Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association
Background and Aims Literature on interventions that enable young people with spina bifida and/or hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and...
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| Veröffentlicht in: | Scottish medical journal 2014-11, Vol.59 (4), p.209-213 |
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| container_title | Scottish medical journal |
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| creator | Levy, Sharon Wynd, Andrew HD Carachi, Robert |
| description | Background and Aims
Literature on interventions that enable young people with spina bifida and/or hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today.
Methods and Results
Focus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n = 20), data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with spina bifida moving to adult healthcare services.
Conclusion
A possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person-Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool. |
| doi_str_mv | 10.1177/0036933014556200 |
| format | Article |
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Literature on interventions that enable young people with spina bifida and/or hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today.
Methods and Results
Focus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n = 20), data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with spina bifida moving to adult healthcare services.
Conclusion
A possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person-Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool.</description><identifier>ISSN: 0036-9330</identifier><identifier>EISSN: 2045-6441</identifier><identifier>DOI: 10.1177/0036933014556200</identifier><identifier>PMID: 25358489</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Adolescent ; Adult ; Child ; Delivery of Health Care - organization & administration ; Female ; Health Services Accessibility - organization & administration ; Health Services Needs and Demand ; Humans ; Hydrocephalus - epidemiology ; Hydrocephalus - psychology ; Hydrocephalus - therapy ; Male ; Original ; Program Evaluation ; Qualitative Research ; Quality of Health Care - standards ; Scotland - epidemiology ; Spinal Dysraphism - epidemiology ; Spinal Dysraphism - psychology ; Spinal Dysraphism - therapy ; Surveys and Questionnaires ; Time Factors ; Transition to Adult Care - organization & administration</subject><ispartof>Scottish medical journal, 2014-11, Vol.59 (4), p.209-213</ispartof><rights>The Author(s) 2014 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav</rights><rights>The Author(s) 2014 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav.</rights><rights>The Author(s) 2014 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav 2014 The Scottish Medical Journal</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c434t-6f3e65596f3795eddd09ba3c747e32b3d8ca9e87ce4a3507deb9b551d891a2dd3</citedby><cites>FETCH-LOGICAL-c434t-6f3e65596f3795eddd09ba3c747e32b3d8ca9e87ce4a3507deb9b551d891a2dd3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/0036933014556200$$EPDF$$P50$$Gsage$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/0036933014556200$$EHTML$$P50$$Gsage$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,21818,27923,27924,43620,43621</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/25358489$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Levy, Sharon</creatorcontrib><creatorcontrib>Wynd, Andrew HD</creatorcontrib><creatorcontrib>Carachi, Robert</creatorcontrib><title>Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association</title><title>Scottish medical journal</title><addtitle>Scott Med J</addtitle><description>Background and Aims
Literature on interventions that enable young people with spina bifida and/or hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today.
Methods and Results
Focus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n = 20), data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with spina bifida moving to adult healthcare services.
Conclusion
A possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person-Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Child</subject><subject>Delivery of Health Care - organization & administration</subject><subject>Female</subject><subject>Health Services Accessibility - organization & administration</subject><subject>Health Services Needs and Demand</subject><subject>Humans</subject><subject>Hydrocephalus - epidemiology</subject><subject>Hydrocephalus - psychology</subject><subject>Hydrocephalus - therapy</subject><subject>Male</subject><subject>Original</subject><subject>Program Evaluation</subject><subject>Qualitative Research</subject><subject>Quality of Health Care - standards</subject><subject>Scotland - epidemiology</subject><subject>Spinal Dysraphism - epidemiology</subject><subject>Spinal Dysraphism - psychology</subject><subject>Spinal Dysraphism - therapy</subject><subject>Surveys and Questionnaires</subject><subject>Time Factors</subject><subject>Transition to Adult Care - organization & administration</subject><issn>0036-9330</issn><issn>2045-6441</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2014</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><recordid>eNp1kU9rFTEUxYNY2sez-64kSzejySSZPy6EWrQKBRdt1-FOcudNZF7yTDKFfol-ZvP62qKCqxv4nXNyuYeQM87ec962HxgTTS8E41KppmbsFVnVTKqqkZK_Jqs9rvb8hJym5AZWIBeya47JSa2E6mTXr8jDTQSfXHbBU-dzoGCXOdMJYc6TgYg0YbxzBlPB9NqEPIO3H-novHV-k-gYw5YCTXmx99QEbzD6Ap5tdCmPRCHTPOGjP7s00eud80A_u9FZoOcpBeNgv8MbcjTCnPD0aa7J7dcvNxffqqsfl98vzq8qI4XMVTMKbJTqy2x7hdZa1g8gTCtbFPUgbGegx641KEEo1loc-kEpbrueQ22tWJNPh9zdMmzRGvQ5wqx30W0h3usATv9NvJv0JtxpWQumJCsB754CYvi1YMp665LBuVwHw5I0b2rZi1qUAtaEHaQmhpQiji_fcKb3Tep_myyWt3-u92J47q0IqoMgwQb1z7BEX871_8DfJC2p8Q</recordid><startdate>20141101</startdate><enddate>20141101</enddate><creator>Levy, Sharon</creator><creator>Wynd, Andrew HD</creator><creator>Carachi, Robert</creator><general>SAGE Publications</general><scope>AFRWT</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20141101</creationdate><title>Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association</title><author>Levy, Sharon ; Wynd, Andrew HD ; Carachi, Robert</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c434t-6f3e65596f3795eddd09ba3c747e32b3d8ca9e87ce4a3507deb9b551d891a2dd3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2014</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Child</topic><topic>Delivery of Health Care - organization & administration</topic><topic>Female</topic><topic>Health Services Accessibility - organization & administration</topic><topic>Health Services Needs and Demand</topic><topic>Humans</topic><topic>Hydrocephalus - epidemiology</topic><topic>Hydrocephalus - psychology</topic><topic>Hydrocephalus - therapy</topic><topic>Male</topic><topic>Original</topic><topic>Program Evaluation</topic><topic>Qualitative Research</topic><topic>Quality of Health Care - standards</topic><topic>Scotland - epidemiology</topic><topic>Spinal Dysraphism - epidemiology</topic><topic>Spinal Dysraphism - psychology</topic><topic>Spinal Dysraphism - therapy</topic><topic>Surveys and Questionnaires</topic><topic>Time Factors</topic><topic>Transition to Adult Care - organization & administration</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Levy, Sharon</creatorcontrib><creatorcontrib>Wynd, Andrew HD</creatorcontrib><creatorcontrib>Carachi, Robert</creatorcontrib><collection>Sage Journals GOLD Open Access 2024</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Scottish medical journal</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Levy, Sharon</au><au>Wynd, Andrew HD</au><au>Carachi, Robert</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association</atitle><jtitle>Scottish medical journal</jtitle><addtitle>Scott Med J</addtitle><date>2014-11-01</date><risdate>2014</risdate><volume>59</volume><issue>4</issue><spage>209</spage><epage>213</epage><pages>209-213</pages><issn>0036-9330</issn><eissn>2045-6441</eissn><abstract>Background and Aims
Literature on interventions that enable young people with spina bifida and/or hydrocephalus to have smooth transition, into adult healthcare services, stress the need for the process to start early and to include all family members. The study reported here was set to quantify and articulate the experiences of service users who are or due to be going through the transition process in Scotland today.
Methods and Results
Focus group sessions, in the North of Scotland and in the ‘Central Belt’, captured rich qualitative data. A survey, sent to eligible participants on the Spina Bifida National database, offered complimentary data source. Despite the fact that the number of returned questionnaires was low (n = 20), data analysis identified a number of core recurring themes. These include issues concerning Communications, Respect, Choice and Control. Findings suggest that there is a significant chasm between the political rhetoric and the reality faced by young people with spina bifida moving to adult healthcare services.
Conclusion
A possible way to facilitate successful transition of young people is using personal healthcare information as the locus for needed change. More research is needed to ascertain whether a ‘Person-Centred Record’, which is set to empower young people on their transition pathway, is an appropriate transition tool.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>25358489</pmid><doi>10.1177/0036933014556200</doi><tpages>5</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | Scottish medical journal, 2014-11, Vol.59 (4), p.209-213 |
| issn | 0036-9330 2045-6441 |
| language | eng |
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| source | MEDLINE; SAGE Complete A-Z List |
| subjects | Adolescent Adult Child Delivery of Health Care - organization & administration Female Health Services Accessibility - organization & administration Health Services Needs and Demand Humans Hydrocephalus - epidemiology Hydrocephalus - psychology Hydrocephalus - therapy Male Original Program Evaluation Qualitative Research Quality of Health Care - standards Scotland - epidemiology Spinal Dysraphism - epidemiology Spinal Dysraphism - psychology Spinal Dysraphism - therapy Surveys and Questionnaires Time Factors Transition to Adult Care - organization & administration |
| title | Transition into adult healthcare services in Scotland: findings from a study concerning service users at the Scottish Spina Bifida Association |
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