What Impact Do Hospital and Unit-Based Rules Have Upon Patient and Family-Centered Care in the Pediatric Intensive Care Unit?

Patient and family-centered care (PFCC) is the foundation for pediatric healthcare. The existence of hospital rules can, however, impact the extent to which PFCC is delivered. This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive car...

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Veröffentlicht in:Journal of pediatric nursing 2015-01, Vol.30 (1), p.133-142
Hauptverfasser: Baird, Jennifer, Davies, Betty, Hinds, Pamela S., Baggott, Christina, Rehm, Roberta S.
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container_end_page 142
container_issue 1
container_start_page 133
container_title Journal of pediatric nursing
container_volume 30
creator Baird, Jennifer
Davies, Betty
Hinds, Pamela S.
Baggott, Christina
Rehm, Roberta S.
description Patient and family-centered care (PFCC) is the foundation for pediatric healthcare. The existence of hospital rules can, however, impact the extent to which PFCC is delivered. This qualitative, grounded theory study identified the existence of explicit and implicit rules in a pediatric intensive care unit, all of which negatively affected the family's ability to receive care that was attentive to their needs. The rules also placed the registered nurse in the challenging position of serving as rule enforcer and facilitator of PFCC. Further work is needed to explore how to adapt the hospital environment to better meet families' needs. •Explicit and implicit hospital rules may impact delivery of patient and family-centered care (PFCC).•Nurses have dual roles: they must both enforce rules and deliver PFCC•The PFCC conceptual model may need to better emphasize the impact of context on care delivery.
doi_str_mv 10.1016/j.pedn.2014.10.001
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source MEDLINE; Elsevier ScienceDirect Journals Complete; Applied Social Sciences Index & Abstracts (ASSIA)
subjects Adolescent
Adult
Child
Child, Preschool
Children with complex chronic conditions
Chronic Disease - therapy
Families & family life
Female
Grounded theory
Health Impact Assessment
Hospitals
Hospitals, Teaching - organization & administration
Humans
Infant
Inpatient care
Intensive Care Units, Pediatric - organization & administration
Long-Term Care - methods
Male
Middle Aged
Needs Assessment
Nursing
Outcome Assessment (Health Care)
Patient and family-centered care
Patient-Centered Care - organization & administration
Pediatric intensive care unit
Pediatrics
Professional-Family Relations
Qualitative Research
Risk Assessment
Rules
Severity of Illness Index
title What Impact Do Hospital and Unit-Based Rules Have Upon Patient and Family-Centered Care in the Pediatric Intensive Care Unit?
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