A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
Purpose To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU). Method Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitte...
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| Veröffentlicht in: | Intensive care medicine 2011-02, Vol.37 (2), p.319-325 |
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| creator | Latour, Jos M. van Goudoever, Johannes B. Schuurman, Beatrix Elink Albers, Marcel J. I. J. van Dam, Nicolette A. M. Dullaart, Eugenie van Heerde, Marc Verlaat, Carin W. M. van Vught, Elise M. Hazelzet, Jan A. |
| description | Purpose
To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
Method
Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
Results
Parents were interviewed within 1 month after their child’s discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
Conclusions
The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care. |
| doi_str_mv | 10.1007/s00134-010-2074-3 |
| format | Article |
| fullrecord | <record><control><sourceid>gale_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_3028069</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><galeid>A724328279</galeid><sourcerecordid>A724328279</sourcerecordid><originalsourceid>FETCH-LOGICAL-c603t-3ac524c01fb2f6278b49346a40696482734d8e2796b97df08e8b062e862d1fc53</originalsourceid><addsrcrecordid>eNp1kk2PFCEQhjtG446rP8CLIRqPvfI10HMxmayfySZe9ExoKGbYdNO9QE_c-Oel7XHXTcZwgIKn3irgraqXBF8QjOW7hDFhvMYE1xRLXrNH1YpwRmtCWfO4WmHGac0Fp2fVs5SuCy3FmjytzijBggnJV9WvLbqZdOezzv4AKOXJ3iL4OXZD9GGH8h7mCKKHYCChwaFRRwj5z9LsfWdLhLTtfc5gUR5QgkPZ-TBls0cjWK9z9Ab5kCGkuYQp-WgKPqfn1ROnuwQvjvN59ePTx--XX-qrb5-_Xm6vaiMwyzXTZk25wcS11Akqm5ZvGBeaY7ERvKGScdsAlRvRbqR1uIGmxYJCI6glzqzZefV-0R2ntgdrSvtRd2qMvtfxVg3aq4cnwe_VbjgohmlTihSB10eBONxMkLK6HqYYSs-q4ZJzSjEr0JsF2ukOlA9uKFqm98moraTlV0qns1R9gtpBgFJ4COB82X7AX5zgy7DQe3MygSwJJg4pRXB39yRYza5Ri2tUcY2aXaPm1l_9-0B3GX9tUoC3R0AnozsXdTA-3XOsWWNJReHowqVxtg_E-4f6f_XfjTTZ_Q</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>847442203</pqid></control><display><type>article</type><title>A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units</title><source>MEDLINE</source><source>SpringerLink Journals - AutoHoldings</source><creator>Latour, Jos M. ; van Goudoever, Johannes B. ; Schuurman, Beatrix Elink ; Albers, Marcel J. I. J. ; van Dam, Nicolette A. M. ; Dullaart, Eugenie ; van Heerde, Marc ; Verlaat, Carin W. M. ; van Vught, Elise M. ; Hazelzet, Jan A.</creator><creatorcontrib>Latour, Jos M. ; van Goudoever, Johannes B. ; Schuurman, Beatrix Elink ; Albers, Marcel J. I. J. ; van Dam, Nicolette A. M. ; Dullaart, Eugenie ; van Heerde, Marc ; Verlaat, Carin W. M. ; van Vught, Elise M. ; Hazelzet, Jan A.</creatorcontrib><description>Purpose
To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
Method
Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
Results
Parents were interviewed within 1 month after their child’s discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
Conclusions
The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.</description><identifier>ISSN: 0342-4642</identifier><identifier>EISSN: 1432-1238</identifier><identifier>DOI: 10.1007/s00134-010-2074-3</identifier><identifier>PMID: 21063674</identifier><identifier>CODEN: ICMED9</identifier><language>eng</language><publisher>Berlin/Heidelberg: Springer-Verlag</publisher><subject>Academic Medical Centers ; Adult ; Analysis ; Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy ; Anesthesiology ; Attitude of Health Personnel ; Biological and medical sciences ; Child ; Child, Preschool ; Clinical death. Palliative care. Organ gift and preservation ; Consumer Behavior ; Critical Care Medicine ; Emergency Medicine ; Female ; Humans ; Infant ; Intensive ; Intensive care medicine ; Intensive Care Units, Pediatric - standards ; Interviews as Topic ; Male ; Medical centers ; Medical sciences ; Medicine ; Medicine & Public Health ; Middle Aged ; Neonatology ; Netherlands ; Pain Medicine ; Parenting ; Parents - psychology ; Pediatric intensive care ; Pediatric Original ; Pediatrics ; Pneumology/Respiratory System ; Qualitative research ; Quality of Health Care ; Stress, Psychological ; Young Adult</subject><ispartof>Intensive care medicine, 2011-02, Vol.37 (2), p.319-325</ispartof><rights>The Author(s) 2010</rights><rights>2015 INIST-CNRS</rights><rights>COPYRIGHT 2011 Springer</rights><rights>Copyright jointly held by Springer and ESICM 2011</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c603t-3ac524c01fb2f6278b49346a40696482734d8e2796b97df08e8b062e862d1fc53</citedby><cites>FETCH-LOGICAL-c603t-3ac524c01fb2f6278b49346a40696482734d8e2796b97df08e8b062e862d1fc53</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s00134-010-2074-3$$EPDF$$P50$$Gspringer$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s00134-010-2074-3$$EHTML$$P50$$Gspringer$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,27923,27924,41487,42556,51318</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=23850726$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21063674$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Latour, Jos M.</creatorcontrib><creatorcontrib>van Goudoever, Johannes B.</creatorcontrib><creatorcontrib>Schuurman, Beatrix Elink</creatorcontrib><creatorcontrib>Albers, Marcel J. I. J.</creatorcontrib><creatorcontrib>van Dam, Nicolette A. M.</creatorcontrib><creatorcontrib>Dullaart, Eugenie</creatorcontrib><creatorcontrib>van Heerde, Marc</creatorcontrib><creatorcontrib>Verlaat, Carin W. M.</creatorcontrib><creatorcontrib>van Vught, Elise M.</creatorcontrib><creatorcontrib>Hazelzet, Jan A.</creatorcontrib><title>A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units</title><title>Intensive care medicine</title><addtitle>Intensive Care Med</addtitle><addtitle>Intensive Care Med</addtitle><description>Purpose
To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
Method
Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
Results
Parents were interviewed within 1 month after their child’s discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
Conclusions
The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.</description><subject>Academic Medical Centers</subject><subject>Adult</subject><subject>Analysis</subject><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</subject><subject>Anesthesiology</subject><subject>Attitude of Health Personnel</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Clinical death. Palliative care. Organ gift and preservation</subject><subject>Consumer Behavior</subject><subject>Critical Care Medicine</subject><subject>Emergency Medicine</subject><subject>Female</subject><subject>Humans</subject><subject>Infant</subject><subject>Intensive</subject><subject>Intensive care medicine</subject><subject>Intensive Care Units, Pediatric - standards</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Medical centers</subject><subject>Medical sciences</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Middle Aged</subject><subject>Neonatology</subject><subject>Netherlands</subject><subject>Pain Medicine</subject><subject>Parenting</subject><subject>Parents - psychology</subject><subject>Pediatric intensive care</subject><subject>Pediatric Original</subject><subject>Pediatrics</subject><subject>Pneumology/Respiratory System</subject><subject>Qualitative research</subject><subject>Quality of Health Care</subject><subject>Stress, Psychological</subject><subject>Young Adult</subject><issn>0342-4642</issn><issn>1432-1238</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>C6C</sourceid><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><recordid>eNp1kk2PFCEQhjtG446rP8CLIRqPvfI10HMxmayfySZe9ExoKGbYdNO9QE_c-Oel7XHXTcZwgIKn3irgraqXBF8QjOW7hDFhvMYE1xRLXrNH1YpwRmtCWfO4WmHGac0Fp2fVs5SuCy3FmjytzijBggnJV9WvLbqZdOezzv4AKOXJ3iL4OXZD9GGH8h7mCKKHYCChwaFRRwj5z9LsfWdLhLTtfc5gUR5QgkPZ-TBls0cjWK9z9Ab5kCGkuYQp-WgKPqfn1ROnuwQvjvN59ePTx--XX-qrb5-_Xm6vaiMwyzXTZk25wcS11Akqm5ZvGBeaY7ERvKGScdsAlRvRbqR1uIGmxYJCI6glzqzZefV-0R2ntgdrSvtRd2qMvtfxVg3aq4cnwe_VbjgohmlTihSB10eBONxMkLK6HqYYSs-q4ZJzSjEr0JsF2ukOlA9uKFqm98moraTlV0qns1R9gtpBgFJ4COB82X7AX5zgy7DQe3MygSwJJg4pRXB39yRYza5Ri2tUcY2aXaPm1l_9-0B3GX9tUoC3R0AnozsXdTA-3XOsWWNJReHowqVxtg_E-4f6f_XfjTTZ_Q</recordid><startdate>20110201</startdate><enddate>20110201</enddate><creator>Latour, Jos M.</creator><creator>van Goudoever, Johannes B.</creator><creator>Schuurman, Beatrix Elink</creator><creator>Albers, Marcel J. I. J.</creator><creator>van Dam, Nicolette A. M.</creator><creator>Dullaart, Eugenie</creator><creator>van Heerde, Marc</creator><creator>Verlaat, Carin W. M.</creator><creator>van Vught, Elise M.</creator><creator>Hazelzet, Jan A.</creator><general>Springer-Verlag</general><general>Springer</general><general>Springer Nature B.V</general><scope>C6C</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8FD</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>M7Z</scope><scope>NAPCQ</scope><scope>P64</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>5PM</scope></search><sort><creationdate>20110201</creationdate><title>A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units</title><author>Latour, Jos M. ; van Goudoever, Johannes B. ; Schuurman, Beatrix Elink ; Albers, Marcel J. I. J. ; van Dam, Nicolette A. M. ; Dullaart, Eugenie ; van Heerde, Marc ; Verlaat, Carin W. M. ; van Vught, Elise M. ; Hazelzet, Jan A.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c603t-3ac524c01fb2f6278b49346a40696482734d8e2796b97df08e8b062e862d1fc53</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Academic Medical Centers</topic><topic>Adult</topic><topic>Analysis</topic><topic>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</topic><topic>Anesthesiology</topic><topic>Attitude of Health Personnel</topic><topic>Biological and medical sciences</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Clinical death. Palliative care. Organ gift and preservation</topic><topic>Consumer Behavior</topic><topic>Critical Care Medicine</topic><topic>Emergency Medicine</topic><topic>Female</topic><topic>Humans</topic><topic>Infant</topic><topic>Intensive</topic><topic>Intensive care medicine</topic><topic>Intensive Care Units, Pediatric - standards</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Medical centers</topic><topic>Medical sciences</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Middle Aged</topic><topic>Neonatology</topic><topic>Netherlands</topic><topic>Pain Medicine</topic><topic>Parenting</topic><topic>Parents - psychology</topic><topic>Pediatric intensive care</topic><topic>Pediatric Original</topic><topic>Pediatrics</topic><topic>Pneumology/Respiratory System</topic><topic>Qualitative research</topic><topic>Quality of Health Care</topic><topic>Stress, Psychological</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Latour, Jos M.</creatorcontrib><creatorcontrib>van Goudoever, Johannes B.</creatorcontrib><creatorcontrib>Schuurman, Beatrix Elink</creatorcontrib><creatorcontrib>Albers, Marcel J. I. J.</creatorcontrib><creatorcontrib>van Dam, Nicolette A. M.</creatorcontrib><creatorcontrib>Dullaart, Eugenie</creatorcontrib><creatorcontrib>van Heerde, Marc</creatorcontrib><creatorcontrib>Verlaat, Carin W. M.</creatorcontrib><creatorcontrib>van Vught, Elise M.</creatorcontrib><creatorcontrib>Hazelzet, Jan A.</creatorcontrib><collection>Springer Nature OA Free Journals</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Technology Research Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Biochemistry Abstracts 1</collection><collection>Nursing & Allied Health Premium</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Intensive care medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Latour, Jos M.</au><au>van Goudoever, Johannes B.</au><au>Schuurman, Beatrix Elink</au><au>Albers, Marcel J. I. J.</au><au>van Dam, Nicolette A. M.</au><au>Dullaart, Eugenie</au><au>van Heerde, Marc</au><au>Verlaat, Carin W. M.</au><au>van Vught, Elise M.</au><au>Hazelzet, Jan A.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units</atitle><jtitle>Intensive care medicine</jtitle><stitle>Intensive Care Med</stitle><addtitle>Intensive Care Med</addtitle><date>2011-02-01</date><risdate>2011</risdate><volume>37</volume><issue>2</issue><spage>319</spage><epage>325</epage><pages>319-325</pages><issn>0342-4642</issn><eissn>1432-1238</eissn><coden>ICMED9</coden><abstract>Purpose
To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
Method
Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
Results
Parents were interviewed within 1 month after their child’s discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
Conclusions
The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.</abstract><cop>Berlin/Heidelberg</cop><pub>Springer-Verlag</pub><pmid>21063674</pmid><doi>10.1007/s00134-010-2074-3</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | Intensive care medicine, 2011-02, Vol.37 (2), p.319-325 |
| issn | 0342-4642 1432-1238 |
| language | eng |
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| subjects | Academic Medical Centers Adult Analysis Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy Anesthesiology Attitude of Health Personnel Biological and medical sciences Child Child, Preschool Clinical death. Palliative care. Organ gift and preservation Consumer Behavior Critical Care Medicine Emergency Medicine Female Humans Infant Intensive Intensive care medicine Intensive Care Units, Pediatric - standards Interviews as Topic Male Medical centers Medical sciences Medicine Medicine & Public Health Middle Aged Neonatology Netherlands Pain Medicine Parenting Parents - psychology Pediatric intensive care Pediatric Original Pediatrics Pneumology/Respiratory System Qualitative research Quality of Health Care Stress, Psychological Young Adult |
| title | A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units |
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