Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network
We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations. Investigators at 5 Sentinel Network si...
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| Veröffentlicht in: | American journal of public health (1971) 2013-09, Vol.103 (9), p.1685-1692 |
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| container_title | American journal of public health (1971) |
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| creator | COTTLER, Linda B JO MCCLOSKEY, Donna STRILEY, Catherine W EVANOFF, Bradley AGUILAR-GAXIOLA, Sergio BENNETT, Nancy M STRELNICK, Hal DWYER-WHITE, Molly COLLYAR, Deborah E AJINKYA, Shaun SEIFER, Sarena D CALLAHAN O'LEARY, Catina |
| description | We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations.
Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions.
Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%).
Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing. |
| doi_str_mv | 10.2105/AJPH.2012.300941 |
| format | Article |
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Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions.
Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%).
Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.</description><identifier>ISSN: 0090-0036</identifier><identifier>EISSN: 1541-0048</identifier><identifier>DOI: 10.2105/AJPH.2012.300941</identifier><identifier>PMID: 23409875</identifier><identifier>CODEN: AJPEAG</identifier><language>eng</language><publisher>Washington, DC: American Public Health Association</publisher><subject><![CDATA[Adult ; African Americans ; Attitude to Health ; Biological and medical sciences ; Biomedical Research - statistics & numerical data ; Cancer ; Citizen participation ; Clinical trials ; Collaboration ; Community ; Community Health ; Community Health Workers - psychology ; Community Health Workers - statistics & numerical data ; Community Participation - statistics & numerical data ; Diabetes ; Epidemiology ; Female ; General aspects ; Humans ; Hypertension ; Male ; Medical research ; Medical sciences ; Middle Aged ; Minority & ethnic groups ; Miscellaneous ; Needs Assessment - statistics & numerical data ; Neighborhoods ; Other Health Service Delivery ; Other Race/Ethnicity ; Participation ; Perceptions ; Population ; Public health ; Public Health Practice ; Public Health Workers ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Research and Practice ; Sentinel Surveillance ; Social services ; Studies ; Translational Medical Research - statistics & numerical data ; United States ; Vulnerable Populations - statistics & numerical data ; Young Adult]]></subject><ispartof>American journal of public health (1971), 2013-09, Vol.103 (9), p.1685-1692</ispartof><rights>2015 INIST-CNRS</rights><rights>Copyright American Public Health Association Sep 2013</rights><rights>American Public Health Association 2013 2013</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c487t-46601d9b646861cecdfedf151f4855e0e90a549ba9e8b89adcd593825582d7ae3</citedby><cites>FETCH-LOGICAL-c487t-46601d9b646861cecdfedf151f4855e0e90a549ba9e8b89adcd593825582d7ae3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3966684/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3966684/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,727,780,784,885,27866,27924,27925,53791,53793</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=27643581$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23409875$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>COTTLER, Linda B</creatorcontrib><creatorcontrib>JO MCCLOSKEY, Donna</creatorcontrib><creatorcontrib>STRILEY, Catherine W</creatorcontrib><creatorcontrib>EVANOFF, Bradley</creatorcontrib><creatorcontrib>AGUILAR-GAXIOLA, Sergio</creatorcontrib><creatorcontrib>BENNETT, Nancy M</creatorcontrib><creatorcontrib>STRELNICK, Hal</creatorcontrib><creatorcontrib>DWYER-WHITE, Molly</creatorcontrib><creatorcontrib>COLLYAR, Deborah E</creatorcontrib><creatorcontrib>AJINKYA, Shaun</creatorcontrib><creatorcontrib>SEIFER, Sarena D</creatorcontrib><creatorcontrib>CALLAHAN O'LEARY, Catina</creatorcontrib><title>Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network</title><title>American journal of public health (1971)</title><addtitle>Am J Public Health</addtitle><description>We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations.
Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions.
Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%).
Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.</description><subject>Adult</subject><subject>African Americans</subject><subject>Attitude to Health</subject><subject>Biological and medical sciences</subject><subject>Biomedical Research - statistics & numerical data</subject><subject>Cancer</subject><subject>Citizen participation</subject><subject>Clinical trials</subject><subject>Collaboration</subject><subject>Community</subject><subject>Community Health</subject><subject>Community Health Workers - psychology</subject><subject>Community Health Workers - statistics & numerical data</subject><subject>Community Participation - statistics & numerical data</subject><subject>Diabetes</subject><subject>Epidemiology</subject><subject>Female</subject><subject>General aspects</subject><subject>Humans</subject><subject>Hypertension</subject><subject>Male</subject><subject>Medical research</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Minority & ethnic groups</subject><subject>Miscellaneous</subject><subject>Needs Assessment - statistics & numerical data</subject><subject>Neighborhoods</subject><subject>Other Health Service Delivery</subject><subject>Other Race/Ethnicity</subject><subject>Participation</subject><subject>Perceptions</subject><subject>Population</subject><subject>Public health</subject><subject>Public Health Practice</subject><subject>Public Health Workers</subject><subject>Public health. 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JO MCCLOSKEY, Donna ; STRILEY, Catherine W ; EVANOFF, Bradley ; AGUILAR-GAXIOLA, Sergio ; BENNETT, Nancy M ; STRELNICK, Hal ; DWYER-WHITE, Molly ; COLLYAR, Deborah E ; AJINKYA, Shaun ; SEIFER, Sarena D ; CALLAHAN O'LEARY, Catina</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c487t-46601d9b646861cecdfedf151f4855e0e90a549ba9e8b89adcd593825582d7ae3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Adult</topic><topic>African Americans</topic><topic>Attitude to Health</topic><topic>Biological and medical sciences</topic><topic>Biomedical Research - statistics & numerical data</topic><topic>Cancer</topic><topic>Citizen participation</topic><topic>Clinical trials</topic><topic>Collaboration</topic><topic>Community</topic><topic>Community Health</topic><topic>Community Health Workers - psychology</topic><topic>Community Health Workers - statistics & numerical data</topic><topic>Community Participation - statistics & numerical data</topic><topic>Diabetes</topic><topic>Epidemiology</topic><topic>Female</topic><topic>General aspects</topic><topic>Humans</topic><topic>Hypertension</topic><topic>Male</topic><topic>Medical research</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Minority & ethnic groups</topic><topic>Miscellaneous</topic><topic>Needs Assessment - statistics & numerical data</topic><topic>Neighborhoods</topic><topic>Other Health Service Delivery</topic><topic>Other Race/Ethnicity</topic><topic>Participation</topic><topic>Perceptions</topic><topic>Population</topic><topic>Public health</topic><topic>Public Health Practice</topic><topic>Public Health Workers</topic><topic>Public health. 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Health</addtitle><date>2013-09-01</date><risdate>2013</risdate><volume>103</volume><issue>9</issue><spage>1685</spage><epage>1692</epage><pages>1685-1692</pages><issn>0090-0036</issn><eissn>1541-0048</eissn><coden>AJPEAG</coden><abstract>We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations.
Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions.
Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%).
Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.</abstract><cop>Washington, DC</cop><pub>American Public Health Association</pub><pmid>23409875</pmid><doi>10.2105/AJPH.2012.300941</doi><tpages>8</tpages><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0090-0036 |
| ispartof | American journal of public health (1971), 2013-09, Vol.103 (9), p.1685-1692 |
| issn | 0090-0036 1541-0048 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3966684 |
| source | MEDLINE; PAIS Index; Business Source Complete; Education Source; PubMed Central; Alma/SFX Local Collection |
| subjects | Adult African Americans Attitude to Health Biological and medical sciences Biomedical Research - statistics & numerical data Cancer Citizen participation Clinical trials Collaboration Community Community Health Community Health Workers - psychology Community Health Workers - statistics & numerical data Community Participation - statistics & numerical data Diabetes Epidemiology Female General aspects Humans Hypertension Male Medical research Medical sciences Middle Aged Minority & ethnic groups Miscellaneous Needs Assessment - statistics & numerical data Neighborhoods Other Health Service Delivery Other Race/Ethnicity Participation Perceptions Population Public health Public Health Practice Public Health Workers Public health. Hygiene Public health. Hygiene-occupational medicine Research and Practice Sentinel Surveillance Social services Studies Translational Medical Research - statistics & numerical data United States Vulnerable Populations - statistics & numerical data Young Adult |
| title | Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network |
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