What should autism research focus upon? Community views and priorities from the United Kingdom
The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were...
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| Veröffentlicht in: | Autism : the international journal of research and practice 2014-10, Vol.18 (7), p.756-770 |
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| container_title | Autism : the international journal of research and practice |
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| creator | Pellicano, Elizabeth Dinsmore, Adam Charman, Tony |
| description | The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact. |
| doi_str_mv | 10.1177/1362361314529627 |
| format | Article |
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There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. 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Community views and priorities from the United Kingdom</title><title>Autism : the international journal of research and practice</title><addtitle>Autism</addtitle><description>The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom’s pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people’s day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Adults</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Attitude to Health</subject><subject>Autism</subject><subject>Autistic Disorder</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Community Attitudes</subject><subject>Community Surveys</subject><subject>Educational Research</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Foreign Countries</subject><subject>Funding Formulas</subject><subject>Health Services Needs and Demand</subject><subject>Humans</subject><subject>Interviews</subject><subject>Interviews as Topic - methods</subject><subject>Knowledge Level</subject><subject>Male</subject><subject>Medical Research</subject><subject>Middle Aged</subject><subject>Needs Assessment</subject><subject>Online Surveys</subject><subject>Parent Surveys</subject><subject>Participant Satisfaction</subject><subject>Patient Satisfaction</subject><subject>Professional Personnel</subject><subject>Public Opinion</subject><subject>Research Needs</subject><subject>Research Opportunities</subject><subject>Researchers</subject><subject>Residence Characteristics</subject><subject>Special Issue</subject><subject>Stakeholders</subject><subject>United Kingdom</subject><subject>Young Adult</subject><issn>1362-3613</issn><issn>1461-7005</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><recordid>eNp1kc1v1DAQxS0Eoh9w5wLykUvAYyd2cgGhVctXJS5U3LAce7JxlcSLHRf1v8erLStA4jTW_N68GfkR8gzYKwClXoOQXEgQUDe8k1w9IKdQS6gUY83D8i642vMTcpbSDSvduoHH5ITXqu1aBafk-7fRrDSNIU-Omrz6NNOICU20Ix2CzYnmXVje0k2Y57z49Y7eevyZqFkc3UUfol89JjrEMNN1RHpdNOjoZ79sXZifkEeDmRI-va_n5Pry4uvmQ3X15f3Hzburyjacr1UnLdjetRwFNKK3yoHjDFrj2oZLpZzhPRo7gFUITnWDkka0dStBtq1lvTgnbw6-u9zP6CwuazSTLgfOJt7pYLz-myx-1Ntwq2suWKd4MXh5bxDDj4xp1bNPFqfJLBhy0tBI0XXA5V7KDlIbQ0oRh-MaYHofi_43ljLy4s_zjgO_cyiC5wcBRm-P-OITsJoJvufVgSezRX0TclzKd_5_4S-P7aAn</recordid><startdate>20141001</startdate><enddate>20141001</enddate><creator>Pellicano, Elizabeth</creator><creator>Dinsmore, Adam</creator><creator>Charman, Tony</creator><general>SAGE Publications</general><scope>AFRWT</scope><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20141001</creationdate><title>What should autism research focus upon? 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Community views and priorities from the United Kingdom</atitle><jtitle>Autism : the international journal of research and practice</jtitle><addtitle>Autism</addtitle><date>2014-10-01</date><risdate>2014</risdate><volume>18</volume><issue>7</issue><spage>756</spage><epage>770</epage><pages>756-770</pages><issn>1362-3613</issn><eissn>1461-7005</eissn><abstract>The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. 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| ispartof | Autism : the international journal of research and practice, 2014-10, Vol.18 (7), p.756-770 |
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| source | SAGE Complete A-Z List; MEDLINE |
| subjects | Adolescent Adult Adults Aged Aged, 80 and over Attitude to Health Autism Autistic Disorder Child Child, Preschool Community Attitudes Community Surveys Educational Research Female Focus Groups Foreign Countries Funding Formulas Health Services Needs and Demand Humans Interviews Interviews as Topic - methods Knowledge Level Male Medical Research Middle Aged Needs Assessment Online Surveys Parent Surveys Participant Satisfaction Patient Satisfaction Professional Personnel Public Opinion Research Needs Research Opportunities Researchers Residence Characteristics Special Issue Stakeholders United Kingdom Young Adult |
| title | What should autism research focus upon? Community views and priorities from the United Kingdom |
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