The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

Purpose: Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned. Methods: We conduc...

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Veröffentlicht in:	Genetics in medicine 2012-03, Vol.14 (3), p.330-337
Hauptverfasser:	Harris, Erin D., Ziniel, Sonja I., Amatruda, Jonathan G., Clinton, Catherine M., Savage, Sarah K., Taylor, Patrick L., Huntington, Noelle L., Green, Robert C., Holm, Ingrid A.
Format:	Artikel
Sprache:	eng
Schlagworte:	631/378/1457 631/378/1689/2608 692/308/2056 Adolescent Adult Attitude to Health Biological Specimen Banks Biomedical and Life Sciences Biomedicine Child Child, Preschool Culture Female Focus Groups Genetic Research - ethics Human Genetics Humans Laboratory Medicine Male Middle Aged Motivation original-research-article Parents & parenting Parents - psychology
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