The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular Module

Abstract For Phase II and III clinical trials in children with Spinal Muscular Atrophy (SMA), reliable and valid outcome measures are necessary. Since 2000, the American Spinal Muscular Atrophy Randomized Trials (AmSMART) group has established reliability and validity for measures of strength, lung...

Ausführliche Beschreibung

Gespeichert in:

Bibliographische Detailangaben
Veröffentlicht in:	Neuromuscular disorders : NMD 2009-12, Vol.19 (12), p.805-812
Hauptverfasser:	Iannaccone, Susan T, Hynan, Linda S, Morton, Anne, Buchanan, Renee, Limbers, Christine A, Varni, James W
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Age Factors Chemistry, Analytic Child Child, Preschool Dyskinesias - diagnosis Dyskinesias - psychology Feasibility Studies Female Health-related quality of life Humans Male Neurology Neuromuscular Module Outcome measures Parents PedsQL™ (Pediatric Quality of Life Inventory™) Quality of Life Reproducibility of Results Spinal Muscular Atrophies of Childhood - diagnosis Spinal Muscular Atrophies of Childhood - psychology Spinal Muscular Atrophy
Online-Zugang:	Volltext
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!

Schreiben Sie den ersten Kommentar!