Local and National Advocacy Support

Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to d...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:Journal of clinical immunology 2012-09, Vol.32 (Suppl 2), p.423-426
Hauptverfasser: Shapiro, Ralph S., Boyle, Marcia, Perez, Elena E.
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
container_end_page 426
container_issue Suppl 2
container_start_page 423
container_title Journal of clinical immunology
container_volume 32
creator Shapiro, Ralph S.
Boyle, Marcia
Perez, Elena E.
description Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma & Immunology and their regional societies.
doi_str_mv 10.1007/s10875-012-9736-6
format Article
fullrecord <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3459078</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>1082235023</sourcerecordid><originalsourceid>FETCH-LOGICAL-c442t-6c704e777c33eb3ea61e68e04af4d02835c8f1a7bd518c4606ef086e07c6d5d83</originalsourceid><addsrcrecordid>eNp9kE1LAzEQhoMotlZ_gBcpePESnXzvXgQpfkHRg3oOaTZbt2w3Ndkt9N-bsrXoxdMw877zzvAgdE7gmgCom0ggUwIDoThXTGJ5gIZEKIapyOkhGgJVBOeE0wE6iXEBAExScYwGlGYEJFVDdDn11tRj0xTjF9NWvknNXbFOQ7sZv3WrlQ_tKToqTR3d2a6O0MfD_fvkCU9fH58nd1NsOactllYBd0opy5ibMWckcTJzwE3JC6AZEzYriVGzQpDMcgnSlZBJB8rKQhQZG6HbPnfVzZausK5pg6n1KlRLEzbam0r_VZrqU8_9WjMuclDbgKtdQPBfnYutXlbRuro2jfNd1AkXpUwAZclKeqsNPsbgyv0ZAnoLV_dwdYKrt3C1TDsXv__bb_zQTAbaG2KSmrkLeuG7kJDGf1K_AZjFhBI</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1082235023</pqid></control><display><type>article</type><title>Local and National Advocacy Support</title><source>MEDLINE</source><source>SpringerNature Journals</source><creator>Shapiro, Ralph S. ; Boyle, Marcia ; Perez, Elena E.</creator><creatorcontrib>Shapiro, Ralph S. ; Boyle, Marcia ; Perez, Elena E.</creatorcontrib><description>Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma &amp; Immunology and their regional societies.</description><identifier>ISSN: 0271-9142</identifier><identifier>EISSN: 1573-2592</identifier><identifier>DOI: 10.1007/s10875-012-9736-6</identifier><identifier>PMID: 22810627</identifier><language>eng</language><publisher>Boston: Springer US</publisher><subject>Biomedical and Life Sciences ; Biomedicine ; Decision Making, Organizational ; Health Services Accessibility ; Humans ; Immunoglobulins, Intravenous - economics ; Immunoglobulins, Intravenous - therapeutic use ; Immunologic Deficiency Syndromes - drug therapy ; Immunologic Deficiency Syndromes - economics ; Immunology ; Infectious Diseases ; Internal Medicine ; Medical Microbiology ; Patient Advocacy - economics ; Patient Advocacy - legislation &amp; jurisprudence ; Patient Preference - economics ; Patient Preference - legislation &amp; jurisprudence ; Precision Medicine</subject><ispartof>Journal of clinical immunology, 2012-09, Vol.32 (Suppl 2), p.423-426</ispartof><rights>The Author(s) 2012</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c442t-6c704e777c33eb3ea61e68e04af4d02835c8f1a7bd518c4606ef086e07c6d5d83</citedby><cites>FETCH-LOGICAL-c442t-6c704e777c33eb3ea61e68e04af4d02835c8f1a7bd518c4606ef086e07c6d5d83</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10875-012-9736-6$$EPDF$$P50$$Gspringer$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10875-012-9736-6$$EHTML$$P50$$Gspringer$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,27924,27925,41488,42557,51319</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/22810627$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Shapiro, Ralph S.</creatorcontrib><creatorcontrib>Boyle, Marcia</creatorcontrib><creatorcontrib>Perez, Elena E.</creatorcontrib><title>Local and National Advocacy Support</title><title>Journal of clinical immunology</title><addtitle>J Clin Immunol</addtitle><addtitle>J Clin Immunol</addtitle><description>Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma &amp; Immunology and their regional societies.</description><subject>Biomedical and Life Sciences</subject><subject>Biomedicine</subject><subject>Decision Making, Organizational</subject><subject>Health Services Accessibility</subject><subject>Humans</subject><subject>Immunoglobulins, Intravenous - economics</subject><subject>Immunoglobulins, Intravenous - therapeutic use</subject><subject>Immunologic Deficiency Syndromes - drug therapy</subject><subject>Immunologic Deficiency Syndromes - economics</subject><subject>Immunology</subject><subject>Infectious Diseases</subject><subject>Internal Medicine</subject><subject>Medical Microbiology</subject><subject>Patient Advocacy - economics</subject><subject>Patient Advocacy - legislation &amp; jurisprudence</subject><subject>Patient Preference - economics</subject><subject>Patient Preference - legislation &amp; jurisprudence</subject><subject>Precision Medicine</subject><issn>0271-9142</issn><issn>1573-2592</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>C6C</sourceid><sourceid>EIF</sourceid><recordid>eNp9kE1LAzEQhoMotlZ_gBcpePESnXzvXgQpfkHRg3oOaTZbt2w3Ndkt9N-bsrXoxdMw877zzvAgdE7gmgCom0ggUwIDoThXTGJ5gIZEKIapyOkhGgJVBOeE0wE6iXEBAExScYwGlGYEJFVDdDn11tRj0xTjF9NWvknNXbFOQ7sZv3WrlQ_tKToqTR3d2a6O0MfD_fvkCU9fH58nd1NsOactllYBd0opy5ibMWckcTJzwE3JC6AZEzYriVGzQpDMcgnSlZBJB8rKQhQZG6HbPnfVzZausK5pg6n1KlRLEzbam0r_VZrqU8_9WjMuclDbgKtdQPBfnYutXlbRuro2jfNd1AkXpUwAZclKeqsNPsbgyv0ZAnoLV_dwdYKrt3C1TDsXv__bb_zQTAbaG2KSmrkLeuG7kJDGf1K_AZjFhBI</recordid><startdate>20120901</startdate><enddate>20120901</enddate><creator>Shapiro, Ralph S.</creator><creator>Boyle, Marcia</creator><creator>Perez, Elena E.</creator><general>Springer US</general><scope>C6C</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20120901</creationdate><title>Local and National Advocacy Support</title><author>Shapiro, Ralph S. ; Boyle, Marcia ; Perez, Elena E.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c442t-6c704e777c33eb3ea61e68e04af4d02835c8f1a7bd518c4606ef086e07c6d5d83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Biomedical and Life Sciences</topic><topic>Biomedicine</topic><topic>Decision Making, Organizational</topic><topic>Health Services Accessibility</topic><topic>Humans</topic><topic>Immunoglobulins, Intravenous - economics</topic><topic>Immunoglobulins, Intravenous - therapeutic use</topic><topic>Immunologic Deficiency Syndromes - drug therapy</topic><topic>Immunologic Deficiency Syndromes - economics</topic><topic>Immunology</topic><topic>Infectious Diseases</topic><topic>Internal Medicine</topic><topic>Medical Microbiology</topic><topic>Patient Advocacy - economics</topic><topic>Patient Advocacy - legislation &amp; jurisprudence</topic><topic>Patient Preference - economics</topic><topic>Patient Preference - legislation &amp; jurisprudence</topic><topic>Precision Medicine</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Shapiro, Ralph S.</creatorcontrib><creatorcontrib>Boyle, Marcia</creatorcontrib><creatorcontrib>Perez, Elena E.</creatorcontrib><collection>Springer Nature OA Free Journals</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of clinical immunology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Shapiro, Ralph S.</au><au>Boyle, Marcia</au><au>Perez, Elena E.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Local and National Advocacy Support</atitle><jtitle>Journal of clinical immunology</jtitle><stitle>J Clin Immunol</stitle><addtitle>J Clin Immunol</addtitle><date>2012-09-01</date><risdate>2012</risdate><volume>32</volume><issue>Suppl 2</issue><spage>423</spage><epage>426</epage><pages>423-426</pages><issn>0271-9142</issn><eissn>1573-2592</eissn><abstract>Decisions by third-party payors that are restricting delivery of appropriate IgG treatment for primary immunodeficiency disease (PIDD) are summoning action from patients, physicians, and their organizations to ensure that high quality treatment remains accessible. Some of the strongest advocacy to date is from patient organizations, such as the Immune Deficiency Foundation (IDF), which strive to educate stakeholders on key issues that determine patient access to appropriate IgG treatment. These issues include the ability to choose the appropriate site of care based on a patient’s experience and circumstance and greater awareness of product choice. Advocacy by physicians on these issues at the local level is needed, as are national efforts by organizations such as the American Academy of Allergy, Asthma &amp; Immunology and their regional societies.</abstract><cop>Boston</cop><pub>Springer US</pub><pmid>22810627</pmid><doi>10.1007/s10875-012-9736-6</doi><tpages>4</tpages><oa>free_for_read</oa></addata></record>
fulltext fulltext
identifier ISSN: 0271-9142
ispartof Journal of clinical immunology, 2012-09, Vol.32 (Suppl 2), p.423-426
issn 0271-9142
1573-2592
language eng
recordid cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3459078
source MEDLINE; SpringerNature Journals
subjects Biomedical and Life Sciences
Biomedicine
Decision Making, Organizational
Health Services Accessibility
Humans
Immunoglobulins, Intravenous - economics
Immunoglobulins, Intravenous - therapeutic use
Immunologic Deficiency Syndromes - drug therapy
Immunologic Deficiency Syndromes - economics
Immunology
Infectious Diseases
Internal Medicine
Medical Microbiology
Patient Advocacy - economics
Patient Advocacy - legislation & jurisprudence
Patient Preference - economics
Patient Preference - legislation & jurisprudence
Precision Medicine
title Local and National Advocacy Support
url https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-25T02%3A15%3A28IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Local%20and%20National%20Advocacy%20Support&rft.jtitle=Journal%20of%20clinical%20immunology&rft.au=Shapiro,%20Ralph%20S.&rft.date=2012-09-01&rft.volume=32&rft.issue=Suppl%202&rft.spage=423&rft.epage=426&rft.pages=423-426&rft.issn=0271-9142&rft.eissn=1573-2592&rft_id=info:doi/10.1007/s10875-012-9736-6&rft_dat=%3Cproquest_pubme%3E1082235023%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1082235023&rft_id=info:pmid/22810627&rfr_iscdi=true