Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results

Ethicists contend that researchers are obliged to report genetic research findings to individual study participants when they are clinically significant, that is, when they are clinically useful or personally meaningful to participants. Yet whether such standards are well understood and can be consi...

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Veröffentlicht in:	European journal of human genetics : EJHG 2011-07, Vol.19 (7), p.740-747
Hauptverfasser:	Hayeems, Robin Zoe, Miller, Fiona Alice, Li, Li, Bytautas, Jessica Peace
Format:	Artikel
Sprache:	eng
Schlagworte:	692/308/2056 692/308/2779/174 692/700/179 Adult Autism Bioinformatics Biological and medical sciences Biomedical and Life Sciences Biomedicine Child Child Development Disorders, Pervasive - genetics Cross-Sectional Studies Cystic fibrosis Cystic Fibrosis - genetics Cytogenetics Disclosure - ethics Ethics Ethics, Research Female Fibrosis Fundamental and applied biological sciences. Psychology Gene Expression General aspects. Genetic counseling Genetic research Genetic Research - ethics Genetics of eukaryotes. Biological and molecular evolution Health Surveys Human Genetics Humans Judgment Male Medical genetics Medical sciences Models, Statistical Molecular and cellular biology Qualitative research Replication Research Personnel - ethics Research Personnel - psychology Researchers Statistics Studies
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