGICAL-c448t-468385e14b14e3e40d5d294e3b44ce94b66d6578192ef276dd8423315cf3d83d3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884328/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884328/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,27866,27924,27925,53791,53793</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26891058$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Delnord, M</creatorcontrib><creatorcontrib>Szamotulska, K</creatorcontrib><creatorcontrib>Hindori-Mohangoo, A D</creatorcontrib><creatorcontrib>Blondel, B</creatorcontrib><creatorcontrib>Macfarlane, A J</creatorcontrib><creatorcontrib>Dattani, N</creatorcontrib><creatorcontrib>Barona, C</creatorcontrib><creatorcontrib>Berrut, S</creatorcontrib><creatorcontrib>Zile, I</creatorcontrib><creatorcontrib>Wood, R</creatorcontrib><creatorcontrib>Sakkeus, L</creatorcontrib><creatorcontrib>Gissler, M</creatorcontrib><creatorcontrib>Zeitlin, J</creatorcontrib><creatorcontrib>Euro-Peristat Scientific Committee</creatorcontrib><creatorcontrib>and the Euro-Peristat Scientific Committee</creatorcontrib><title>Linking databases on perinatal health: a review of the literature and current practices in Europe</title><title>European journal of public health</title><addtitle>Eur J Public Health</addtitle><description>International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting.
We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance.
516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring.
Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.</description><subject>Cancer</subject><subject>Censuses</subject><subject>Congenital anomalies</subject><subject>Congenital defects</subject><subject>Criteria</subject><subject>Data quality</subject><subject>Databases, Factual - statistics & numerical data</subject><subject>Europe</subject><subject>Female</subject><subject>Health</subject><subject>Health insurance</subject><subject>Health research</subject><subject>Heterogeneity</subject><subject>Humans</subject><subject>Indexes</subject><subject>Infant Health - statistics & numerical data</subject><subject>Infant, Newborn</subject><subject>Literature reviews</subject><subject>Maternal Health - statistics & numerical data</subject><subject>Medical personnel</subject><subject>Medical research</subject><subject>Methodologocial Studies</subject><subject>Neonates</subject><subject>Perinatal care</subject><subject>Perinatal Care - statistics & numerical data</subject><subject>Pregnancy</subject><subject>Public health</subject><subject>Statistics</subject><subject>Surveillance</subject><subject>Systematic review</subject><subject>Vital statistics</subject><issn>1101-1262</issn><issn>1464-360X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2016</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7TQ</sourceid><recordid>eNqFkc2LFDEQxYMo7rp69CoBL17aTSXpTNqDIMv6AQNeFLyFdFK9k92epE3SI_73Zpl1US-eqqj68XhVj5DnwF4DG8Q5rnlZx3N3c-ACHpBTkEp2QrFvD1sPDDrgip-QJ6VcM8b6jeaPyQlXegDW61NityHehHhFva12tAULTZEumENsg5nu0M5194ZamvEQ8AdNE607pHOomG1dM1IbPXVrzhgrXbJ1NbimEiK9XHNa8Cl5NNm54LO7eka-vr_8cvGx237-8Oni3bZzUuraSaWF7hHkCBIFSuZ7z4fWjlI6HOSolFfNPgwcJ75R3mvJhYDeTcJr4cUZeXvUbe_Yo3fNTrazWXLY2_zTJBvM35sYduYqHYzUWgqum8CrO4Gcvq9YqtmH4nCebcS0FgOaaQXANfwf3Qy8F1qwvqEv_0Gv05pj-8QtpfgAmstGdUfK5VRKxuneNzBzm7M55myOOTf-xZ_H3tO_gxW_ACfkpjE</recordid><startdate>20160601</startdate><enddate>20160601</enddate><creator>Delnord, M</creator><creator>Szamotulska, K</creator><creator>Hindori-Mohangoo, A D</creator><creator>Blondel, B</creator><creator>Macfarlane, A J</creator><creator>Dattani, N</creator><creator>Barona, C</creator><creator>Berrut, S</creator><creator>Zile, I</creator><creator>Wood, R</creator><creator>Sakkeus, L</creator><creator>Gissler, M</creator><creator>Zeitlin, J</creator><general>Oxford Publishing Limited (England)</general><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T2</scope><scope>7TQ</scope><scope>C1K</scope><scope>DHY</scope><scope>DON</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>7U2</scope><scope>5PM</scope></search><sort><creationdate>20160601</creationdate><title>Linking databases on perinatal health: a review of the literature and current practices in Europe</title><author>Delnord, M ; Szamotulska, K ; Hindori-Mohangoo, A D ; Blondel, B ; Macfarlane, A J ; Dattani, N ; Barona, C ; Berrut, S ; Zile, I ; Wood, R ; Sakkeus, L ; Gissler, M ; Zeitlin, J</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c448t-468385e14b14e3e40d5d294e3b44ce94b66d6578192ef276dd8423315cf3d83d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2016</creationdate><topic>Cancer</topic><topic>Censuses</topic><topic>Congenital anomalies</topic><topic>Congenital defects</topic><topic>Criteria</topic><topic>Data quality</topic><topic>Databases, Factual - statistics & numerical data</topic><topic>Europe</topic><topic>Female</topic><topic>Health</topic><topic>Health insurance</topic><topic>Health research</topic><topic>Heterogeneity</topic><topic>Humans</topic><topic>Indexes</topic><topic>Infant Health - statistics & numerical data</topic><topic>Infant, Newborn</topic><topic>Literature reviews</topic><topic>Maternal Health - statistics & numerical data</topic><topic>Medical personnel</topic><topic>Medical research</topic><topic>Methodologocial Studies</topic><topic>Neonates</topic><topic>Perinatal care</topic><topic>Perinatal Care - statistics & numerical data</topic><topic>Pregnancy</topic><topic>Public health</topic><topic>Statistics</topic><topic>Surveillance</topic><topic>Systematic review</topic><topic>Vital statistics</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Delnord, M</creatorcontrib><creatorcontrib>Szamotulska, K</creatorcontrib><creatorcontrib>Hindori-Mohangoo, A D</creatorcontrib><creatorcontrib>Blondel, B</creatorcontrib><creatorcontrib>Macfarlane, A J</creatorcontrib><creatorcontrib>Dattani, N</creatorcontrib><creatorcontrib>Barona, C</creatorcontrib><creatorcontrib>Berrut, S</creatorcontrib><creatorcontrib>Zile, I</creatorcontrib><creatorcontrib>Wood, R</creatorcontrib><creatorcontrib>Sakkeus, L</creatorcontrib><creatorcontrib>Gissler, M</creatorcontrib><creatorcontrib>Zeitlin, J</creatorcontrib><creatorcontrib>Euro-Peristat Scientific Committee</creatorcontrib><creatorcontrib>and the Euro-Peristat Scientific Committee</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Health and Safety Science Abstracts (Full archive)</collection><collection>PAIS Index</collection><collection>Environmental Sciences and Pollution Management</collection><collection>PAIS International</collection><collection>PAIS International (Ovid)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>Safety Science and Risk</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>European journal of public health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Delnord, M</au><au>Szamotulska, K</au><au>Hindori-Mohangoo, A D</au><au>Blondel, B</au><au>Macfarlane, A J</au><au>Dattani, N</au><au>Barona, C</au><au>Berrut, S</au><au>Zile, I</au><au>Wood, R</au><au>Sakkeus, L</au><au>Gissler, M</au><au>Zeitlin, J</au><aucorp>Euro-Peristat Scientific Committee</aucorp><aucorp>and the Euro-Peristat Scientific Committee</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Linking databases on perinatal health: a review of the literature and current practices in Europe</atitle><jtitle>European journal of public health</jtitle><addtitle>Eur J Public Health</addtitle><date>2016-06-01</date><risdate>2016</risdate><volume>26</volume><issue>3</issue><spage>422</spage><epage>430</epage><pages>422-430</pages><issn>1101-1262</issn><eissn>1464-360X</eissn><abstract>International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting.
We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance.
516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring.
Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.</abstract><cop>England</cop><pub>Oxford Publishing Limited (England)</pub><pmid>26891058</pmid><doi>10.1093/eurpub/ckv231</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| source | MEDLINE; PAIS Index; Oxford Journals Open Access Collection; EZB-FREE-00999 freely available EZB journals; PubMed Central; Alma/SFX Local Collection |
| subjects | Cancer Censuses Congenital anomalies Congenital defects Criteria Data quality Databases, Factual - statistics & numerical data Europe Female Health Health insurance Health research Heterogeneity Humans Indexes Infant Health - statistics & numerical data Infant, Newborn Literature reviews Maternal Health - statistics & numerical data Medical personnel Medical research Methodologocial Studies Neonates Perinatal care Perinatal Care - statistics & numerical data Pregnancy Public health Statistics Surveillance Systematic review Vital statistics |
| title | Linking databases on perinatal health: a review of the literature and current practices in Europe |
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