Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations
Abstract Background A combined behavior–nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior–nutrition intervention strategies and 2) identify the challenges with...
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| Veröffentlicht in: | Journal of cystic fibrosis 2012-03, Vol.11 (2), p.125-130 |
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| container_title | Journal of cystic fibrosis |
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| creator | Filigno, Stephanie S Brannon, Erin E Chamberlin, Leigh Ann Sullivan, Stephanie M Barnett, Kimberly A Powers, Scott W |
| description | Abstract Background A combined behavior–nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior–nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age. Methods Eight families (mean age of children = 8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder. Results Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress. Conclusions Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility. |
| doi_str_mv | 10.1016/j.jcf.2011.10.006 |
| format | Article |
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The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior–nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age. Methods Eight families (mean age of children = 8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder. Results Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress. Conclusions Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility.</description><identifier>ISSN: 1569-1993</identifier><identifier>EISSN: 1873-5010</identifier><identifier>DOI: 10.1016/j.jcf.2011.10.006</identifier><identifier>PMID: 22112934</identifier><language>eng</language><publisher>Netherlands: Elsevier B.V</publisher><subject>Adult ; Child ; Child Behavior ; Continuity of Patient Care ; Cystic Fibrosis - complications ; Cystic Fibrosis - therapy ; Family Health ; Female ; Health Behavior ; Humans ; Male ; Nutrition Disorders - etiology ; Nutritional Requirements ; Nutritional Status ; Parents ; Patient Compliance ; Pulmonary/Respiratory ; Stress, Psychological</subject><ispartof>Journal of cystic fibrosis, 2012-03, Vol.11 (2), p.125-130</ispartof><rights>European Cystic Fibrosis Society</rights><rights>2011 European Cystic Fibrosis Society</rights><rights>Copyright © 2011 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.</rights><rights>2011 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved. 2011</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c505t-a83ea4c956682ea188ffaf9be7f252cbcf3484d102e4bd7ff2573284e86686b43</citedby><cites>FETCH-LOGICAL-c505t-a83ea4c956682ea188ffaf9be7f252cbcf3484d102e4bd7ff2573284e86686b43</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jcf.2011.10.006$$EHTML$$P50$$Gelsevier$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,3549,27923,27924,45994</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/22112934$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Filigno, Stephanie S</creatorcontrib><creatorcontrib>Brannon, Erin E</creatorcontrib><creatorcontrib>Chamberlin, Leigh Ann</creatorcontrib><creatorcontrib>Sullivan, Stephanie M</creatorcontrib><creatorcontrib>Barnett, Kimberly A</creatorcontrib><creatorcontrib>Powers, Scott W</creatorcontrib><title>Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations</title><title>Journal of cystic fibrosis</title><addtitle>J Cyst Fibros</addtitle><description>Abstract Background A combined behavior–nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior–nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age. Methods Eight families (mean age of children = 8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder. Results Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress. Conclusions Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility.</description><subject>Adult</subject><subject>Child</subject><subject>Child Behavior</subject><subject>Continuity of Patient Care</subject><subject>Cystic Fibrosis - complications</subject><subject>Cystic Fibrosis - therapy</subject><subject>Family Health</subject><subject>Female</subject><subject>Health Behavior</subject><subject>Humans</subject><subject>Male</subject><subject>Nutrition Disorders - etiology</subject><subject>Nutritional Requirements</subject><subject>Nutritional Status</subject><subject>Parents</subject><subject>Patient Compliance</subject><subject>Pulmonary/Respiratory</subject><subject>Stress, Psychological</subject><issn>1569-1993</issn><issn>1873-5010</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9Uk2P1DAMrRCIXRZ-ABfUG6cOcdKPVEgroRVf0koIAecoTZ0dl04yJOnA_HtSZlkBB06JnfeeHT8XxVNgG2DQvpg2k7EbzgByvGGsvVecg-xE1TBg9_O9afsK-l6cFY9inBiDjnXyYXHGOQDvRX1emI-LninpRAcstdPzMVIsvS33OqBLJf7YYyB0BmP5ndK21GZLeCB3U5pjTGRKS0PwK8ktKVAi78qAxu926Ea9hvFx8cDqOeKT2_Oi-PLm9eerd9X1h7fvr15dV6ZhTaq0FKhr0zdtKzlqkNJabfsBO8sbbgZjRS3rERjHehg7m7Od4LJGmQntUIuL4vKku1-GHY4m9x_0rPaBdjocldek_n5xtFU3_qCE4IxDnwWe3woE_23BmNSOosF51g79ElXPZc86zkVGwglp8t9jQHtXBZhavVGTyt6o1Zs1lb3JnGd_tnfH-G1GBrw8ATAP6UAYVDS_Rj9SnmhSo6f_yl_-wzYzOTJ6_opHjJNfQrY3KlCRK6Y-rcux7gbAuheSiZ9V0LgA</recordid><startdate>20120301</startdate><enddate>20120301</enddate><creator>Filigno, Stephanie S</creator><creator>Brannon, Erin E</creator><creator>Chamberlin, Leigh Ann</creator><creator>Sullivan, Stephanie M</creator><creator>Barnett, Kimberly A</creator><creator>Powers, Scott W</creator><general>Elsevier B.V</general><scope>6I.</scope><scope>AAFTH</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20120301</creationdate><title>Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations</title><author>Filigno, Stephanie S ; Brannon, Erin E ; Chamberlin, Leigh Ann ; Sullivan, Stephanie M ; Barnett, Kimberly A ; Powers, Scott W</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c505t-a83ea4c956682ea188ffaf9be7f252cbcf3484d102e4bd7ff2573284e86686b43</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Adult</topic><topic>Child</topic><topic>Child Behavior</topic><topic>Continuity of Patient Care</topic><topic>Cystic Fibrosis - complications</topic><topic>Cystic Fibrosis - therapy</topic><topic>Family Health</topic><topic>Female</topic><topic>Health Behavior</topic><topic>Humans</topic><topic>Male</topic><topic>Nutrition Disorders - etiology</topic><topic>Nutritional Requirements</topic><topic>Nutritional Status</topic><topic>Parents</topic><topic>Patient Compliance</topic><topic>Pulmonary/Respiratory</topic><topic>Stress, Psychological</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Filigno, Stephanie S</creatorcontrib><creatorcontrib>Brannon, Erin E</creatorcontrib><creatorcontrib>Chamberlin, Leigh Ann</creatorcontrib><creatorcontrib>Sullivan, Stephanie M</creatorcontrib><creatorcontrib>Barnett, Kimberly A</creatorcontrib><creatorcontrib>Powers, Scott W</creatorcontrib><collection>ScienceDirect Open Access Titles</collection><collection>Elsevier:ScienceDirect:Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of cystic fibrosis</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Filigno, Stephanie S</au><au>Brannon, Erin E</au><au>Chamberlin, Leigh Ann</au><au>Sullivan, Stephanie M</au><au>Barnett, Kimberly A</au><au>Powers, Scott W</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations</atitle><jtitle>Journal of cystic fibrosis</jtitle><addtitle>J Cyst Fibros</addtitle><date>2012-03-01</date><risdate>2012</risdate><volume>11</volume><issue>2</issue><spage>125</spage><epage>130</epage><pages>125-130</pages><issn>1569-1993</issn><eissn>1873-5010</eissn><abstract>Abstract Background A combined behavior–nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior–nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age. Methods Eight families (mean age of children = 8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder. Results Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress. Conclusions Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility.</abstract><cop>Netherlands</cop><pub>Elsevier B.V</pub><pmid>22112934</pmid><doi>10.1016/j.jcf.2011.10.006</doi><tpages>6</tpages><oa>free_for_read</oa></addata></record> |
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| source | MEDLINE; ScienceDirect Journals (5 years ago - present); EZB-FREE-00999 freely available EZB journals |
| subjects | Adult Child Child Behavior Continuity of Patient Care Cystic Fibrosis - complications Cystic Fibrosis - therapy Family Health Female Health Behavior Humans Male Nutrition Disorders - etiology Nutritional Requirements Nutritional Status Parents Patient Compliance Pulmonary/Respiratory Stress, Psychological |
| title | Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations |
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