African Americans’ and Hispanics’ Information Needs About Cancer Care
Few studies have reported on African American and Hispanic (AA and H) populations’ informational needs when seeking cancer care at an institution that offers clinical trials. Moffitt Cancer Center (MCC) sought to identify and examine the decision making process, the perceptions, and the preferred ch...
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description | Few studies have reported on African American and Hispanic (AA and H) populations’ informational needs when seeking cancer care at an institution that offers clinical trials. Moffitt Cancer Center (MCC) sought to identify and examine the decision making process, the perceptions, and the preferred channels of communication about cancer care services for AA and H communities in order to develop a list of marketing recommendations. Five focus groups (
N
= 45) consisting of two AA and three H were conducted in four counties of the MCC catchment area in Tampa, FL. Participants were asked about their perceptions, knowledge, attitudes, and beliefs about cancer care and MCC. Focus groups were audio-recorded and verbatim transcripts were analyzed using content analysis. Similarities in responses were found between AA and H participants. Participants received general health and cancer information from media sources and word of mouth and preferred to hear patient testimonials. There were concerns about costs, insurance coverage, and the actual geographic location of the cancer center. In general, H participants were not opposed to participating in cancer clinical trials/research, whereas, AA participants were more hesitant. A majority of participants highly favored an institution that offered standard care and clinical trials. AA and H participants shared similar concerns and preferences in communication channels, but each group had specific informational needs. The perceptions and preferences of AA and H must be explored in order to successfully and efficiently increase cancer clinical trial participation. |
doi_str_mv | 10.1007/s13187-014-0721-z |
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N
= 45) consisting of two AA and three H were conducted in four counties of the MCC catchment area in Tampa, FL. Participants were asked about their perceptions, knowledge, attitudes, and beliefs about cancer care and MCC. Focus groups were audio-recorded and verbatim transcripts were analyzed using content analysis. Similarities in responses were found between AA and H participants. Participants received general health and cancer information from media sources and word of mouth and preferred to hear patient testimonials. There were concerns about costs, insurance coverage, and the actual geographic location of the cancer center. In general, H participants were not opposed to participating in cancer clinical trials/research, whereas, AA participants were more hesitant. A majority of participants highly favored an institution that offered standard care and clinical trials. AA and H participants shared similar concerns and preferences in communication channels, but each group had specific informational needs. The perceptions and preferences of AA and H must be explored in order to successfully and efficiently increase cancer clinical trial participation.</description><identifier>ISSN: 0885-8195</identifier><identifier>EISSN: 1543-0154</identifier><identifier>DOI: 10.1007/s13187-014-0721-z</identifier><identifier>PMID: 25189798</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Access to Health Care ; Access to Information ; Adult ; African Americans ; African Americans - statistics & numerical data ; Attrition (Research Studies) ; Audiences ; Audiovisual Aids ; Barriers ; Biomedical and Life Sciences ; Biomedicine ; Cancer ; Cancer Research ; Communication ; Communication Strategies ; Community Relations ; Content analysis ; Decision Making ; Ethnic Groups ; Female ; Focus Groups ; Follow-Up Studies ; Geographic Location ; Health care ; Health Insurance ; Health Knowledge, Attitudes, Practice ; Health Promotion ; Health Services ; Health Services Needs and Demand ; Hispanic Americans ; Hispanic Americans - statistics & numerical data ; Humans ; Information Needs ; Male ; Marketing ; Middle Aged ; Minority Groups ; Neoplasms - ethnology ; Neoplasms - prevention & control ; Perception ; Pharmacology/Toxicology ; Preferences</subject><ispartof>Journal of cancer education, 2015-06, Vol.30 (2), p.327-332</ispartof><rights>Springer Science+Business Media New York 2014</rights><rights>American Association for Cancer Education 2015</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c470t-6290d88a6f65bec9c10c0fdc591a543c1725dec73f5f49cfe81f1d48d386d7523</citedby><cites>FETCH-LOGICAL-c470t-6290d88a6f65bec9c10c0fdc591a543c1725dec73f5f49cfe81f1d48d386d7523</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s13187-014-0721-z$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s13187-014-0721-z$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>230,314,777,781,882,27905,27906,41469,42538,51300</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/25189798$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Muñoz-Antonia, Teresita</creatorcontrib><creatorcontrib>Ung, Danielle</creatorcontrib><creatorcontrib>Montiel-Ishino, F. Alejandro</creatorcontrib><creatorcontrib>Nelson, Alison</creatorcontrib><creatorcontrib>Canales, Jorge</creatorcontrib><creatorcontrib>Quinn, Gwendolyn P.</creatorcontrib><title>African Americans’ and Hispanics’ Information Needs About Cancer Care</title><title>Journal of cancer education</title><addtitle>J Canc Educ</addtitle><addtitle>J Cancer Educ</addtitle><description>Few studies have reported on African American and Hispanic (AA and H) populations’ informational needs when seeking cancer care at an institution that offers clinical trials. Moffitt Cancer Center (MCC) sought to identify and examine the decision making process, the perceptions, and the preferred channels of communication about cancer care services for AA and H communities in order to develop a list of marketing recommendations. Five focus groups (
N
= 45) consisting of two AA and three H were conducted in four counties of the MCC catchment area in Tampa, FL. Participants were asked about their perceptions, knowledge, attitudes, and beliefs about cancer care and MCC. Focus groups were audio-recorded and verbatim transcripts were analyzed using content analysis. Similarities in responses were found between AA and H participants. Participants received general health and cancer information from media sources and word of mouth and preferred to hear patient testimonials. There were concerns about costs, insurance coverage, and the actual geographic location of the cancer center. In general, H participants were not opposed to participating in cancer clinical trials/research, whereas, AA participants were more hesitant. A majority of participants highly favored an institution that offered standard care and clinical trials. AA and H participants shared similar concerns and preferences in communication channels, but each group had specific informational needs. The perceptions and preferences of AA and H must be explored in order to successfully and efficiently increase cancer clinical trial participation.</description><subject>Access to Health Care</subject><subject>Access to Information</subject><subject>Adult</subject><subject>African Americans</subject><subject>African Americans - statistics & numerical data</subject><subject>Attrition (Research Studies)</subject><subject>Audiences</subject><subject>Audiovisual Aids</subject><subject>Barriers</subject><subject>Biomedical and Life Sciences</subject><subject>Biomedicine</subject><subject>Cancer</subject><subject>Cancer Research</subject><subject>Communication</subject><subject>Communication Strategies</subject><subject>Community Relations</subject><subject>Content analysis</subject><subject>Decision Making</subject><subject>Ethnic Groups</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Follow-Up Studies</subject><subject>Geographic Location</subject><subject>Health care</subject><subject>Health Insurance</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Health Promotion</subject><subject>Health Services</subject><subject>Health Services Needs and Demand</subject><subject>Hispanic Americans</subject><subject>Hispanic Americans - statistics & numerical data</subject><subject>Humans</subject><subject>Information Needs</subject><subject>Male</subject><subject>Marketing</subject><subject>Middle Aged</subject><subject>Minority Groups</subject><subject>Neoplasms - ethnology</subject><subject>Neoplasms - prevention & control</subject><subject>Perception</subject><subject>Pharmacology/Toxicology</subject><subject>Preferences</subject><issn>0885-8195</issn><issn>1543-0154</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2015</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNp1kc1OGzEQx60K1KTQB-ilWolLL1s8u_bavlSKotJEQuUCZ8vxB90oa6f2LhI58Rq8Hk-C81FEkTiNNfOb_8z4j9AXwN8BY3aeoAbOSgykxKyCcvMBjYGSOmcoOUJjzDktOQg6Qp9SWuKcrjD9iEYVBS6Y4GM0n7jYauWLSWd3j_T08Fgob4pZm9bKt3qXmHsXYqf6Nvjit7UmFZNFGPpiqry2MYdoT9GxU6tkPx_iCbq5-Hk9nZWXV7_m08llqQnDfdlUAhvOVeMaurBaaMAaO6OpAJVX18AqaqxmtaOOCO0sBweGcFPzxjBa1Sfox153PSw6a7T1fVQruY5tp-K9DKqV_1d8-0fehjtJqCBM0Czw7SAQw9_Bpl52bdJ2tVLehiFJaBjLHwc1y-jZG3QZhujzeVuqoaRhNWQK9pSOIaVo3csygOXWKLk3Smaj5NYouck9X19f8dLxz5kMVHsg5ZK_tfHV6HdVnwE8U6Bq</recordid><startdate>20150601</startdate><enddate>20150601</enddate><creator>Muñoz-Antonia, Teresita</creator><creator>Ung, Danielle</creator><creator>Montiel-Ishino, F. 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Alejandro</au><au>Nelson, Alison</au><au>Canales, Jorge</au><au>Quinn, Gwendolyn P.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>African Americans’ and Hispanics’ Information Needs About Cancer Care</atitle><jtitle>Journal of cancer education</jtitle><stitle>J Canc Educ</stitle><addtitle>J Cancer Educ</addtitle><date>2015-06-01</date><risdate>2015</risdate><volume>30</volume><issue>2</issue><spage>327</spage><epage>332</epage><pages>327-332</pages><issn>0885-8195</issn><eissn>1543-0154</eissn><abstract>Few studies have reported on African American and Hispanic (AA and H) populations’ informational needs when seeking cancer care at an institution that offers clinical trials. Moffitt Cancer Center (MCC) sought to identify and examine the decision making process, the perceptions, and the preferred channels of communication about cancer care services for AA and H communities in order to develop a list of marketing recommendations. Five focus groups (
N
= 45) consisting of two AA and three H were conducted in four counties of the MCC catchment area in Tampa, FL. Participants were asked about their perceptions, knowledge, attitudes, and beliefs about cancer care and MCC. Focus groups were audio-recorded and verbatim transcripts were analyzed using content analysis. Similarities in responses were found between AA and H participants. Participants received general health and cancer information from media sources and word of mouth and preferred to hear patient testimonials. There were concerns about costs, insurance coverage, and the actual geographic location of the cancer center. In general, H participants were not opposed to participating in cancer clinical trials/research, whereas, AA participants were more hesitant. A majority of participants highly favored an institution that offered standard care and clinical trials. AA and H participants shared similar concerns and preferences in communication channels, but each group had specific informational needs. The perceptions and preferences of AA and H must be explored in order to successfully and efficiently increase cancer clinical trial participation.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>25189798</pmid><doi>10.1007/s13187-014-0721-z</doi><tpages>6</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Access to Health Care Access to Information Adult African Americans African Americans - statistics & numerical data Attrition (Research Studies) Audiences Audiovisual Aids Barriers Biomedical and Life Sciences Biomedicine Cancer Cancer Research Communication Communication Strategies Community Relations Content analysis Decision Making Ethnic Groups Female Focus Groups Follow-Up Studies Geographic Location Health care Health Insurance Health Knowledge, Attitudes, Practice Health Promotion Health Services Health Services Needs and Demand Hispanic Americans Hispanic Americans - statistics & numerical data Humans Information Needs Male Marketing Middle Aged Minority Groups Neoplasms - ethnology Neoplasms - prevention & control Perception Pharmacology/Toxicology Preferences |
title | African Americans’ and Hispanics’ Information Needs About Cancer Care |
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