Peer support groups as an intervention to decrease epilepsy-associated stigma
Abstract Eighty percent of people with epilepsy (PWE) reside in low-income countries where stigma contributes substantially to social and medical morbidity. Peer support groups (PSGs) are thought to be beneficial for people with stigmatized conditions, but little data exist regarding PSG effectivene...
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| Veröffentlicht in: | Epilepsy & behavior 2013-04, Vol.27 (1), p.188-192 |
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| container_title | Epilepsy & behavior |
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| creator | Elafros, Melissa A Mulenga, Julius Mbewe, Edward Haworth, Alan Chomba, Elwyn Atadzhanov, Masharip Birbeck, Gretchen L |
| description | Abstract Eighty percent of people with epilepsy (PWE) reside in low-income countries where stigma contributes substantially to social and medical morbidity. Peer support groups (PSGs) are thought to be beneficial for people with stigmatized conditions, but little data exist regarding PSG effectiveness. We facilitated monthly PSG meetings for men, women, and youth from three Zambian clinics for one year. Pre- and post-intervention assessments measured internalized stigma, psychiatric morbidity, medication adherence, socioeconomic status, and community disclosure. Of 103 participants (39 men, 30 women, and 34 youth), 80 PWE (78%) attended ≥ 6 meetings. There were no significant demographic differences between PWE who attended ≥ 6 meetings and those who attended < 6 meetings. Among youth attending ≥ 6 meetings, internalized stigma decreased (p < 0.02). Among adults, there was a non-significant stigma decrease. No differences were detected in medication use, medication adherence, or psychiatric morbidity. Peer support groups effectively reduce stigma for youth and may offer a low-cost approach to addressing epilepsy-associated stigma in resource-poor settings. |
| doi_str_mv | 10.1016/j.yebeh.2013.01.005 |
| format | Article |
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Peer support groups (PSGs) are thought to be beneficial for people with stigmatized conditions, but little data exist regarding PSG effectiveness. We facilitated monthly PSG meetings for men, women, and youth from three Zambian clinics for one year. Pre- and post-intervention assessments measured internalized stigma, psychiatric morbidity, medication adherence, socioeconomic status, and community disclosure. Of 103 participants (39 men, 30 women, and 34 youth), 80 PWE (78%) attended ≥ 6 meetings. There were no significant demographic differences between PWE who attended ≥ 6 meetings and those who attended < 6 meetings. Among youth attending ≥ 6 meetings, internalized stigma decreased (p < 0.02). Among adults, there was a non-significant stigma decrease. No differences were detected in medication use, medication adherence, or psychiatric morbidity. Peer support groups effectively reduce stigma for youth and may offer a low-cost approach to addressing epilepsy-associated stigma in resource-poor settings.</description><identifier>ISSN: 1525-5050</identifier><identifier>EISSN: 1525-5069</identifier><identifier>DOI: 10.1016/j.yebeh.2013.01.005</identifier><identifier>PMID: 23454914</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adaptation, Psychological ; Adolescent ; Adult ; Africa ; Age Factors ; Anticonvulsants - therapeutic use ; Community disclosure ; Data processing ; Demography ; Epilepsy ; Epilepsy - drug therapy ; Epilepsy - psychology ; Female ; Humans ; Male ; Medication adherence ; Medication use ; Men ; Morbidity ; Neurology ; Peer Group ; Psychiatric morbidity ; Rural ; Self-Help Groups ; Sex Factors ; Social Stigma ; Socio-economic aspects ; Statistics, Nonparametric ; Stigma ; Surveys and Questionnaires ; Urban ; Women ; Young Adult ; Youth</subject><ispartof>Epilepsy & behavior, 2013-04, Vol.27 (1), p.188-192</ispartof><rights>Elsevier Inc.</rights><rights>2013 Elsevier Inc.</rights><rights>Copyright © 2013 Elsevier Inc. All rights reserved.</rights><rights>2012 Elsevier Inc. All rights reserved. 2012</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c613t-4c4e5b5d6be019ce9014881275e1a2eba222eba4ca83688565504108a19002ca3</citedby><cites>FETCH-LOGICAL-c613t-4c4e5b5d6be019ce9014881275e1a2eba222eba4ca83688565504108a19002ca3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S1525505013000152$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>230,314,776,780,881,3537,27903,27904,65309</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/23454914$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Elafros, Melissa A</creatorcontrib><creatorcontrib>Mulenga, Julius</creatorcontrib><creatorcontrib>Mbewe, Edward</creatorcontrib><creatorcontrib>Haworth, Alan</creatorcontrib><creatorcontrib>Chomba, Elwyn</creatorcontrib><creatorcontrib>Atadzhanov, Masharip</creatorcontrib><creatorcontrib>Birbeck, Gretchen L</creatorcontrib><title>Peer support groups as an intervention to decrease epilepsy-associated stigma</title><title>Epilepsy & behavior</title><addtitle>Epilepsy Behav</addtitle><description>Abstract Eighty percent of people with epilepsy (PWE) reside in low-income countries where stigma contributes substantially to social and medical morbidity. Peer support groups (PSGs) are thought to be beneficial for people with stigmatized conditions, but little data exist regarding PSG effectiveness. We facilitated monthly PSG meetings for men, women, and youth from three Zambian clinics for one year. Pre- and post-intervention assessments measured internalized stigma, psychiatric morbidity, medication adherence, socioeconomic status, and community disclosure. Of 103 participants (39 men, 30 women, and 34 youth), 80 PWE (78%) attended ≥ 6 meetings. There were no significant demographic differences between PWE who attended ≥ 6 meetings and those who attended < 6 meetings. Among youth attending ≥ 6 meetings, internalized stigma decreased (p < 0.02). Among adults, there was a non-significant stigma decrease. No differences were detected in medication use, medication adherence, or psychiatric morbidity. Peer support groups effectively reduce stigma for youth and may offer a low-cost approach to addressing epilepsy-associated stigma in resource-poor settings.</description><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Africa</subject><subject>Age Factors</subject><subject>Anticonvulsants - therapeutic use</subject><subject>Community disclosure</subject><subject>Data processing</subject><subject>Demography</subject><subject>Epilepsy</subject><subject>Epilepsy - drug therapy</subject><subject>Epilepsy - psychology</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>Medication adherence</subject><subject>Medication use</subject><subject>Men</subject><subject>Morbidity</subject><subject>Neurology</subject><subject>Peer Group</subject><subject>Psychiatric morbidity</subject><subject>Rural</subject><subject>Self-Help Groups</subject><subject>Sex Factors</subject><subject>Social Stigma</subject><subject>Socio-economic aspects</subject><subject>Statistics, Nonparametric</subject><subject>Stigma</subject><subject>Surveys and Questionnaires</subject><subject>Urban</subject><subject>Women</subject><subject>Young Adult</subject><subject>Youth</subject><issn>1525-5050</issn><issn>1525-5069</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2013</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNUl1v1DAQjBCIlsIvQEJ55CVh145zzgOVUMWXVEQl4HnlONurj1wc7OSk-_d1euVEeQHJsi15Zna9M1n2EqFEwPrNptxzyzelAJQlYAmgHmWnqIQqFNTN4-NdwUn2LMYNAKKS-DQ7EbJSVYPVafblijnkcR5HH6Z8Hfw8xtykNeRumDjseJicH_LJ5x3bwCZyzqPreYz7wsTorTMTd3mc3HprnmdPrk0f-cX9eZb9-PD--8Wn4vLrx88X7y4LW6OcispWrFrV1S0DNpYbwEprFCvFaAS3Rohlr6zRstZa1UpBhaANNgDCGnmWnR90x7ndcmdTk8H0NAa3NWFP3jh6-DK4G1r7HckaBIomCby-Fwj-18xxoq2LlvveDOznSCiF1GmIq9V_QHGlq1pqkaDyALXBxxj4-tgRAi2e0YbuPKPFMwKk5FlivfrzM0fOb5MS4O0BwGmkO8eBonU8WO5cYDtR590_Cpz_xbe9G5w1_U_ec9z4OQzJLUKKgoC-LbFZUoMSUmSUkLfiB74w</recordid><startdate>20130401</startdate><enddate>20130401</enddate><creator>Elafros, Melissa A</creator><creator>Mulenga, Julius</creator><creator>Mbewe, Edward</creator><creator>Haworth, Alan</creator><creator>Chomba, Elwyn</creator><creator>Atadzhanov, Masharip</creator><creator>Birbeck, Gretchen L</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7TK</scope><scope>5PM</scope></search><sort><creationdate>20130401</creationdate><title>Peer support groups as an intervention to decrease epilepsy-associated stigma</title><author>Elafros, Melissa A ; Mulenga, Julius ; Mbewe, Edward ; Haworth, Alan ; Chomba, Elwyn ; Atadzhanov, Masharip ; Birbeck, Gretchen L</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c613t-4c4e5b5d6be019ce9014881275e1a2eba222eba4ca83688565504108a19002ca3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Adaptation, Psychological</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Africa</topic><topic>Age Factors</topic><topic>Anticonvulsants - therapeutic use</topic><topic>Community disclosure</topic><topic>Data processing</topic><topic>Demography</topic><topic>Epilepsy</topic><topic>Epilepsy - drug therapy</topic><topic>Epilepsy - psychology</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>Medication adherence</topic><topic>Medication use</topic><topic>Men</topic><topic>Morbidity</topic><topic>Neurology</topic><topic>Peer Group</topic><topic>Psychiatric morbidity</topic><topic>Rural</topic><topic>Self-Help Groups</topic><topic>Sex Factors</topic><topic>Social Stigma</topic><topic>Socio-economic aspects</topic><topic>Statistics, Nonparametric</topic><topic>Stigma</topic><topic>Surveys and Questionnaires</topic><topic>Urban</topic><topic>Women</topic><topic>Young Adult</topic><topic>Youth</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Elafros, Melissa A</creatorcontrib><creatorcontrib>Mulenga, Julius</creatorcontrib><creatorcontrib>Mbewe, Edward</creatorcontrib><creatorcontrib>Haworth, Alan</creatorcontrib><creatorcontrib>Chomba, Elwyn</creatorcontrib><creatorcontrib>Atadzhanov, Masharip</creatorcontrib><creatorcontrib>Birbeck, Gretchen L</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Neurosciences Abstracts</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Epilepsy & behavior</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Elafros, Melissa A</au><au>Mulenga, Julius</au><au>Mbewe, Edward</au><au>Haworth, Alan</au><au>Chomba, Elwyn</au><au>Atadzhanov, Masharip</au><au>Birbeck, Gretchen L</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Peer support groups as an intervention to decrease epilepsy-associated stigma</atitle><jtitle>Epilepsy & behavior</jtitle><addtitle>Epilepsy Behav</addtitle><date>2013-04-01</date><risdate>2013</risdate><volume>27</volume><issue>1</issue><spage>188</spage><epage>192</epage><pages>188-192</pages><issn>1525-5050</issn><eissn>1525-5069</eissn><abstract>Abstract Eighty percent of people with epilepsy (PWE) reside in low-income countries where stigma contributes substantially to social and medical morbidity. Peer support groups (PSGs) are thought to be beneficial for people with stigmatized conditions, but little data exist regarding PSG effectiveness. We facilitated monthly PSG meetings for men, women, and youth from three Zambian clinics for one year. Pre- and post-intervention assessments measured internalized stigma, psychiatric morbidity, medication adherence, socioeconomic status, and community disclosure. Of 103 participants (39 men, 30 women, and 34 youth), 80 PWE (78%) attended ≥ 6 meetings. There were no significant demographic differences between PWE who attended ≥ 6 meetings and those who attended < 6 meetings. Among youth attending ≥ 6 meetings, internalized stigma decreased (p < 0.02). Among adults, there was a non-significant stigma decrease. No differences were detected in medication use, medication adherence, or psychiatric morbidity. Peer support groups effectively reduce stigma for youth and may offer a low-cost approach to addressing epilepsy-associated stigma in resource-poor settings.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>23454914</pmid><doi>10.1016/j.yebeh.2013.01.005</doi><tpages>5</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adaptation, Psychological Adolescent Adult Africa Age Factors Anticonvulsants - therapeutic use Community disclosure Data processing Demography Epilepsy Epilepsy - drug therapy Epilepsy - psychology Female Humans Male Medication adherence Medication use Men Morbidity Neurology Peer Group Psychiatric morbidity Rural Self-Help Groups Sex Factors Social Stigma Socio-economic aspects Statistics, Nonparametric Stigma Surveys and Questionnaires Urban Women Young Adult Youth |
| title | Peer support groups as an intervention to decrease epilepsy-associated stigma |
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