Opinions of the Dutch public on palliative sedation: a mixed-methods approach
Palliative sedation is defined as deliberately lowering a patient's consciousness, to relieve intolerable suffering from refractory symptoms at the end of life. Palliative sedation is considered a last resort intervention in end-of-life care that should not be confused with euthanasia. To infor...
Gespeichert in:
| Veröffentlicht in: | British journal of general practice 2013-10, Vol.63 (615), p.e676-e682 |
|---|---|
| Hauptverfasser: | , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | e682 |
|---|---|
| container_issue | 615 |
| container_start_page | e676 |
| container_title | British journal of general practice |
| container_volume | 63 |
| creator | van der Kallen, Hilde T H Raijmakers, Natasja J H Rietjens, Judith A C van der Male, Alex A Bueving, Herman J van Delden, Johannes J M van der Heide, Agnes |
| description | Palliative sedation is defined as deliberately lowering a patient's consciousness, to relieve intolerable suffering from refractory symptoms at the end of life. Palliative sedation is considered a last resort intervention in end-of-life care that should not be confused with euthanasia.
To inform healthcare professionals about attitudes of the general public regarding palliative sedation. design and setting: A cross-sectional survey among members of the Dutch general public followed by qualitative interviews.
One thousand nine hundred and sixty members of the general public completed the questionnaire, which included a vignette describing palliative sedation (response rate 78%); 16 participants were interviewed.
In total, 22% of the responders indicated knowing the term 'palliative sedation'. Qualitative data showed a variety of interpretations of the term. Eighty-one per cent of the responders agreed with the provision of sedatives as described in a vignette of a patient with untreatable pain and a life expectancy of |
| doi_str_mv | 10.3399/bjgp13X673685 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3782800</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>1445914776</sourcerecordid><originalsourceid>FETCH-LOGICAL-c387t-c85a771e81e0a45f1b5b37dd1c905e3b8ae5156b8c705ec4ffb53ca4e2fd2e83</originalsourceid><addsrcrecordid>eNpVkctLxDAQxoMouq4evUqOXqp5NqkHQdYnrOxlD95Cmk5tpG1q0xX97434QE8zw_z4Zvg-hI4oOeW8KM7K56eB8sdc8VzLLTSjQulMMsG20YwUOcloLvge2o_xmRDGckp20R4TNCGazdDDavC9D33EocZTA_hqM7kGD5uy9Q6HHg-2bb2d_CvgCFVqQn-OLe78G1RZB1MTqojtMIzBuuYA7dS2jXD4XedofXO9Xtxly9Xt_eJymTmu1ZQ5La1SFDQFYoWsaSlLrqqKuoJI4KW2IKnMS-1Ump2o61JyZwWwumKg-RxdfMmmNzuoHPTTaFszjL6z47sJ1pv_m9435im8Gq4004QkgZNvgTG8bCBOpvPRQdvaHsImGiqELJKTKk9o9oW6McQ4Qv17hhLzmYD5l0Dij__-9kv_WM4_ABAfhDY</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1445914776</pqid></control><display><type>article</type><title>Opinions of the Dutch public on palliative sedation: a mixed-methods approach</title><source>MEDLINE</source><source>PubMed Central</source><source>Alma/SFX Local Collection</source><creator>van der Kallen, Hilde T H ; Raijmakers, Natasja J H ; Rietjens, Judith A C ; van der Male, Alex A ; Bueving, Herman J ; van Delden, Johannes J M ; van der Heide, Agnes</creator><creatorcontrib>van der Kallen, Hilde T H ; Raijmakers, Natasja J H ; Rietjens, Judith A C ; van der Male, Alex A ; Bueving, Herman J ; van Delden, Johannes J M ; van der Heide, Agnes</creatorcontrib><description>Palliative sedation is defined as deliberately lowering a patient's consciousness, to relieve intolerable suffering from refractory symptoms at the end of life. Palliative sedation is considered a last resort intervention in end-of-life care that should not be confused with euthanasia.
To inform healthcare professionals about attitudes of the general public regarding palliative sedation. design and setting: A cross-sectional survey among members of the Dutch general public followed by qualitative interviews.
One thousand nine hundred and sixty members of the general public completed the questionnaire, which included a vignette describing palliative sedation (response rate 78%); 16 participants were interviewed.
In total, 22% of the responders indicated knowing the term 'palliative sedation'. Qualitative data showed a variety of interpretations of the term. Eighty-one per cent of the responders agreed with the provision of sedatives as described in a vignette of a patient with untreatable pain and a life expectancy of <1 week who received sedatives to alleviate his suffering. This percentage was somewhat lower for a patient with a life expectancy of <1 month (74%, P = 0.007) and comparable in the case where the physician gave sedatives with the aim of ending the patient's life (79%, P = 0.54).
Most of the general public accept the use of palliative sedation at the end of life, regardless of a potential life-shortening effect. However, confusion exists about what palliative sedation represents. This should be taken into account by healthcare professionals when communicating with patients and their relatives on end-of-life care options.</description><identifier>ISSN: 0960-1643</identifier><identifier>EISSN: 1478-5242</identifier><identifier>DOI: 10.3399/bjgp13X673685</identifier><identifier>PMID: 24152482</identifier><language>eng</language><publisher>England: Royal College of General Practitioners</publisher><subject>Adult ; Aged ; Attitude to Health ; Cross-Sectional Studies ; Female ; Humans ; Hypnotics and Sedatives - therapeutic use ; Life Expectancy ; Male ; Middle Aged ; Netherlands ; Palliative Care - psychology ; Professional-Family Relations ; Public Opinion ; Terminal Care - psychology</subject><ispartof>British journal of general practice, 2013-10, Vol.63 (615), p.e676-e682</ispartof><rights>British Journal of General Practice 2013 2013</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c387t-c85a771e81e0a45f1b5b37dd1c905e3b8ae5156b8c705ec4ffb53ca4e2fd2e83</citedby><cites>FETCH-LOGICAL-c387t-c85a771e81e0a45f1b5b37dd1c905e3b8ae5156b8c705ec4ffb53ca4e2fd2e83</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3782800/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3782800/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,727,780,784,885,27924,27925,53791,53793</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/24152482$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>van der Kallen, Hilde T H</creatorcontrib><creatorcontrib>Raijmakers, Natasja J H</creatorcontrib><creatorcontrib>Rietjens, Judith A C</creatorcontrib><creatorcontrib>van der Male, Alex A</creatorcontrib><creatorcontrib>Bueving, Herman J</creatorcontrib><creatorcontrib>van Delden, Johannes J M</creatorcontrib><creatorcontrib>van der Heide, Agnes</creatorcontrib><title>Opinions of the Dutch public on palliative sedation: a mixed-methods approach</title><title>British journal of general practice</title><addtitle>Br J Gen Pract</addtitle><description>Palliative sedation is defined as deliberately lowering a patient's consciousness, to relieve intolerable suffering from refractory symptoms at the end of life. Palliative sedation is considered a last resort intervention in end-of-life care that should not be confused with euthanasia.
To inform healthcare professionals about attitudes of the general public regarding palliative sedation. design and setting: A cross-sectional survey among members of the Dutch general public followed by qualitative interviews.
One thousand nine hundred and sixty members of the general public completed the questionnaire, which included a vignette describing palliative sedation (response rate 78%); 16 participants were interviewed.
In total, 22% of the responders indicated knowing the term 'palliative sedation'. Qualitative data showed a variety of interpretations of the term. Eighty-one per cent of the responders agreed with the provision of sedatives as described in a vignette of a patient with untreatable pain and a life expectancy of <1 week who received sedatives to alleviate his suffering. This percentage was somewhat lower for a patient with a life expectancy of <1 month (74%, P = 0.007) and comparable in the case where the physician gave sedatives with the aim of ending the patient's life (79%, P = 0.54).
Most of the general public accept the use of palliative sedation at the end of life, regardless of a potential life-shortening effect. However, confusion exists about what palliative sedation represents. This should be taken into account by healthcare professionals when communicating with patients and their relatives on end-of-life care options.</description><subject>Adult</subject><subject>Aged</subject><subject>Attitude to Health</subject><subject>Cross-Sectional Studies</subject><subject>Female</subject><subject>Humans</subject><subject>Hypnotics and Sedatives - therapeutic use</subject><subject>Life Expectancy</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Netherlands</subject><subject>Palliative Care - psychology</subject><subject>Professional-Family Relations</subject><subject>Public Opinion</subject><subject>Terminal Care - psychology</subject><issn>0960-1643</issn><issn>1478-5242</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpVkctLxDAQxoMouq4evUqOXqp5NqkHQdYnrOxlD95Cmk5tpG1q0xX97434QE8zw_z4Zvg-hI4oOeW8KM7K56eB8sdc8VzLLTSjQulMMsG20YwUOcloLvge2o_xmRDGckp20R4TNCGazdDDavC9D33EocZTA_hqM7kGD5uy9Q6HHg-2bb2d_CvgCFVqQn-OLe78G1RZB1MTqojtMIzBuuYA7dS2jXD4XedofXO9Xtxly9Xt_eJymTmu1ZQ5La1SFDQFYoWsaSlLrqqKuoJI4KW2IKnMS-1Ump2o61JyZwWwumKg-RxdfMmmNzuoHPTTaFszjL6z47sJ1pv_m9435im8Gq4004QkgZNvgTG8bCBOpvPRQdvaHsImGiqELJKTKk9o9oW6McQ4Qv17hhLzmYD5l0Dij__-9kv_WM4_ABAfhDY</recordid><startdate>20131001</startdate><enddate>20131001</enddate><creator>van der Kallen, Hilde T H</creator><creator>Raijmakers, Natasja J H</creator><creator>Rietjens, Judith A C</creator><creator>van der Male, Alex A</creator><creator>Bueving, Herman J</creator><creator>van Delden, Johannes J M</creator><creator>van der Heide, Agnes</creator><general>Royal College of General Practitioners</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20131001</creationdate><title>Opinions of the Dutch public on palliative sedation: a mixed-methods approach</title><author>van der Kallen, Hilde T H ; Raijmakers, Natasja J H ; Rietjens, Judith A C ; van der Male, Alex A ; Bueving, Herman J ; van Delden, Johannes J M ; van der Heide, Agnes</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c387t-c85a771e81e0a45f1b5b37dd1c905e3b8ae5156b8c705ec4ffb53ca4e2fd2e83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Attitude to Health</topic><topic>Cross-Sectional Studies</topic><topic>Female</topic><topic>Humans</topic><topic>Hypnotics and Sedatives - therapeutic use</topic><topic>Life Expectancy</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Netherlands</topic><topic>Palliative Care - psychology</topic><topic>Professional-Family Relations</topic><topic>Public Opinion</topic><topic>Terminal Care - psychology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>van der Kallen, Hilde T H</creatorcontrib><creatorcontrib>Raijmakers, Natasja J H</creatorcontrib><creatorcontrib>Rietjens, Judith A C</creatorcontrib><creatorcontrib>van der Male, Alex A</creatorcontrib><creatorcontrib>Bueving, Herman J</creatorcontrib><creatorcontrib>van Delden, Johannes J M</creatorcontrib><creatorcontrib>van der Heide, Agnes</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>British journal of general practice</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>van der Kallen, Hilde T H</au><au>Raijmakers, Natasja J H</au><au>Rietjens, Judith A C</au><au>van der Male, Alex A</au><au>Bueving, Herman J</au><au>van Delden, Johannes J M</au><au>van der Heide, Agnes</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Opinions of the Dutch public on palliative sedation: a mixed-methods approach</atitle><jtitle>British journal of general practice</jtitle><addtitle>Br J Gen Pract</addtitle><date>2013-10-01</date><risdate>2013</risdate><volume>63</volume><issue>615</issue><spage>e676</spage><epage>e682</epage><pages>e676-e682</pages><issn>0960-1643</issn><eissn>1478-5242</eissn><abstract>Palliative sedation is defined as deliberately lowering a patient's consciousness, to relieve intolerable suffering from refractory symptoms at the end of life. Palliative sedation is considered a last resort intervention in end-of-life care that should not be confused with euthanasia.
To inform healthcare professionals about attitudes of the general public regarding palliative sedation. design and setting: A cross-sectional survey among members of the Dutch general public followed by qualitative interviews.
One thousand nine hundred and sixty members of the general public completed the questionnaire, which included a vignette describing palliative sedation (response rate 78%); 16 participants were interviewed.
In total, 22% of the responders indicated knowing the term 'palliative sedation'. Qualitative data showed a variety of interpretations of the term. Eighty-one per cent of the responders agreed with the provision of sedatives as described in a vignette of a patient with untreatable pain and a life expectancy of <1 week who received sedatives to alleviate his suffering. This percentage was somewhat lower for a patient with a life expectancy of <1 month (74%, P = 0.007) and comparable in the case where the physician gave sedatives with the aim of ending the patient's life (79%, P = 0.54).
Most of the general public accept the use of palliative sedation at the end of life, regardless of a potential life-shortening effect. However, confusion exists about what palliative sedation represents. This should be taken into account by healthcare professionals when communicating with patients and their relatives on end-of-life care options.</abstract><cop>England</cop><pub>Royal College of General Practitioners</pub><pmid>24152482</pmid><doi>10.3399/bjgp13X673685</doi><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0960-1643 |
| ispartof | British journal of general practice, 2013-10, Vol.63 (615), p.e676-e682 |
| issn | 0960-1643 1478-5242 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3782800 |
| source | MEDLINE; PubMed Central; Alma/SFX Local Collection |
| subjects | Adult Aged Attitude to Health Cross-Sectional Studies Female Humans Hypnotics and Sedatives - therapeutic use Life Expectancy Male Middle Aged Netherlands Palliative Care - psychology Professional-Family Relations Public Opinion Terminal Care - psychology |
| title | Opinions of the Dutch public on palliative sedation: a mixed-methods approach |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-04T14%3A08%3A14IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Opinions%20of%20the%20Dutch%20public%20on%20palliative%20sedation:%20a%20mixed-methods%20approach&rft.jtitle=British%20journal%20of%20general%20practice&rft.au=van%20der%20Kallen,%20Hilde%20T%20H&rft.date=2013-10-01&rft.volume=63&rft.issue=615&rft.spage=e676&rft.epage=e682&rft.pages=e676-e682&rft.issn=0960-1643&rft.eissn=1478-5242&rft_id=info:doi/10.3399/bjgp13X673685&rft_dat=%3Cproquest_pubme%3E1445914776%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1445914776&rft_id=info:pmid/24152482&rfr_iscdi=true |