Evaluating a unique, specialist psychiatric genetic counseling clinic: uptake and impact
People with psychiatric disorders and their family members have expressed interest in receiving genetic counseling (GC). In February 2012, we opened the first (to our knowledge) specialist psychiatric GC clinic of its kind, for individuals with non‐syndromic psychiatric disorders and their families....
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| Veröffentlicht in: | Clinical genetics 2015-03, Vol.87 (3), p.218-224 |
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| container_title | Clinical genetics |
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| creator | Inglis, A. Koehn, D. McGillivray, B. Stewart, S.E. Austin, J. |
| description | People with psychiatric disorders and their family members have expressed interest in receiving genetic counseling (GC). In February 2012, we opened the first (to our knowledge) specialist psychiatric GC clinic of its kind, for individuals with non‐syndromic psychiatric disorders and their families. Prior to GC and at a standard 1‐month follow‐up session, clinical assessment tools are completed, specifically, the GC outcomes scale (GCOS, which measures empowerment, completed by all clients) and the Illness Management Self Efficacy scale (IMSES, completed by those with mental illness). Consecutive English‐speaking clients attending the clinic between 1 February 2012 and 31 January 2013 who were capable of consenting were asked for permission to use their de‐identified clinical data for research purposes. Descriptive analyses were conducted to ascertain demographic details of attendees, and paired sample t‐tests were conducted to assess changes in GCOS and IMSES scores from pre‐ to post‐GC. Of 143 clients, seven were unable to consent, and 75/136 (55.1%) consented. Most were female (85.3%), self‐referred (76%), and had personal experience of mental illness (65.3%). Mean GCOS and IMSES scores increased significantly after GC (p |
| doi_str_mv | 10.1111/cge.12415 |
| format | Article |
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Section Editor:
Aad Tibben, email: a.tibben@lumc.nl</description><identifier>ISSN: 0009-9163</identifier><identifier>EISSN: 1399-0004</identifier><identifier>DOI: 10.1111/cge.12415</identifier><identifier>PMID: 24773225</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Publishing Ltd</publisher><subject>Adult ; Aged ; Aged, 80 and over ; bipolar disorder ; depression ; empowerment ; Family - psychology ; Female ; Genetic Counseling ; Health Knowledge, Attitudes, Practice ; Humans ; Male ; Mental disorders ; Mental Disorders - diagnosis ; Mental Disorders - genetics ; mental illness ; Middle Aged ; Patient Care ; Patient Participation ; psychiatric disorders ; schizophrenia ; Self Efficacy ; Young Adult</subject><ispartof>Clinical genetics, 2015-03, Vol.87 (3), p.218-224</ispartof><rights>2014 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd</rights><rights>2014 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.</rights><rights>2015 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3965-e1cfaf5d662cf88588518c9164558ebfa1aabc91695b193f11b5cc37a8cb9a073</citedby><cites>FETCH-LOGICAL-c3965-e1cfaf5d662cf88588518c9164558ebfa1aabc91695b193f11b5cc37a8cb9a073</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fcge.12415$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fcge.12415$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>230,314,776,780,881,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24773225$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Inglis, A.</creatorcontrib><creatorcontrib>Koehn, D.</creatorcontrib><creatorcontrib>McGillivray, B.</creatorcontrib><creatorcontrib>Stewart, S.E.</creatorcontrib><creatorcontrib>Austin, J.</creatorcontrib><title>Evaluating a unique, specialist psychiatric genetic counseling clinic: uptake and impact</title><title>Clinical genetics</title><addtitle>Clin Genet</addtitle><description>People with psychiatric disorders and their family members have expressed interest in receiving genetic counseling (GC). In February 2012, we opened the first (to our knowledge) specialist psychiatric GC clinic of its kind, for individuals with non‐syndromic psychiatric disorders and their families. Prior to GC and at a standard 1‐month follow‐up session, clinical assessment tools are completed, specifically, the GC outcomes scale (GCOS, which measures empowerment, completed by all clients) and the Illness Management Self Efficacy scale (IMSES, completed by those with mental illness). Consecutive English‐speaking clients attending the clinic between 1 February 2012 and 31 January 2013 who were capable of consenting were asked for permission to use their de‐identified clinical data for research purposes. Descriptive analyses were conducted to ascertain demographic details of attendees, and paired sample t‐tests were conducted to assess changes in GCOS and IMSES scores from pre‐ to post‐GC. Of 143 clients, seven were unable to consent, and 75/136 (55.1%) consented. Most were female (85.3%), self‐referred (76%), and had personal experience of mental illness (65.3%). Mean GCOS and IMSES scores increased significantly after GC (p < 0.0001 and p = 0.011, respectively). In a naturalistic setting, GC increases empowerment and self‐efficacy in this population.
Section Editor:
Aad Tibben, email: a.tibben@lumc.nl</description><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>bipolar disorder</subject><subject>depression</subject><subject>empowerment</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Genetic Counseling</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Humans</subject><subject>Male</subject><subject>Mental disorders</subject><subject>Mental Disorders - diagnosis</subject><subject>Mental Disorders - genetics</subject><subject>mental illness</subject><subject>Middle Aged</subject><subject>Patient Care</subject><subject>Patient Participation</subject><subject>psychiatric disorders</subject><subject>schizophrenia</subject><subject>Self Efficacy</subject><subject>Young Adult</subject><issn>0009-9163</issn><issn>1399-0004</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2015</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kdFrFDEQxoMo9lp98B-QBV8quO3OZrOb-FCQ4zyFUhEVfQuzc9lr2r3smuy23n9v1msPFRpChiG_-fiGj7EXkJ1APKe0NieQFyAesRlwpdIsy4rHbBaLShWU_IAdhnAVW14J9ZQd5EVV8TwXM_ZjcYPtiIN16wST0dmfo3mThN6QxdaGIenDli4tDt5SsjbODLFSN7pg2mmG4mvpbTL2A16bBN0qsZseaXjGnjTYBvP8rh6xb-8XX-cf0vNPy4_zd-cpcVWK1AA12IhVWebUSCniBUnRcyGENHWDgFhPvRI1KN4A1IKIVyipVphV_Iid7XT7sd6YFRk3eGx17-0G_VZ3aPW_P85e6nV3owsOspQyChzfCfguLh8GvbGBTNuiM90YNJRCCFCqmtBX_6FX3ehdXG-iisl7CZF6vaPIdyF40-zNQKanvHTMS__JK7Iv_3a_J-8DisDpDri1rdk-rKTny8W9ZLqbiOmZX_sJ9Ne6rGL--vvFUkP1Gfgy-6Il_w1uGq8h</recordid><startdate>201503</startdate><enddate>201503</enddate><creator>Inglis, A.</creator><creator>Koehn, D.</creator><creator>McGillivray, B.</creator><creator>Stewart, S.E.</creator><creator>Austin, J.</creator><general>Blackwell Publishing Ltd</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7TK</scope><scope>8FD</scope><scope>FR3</scope><scope>P64</scope><scope>RC3</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>201503</creationdate><title>Evaluating a unique, specialist psychiatric genetic counseling clinic: uptake and impact</title><author>Inglis, A. ; Koehn, D. ; McGillivray, B. ; Stewart, S.E. ; Austin, J.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3965-e1cfaf5d662cf88588518c9164558ebfa1aabc91695b193f11b5cc37a8cb9a073</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2015</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>bipolar disorder</topic><topic>depression</topic><topic>empowerment</topic><topic>Family - psychology</topic><topic>Female</topic><topic>Genetic Counseling</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Humans</topic><topic>Male</topic><topic>Mental disorders</topic><topic>Mental Disorders - diagnosis</topic><topic>Mental Disorders - genetics</topic><topic>mental illness</topic><topic>Middle Aged</topic><topic>Patient Care</topic><topic>Patient Participation</topic><topic>psychiatric disorders</topic><topic>schizophrenia</topic><topic>Self Efficacy</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Inglis, A.</creatorcontrib><creatorcontrib>Koehn, D.</creatorcontrib><creatorcontrib>McGillivray, B.</creatorcontrib><creatorcontrib>Stewart, S.E.</creatorcontrib><creatorcontrib>Austin, J.</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Neurosciences Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Clinical genetics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Inglis, A.</au><au>Koehn, D.</au><au>McGillivray, B.</au><au>Stewart, S.E.</au><au>Austin, J.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Evaluating a unique, specialist psychiatric genetic counseling clinic: uptake and impact</atitle><jtitle>Clinical genetics</jtitle><addtitle>Clin Genet</addtitle><date>2015-03</date><risdate>2015</risdate><volume>87</volume><issue>3</issue><spage>218</spage><epage>224</epage><pages>218-224</pages><issn>0009-9163</issn><eissn>1399-0004</eissn><abstract>People with psychiatric disorders and their family members have expressed interest in receiving genetic counseling (GC). In February 2012, we opened the first (to our knowledge) specialist psychiatric GC clinic of its kind, for individuals with non‐syndromic psychiatric disorders and their families. Prior to GC and at a standard 1‐month follow‐up session, clinical assessment tools are completed, specifically, the GC outcomes scale (GCOS, which measures empowerment, completed by all clients) and the Illness Management Self Efficacy scale (IMSES, completed by those with mental illness). Consecutive English‐speaking clients attending the clinic between 1 February 2012 and 31 January 2013 who were capable of consenting were asked for permission to use their de‐identified clinical data for research purposes. Descriptive analyses were conducted to ascertain demographic details of attendees, and paired sample t‐tests were conducted to assess changes in GCOS and IMSES scores from pre‐ to post‐GC. Of 143 clients, seven were unable to consent, and 75/136 (55.1%) consented. Most were female (85.3%), self‐referred (76%), and had personal experience of mental illness (65.3%). Mean GCOS and IMSES scores increased significantly after GC (p < 0.0001 and p = 0.011, respectively). In a naturalistic setting, GC increases empowerment and self‐efficacy in this population.
Section Editor:
Aad Tibben, email: a.tibben@lumc.nl</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>24773225</pmid><doi>10.1111/cge.12415</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adult Aged Aged, 80 and over bipolar disorder depression empowerment Family - psychology Female Genetic Counseling Health Knowledge, Attitudes, Practice Humans Male Mental disorders Mental Disorders - diagnosis Mental Disorders - genetics mental illness Middle Aged Patient Care Patient Participation psychiatric disorders schizophrenia Self Efficacy Young Adult |
| title | Evaluating a unique, specialist psychiatric genetic counseling clinic: uptake and impact |
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