Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients
Question prompt lists (QPLs) have been shown to be an inexpensive and effective communication tool for patients in oncology consultations. We aimed to develop and pilot a QPL for palliative care (PC) patients. In order to identify suitable questions for inclusion in the QPL, we conducted focus group...
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| Veröffentlicht in: | British journal of cancer 2003-12, Vol.89 (11), p.2069-2077 |
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| creator | Clayton, J Butow, P Tattersall, M Chye, R Noel, M Davis, J M Glare, P |
| description | Question prompt lists (QPLs) have been shown to be an inexpensive and effective communication tool for patients in oncology consultations. We aimed to develop and pilot a QPL for palliative care (PC) patients. In order to identify suitable questions for inclusion in the QPL, we conducted focus groups and individual interviews with 19 patients, 24 carers and 22 PC health professionals. A further 21 health professionals reviewed the draft document. The draft QPL was piloted in 23 patients. In total, 112 questions were identified and grouped into eight categories. All participants felt that the QPL, in booklet form, could be a useful tool. Out of 23 patients in the pilot study, 22 agreed that the QPL was helpful, contained useful questions, was easy to understand and would be useful in the future. State anxiety (STAI) decreased after receiving the booklet and seeing the doctor in 16 out of 19 patients (overall anxiety decreased by a median of 8, IQR 1–13). Participants in the pilot study endorsed the inclusion of end-of-life issues in the QPL, despite some reservations expressed about this by health professionals in the individual interviews. We have identified a specific QPL that might facilitate useful dialogue between PC patients and their doctor. The QPL has strong support from patients, their carers and relevant health professionals. |
| doi_str_mv | 10.1038/sj.bjc.6601380 |
| format | Article |
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We aimed to develop and pilot a QPL for palliative care (PC) patients. In order to identify suitable questions for inclusion in the QPL, we conducted focus groups and individual interviews with 19 patients, 24 carers and 22 PC health professionals. A further 21 health professionals reviewed the draft document. The draft QPL was piloted in 23 patients. In total, 112 questions were identified and grouped into eight categories. All participants felt that the QPL, in booklet form, could be a useful tool. Out of 23 patients in the pilot study, 22 agreed that the QPL was helpful, contained useful questions, was easy to understand and would be useful in the future. State anxiety (STAI) decreased after receiving the booklet and seeing the doctor in 16 out of 19 patients (overall anxiety decreased by a median of 8, IQR 1–13). Participants in the pilot study endorsed the inclusion of end-of-life issues in the QPL, despite some reservations expressed about this by health professionals in the individual interviews. We have identified a specific QPL that might facilitate useful dialogue between PC patients and their doctor. The QPL has strong support from patients, their carers and relevant health professionals.</description><identifier>ISSN: 0007-0920</identifier><identifier>EISSN: 1532-1827</identifier><identifier>DOI: 10.1038/sj.bjc.6601380</identifier><identifier>PMID: 14647140</identifier><identifier>CODEN: BJCAAI</identifier><language>eng</language><publisher>London: Nature Publishing Group UK</publisher><subject>Adult ; Biological and medical sciences ; Biomedical and Life Sciences ; Biomedicine ; Cancer Research ; Caregivers ; Clinical ; Communication ; Drug Resistance ; Epidemiology ; Female ; Humans ; Male ; Medical sciences ; Middle Aged ; Molecular Medicine ; Neoplasms - psychology ; Neoplasms - therapy ; Oncology ; Palliative Care ; Patient Participation ; Physician-Patient Relations ; Surveys and Questionnaires ; Tumors</subject><ispartof>British journal of cancer, 2003-12, Vol.89 (11), p.2069-2077</ispartof><rights>The Author(s) 2003</rights><rights>2004 INIST-CNRS</rights><rights>Copyright Nature Publishing Group Dec 1, 2003</rights><rights>Copyright © 2003 Cancer Research UK 2003 Cancer Research UK</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c505t-83b9f0de54feb205cf10e380e371d014776e9c5bfb1ee111979fd8dff727d9ed3</citedby><cites>FETCH-LOGICAL-c505t-83b9f0de54feb205cf10e380e371d014776e9c5bfb1ee111979fd8dff727d9ed3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC2376858/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC2376858/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,2727,27924,27925,53791,53793</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=15333688$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/14647140$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Clayton, J</creatorcontrib><creatorcontrib>Butow, P</creatorcontrib><creatorcontrib>Tattersall, M</creatorcontrib><creatorcontrib>Chye, R</creatorcontrib><creatorcontrib>Noel, M</creatorcontrib><creatorcontrib>Davis, J M</creatorcontrib><creatorcontrib>Glare, P</creatorcontrib><title>Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients</title><title>British journal of cancer</title><addtitle>Br J Cancer</addtitle><addtitle>Br J Cancer</addtitle><description>Question prompt lists (QPLs) have been shown to be an inexpensive and effective communication tool for patients in oncology consultations. We aimed to develop and pilot a QPL for palliative care (PC) patients. In order to identify suitable questions for inclusion in the QPL, we conducted focus groups and individual interviews with 19 patients, 24 carers and 22 PC health professionals. A further 21 health professionals reviewed the draft document. The draft QPL was piloted in 23 patients. In total, 112 questions were identified and grouped into eight categories. All participants felt that the QPL, in booklet form, could be a useful tool. Out of 23 patients in the pilot study, 22 agreed that the QPL was helpful, contained useful questions, was easy to understand and would be useful in the future. State anxiety (STAI) decreased after receiving the booklet and seeing the doctor in 16 out of 19 patients (overall anxiety decreased by a median of 8, IQR 1–13). Participants in the pilot study endorsed the inclusion of end-of-life issues in the QPL, despite some reservations expressed about this by health professionals in the individual interviews. We have identified a specific QPL that might facilitate useful dialogue between PC patients and their doctor. 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Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>British journal of cancer</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Clayton, J</au><au>Butow, P</au><au>Tattersall, M</au><au>Chye, R</au><au>Noel, M</au><au>Davis, J M</au><au>Glare, P</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients</atitle><jtitle>British journal of cancer</jtitle><stitle>Br J Cancer</stitle><addtitle>Br J Cancer</addtitle><date>2003-12-01</date><risdate>2003</risdate><volume>89</volume><issue>11</issue><spage>2069</spage><epage>2077</epage><pages>2069-2077</pages><issn>0007-0920</issn><eissn>1532-1827</eissn><coden>BJCAAI</coden><abstract>Question prompt lists (QPLs) have been shown to be an inexpensive and effective communication tool for patients in oncology consultations. We aimed to develop and pilot a QPL for palliative care (PC) patients. In order to identify suitable questions for inclusion in the QPL, we conducted focus groups and individual interviews with 19 patients, 24 carers and 22 PC health professionals. A further 21 health professionals reviewed the draft document. The draft QPL was piloted in 23 patients. In total, 112 questions were identified and grouped into eight categories. All participants felt that the QPL, in booklet form, could be a useful tool. Out of 23 patients in the pilot study, 22 agreed that the QPL was helpful, contained useful questions, was easy to understand and would be useful in the future. State anxiety (STAI) decreased after receiving the booklet and seeing the doctor in 16 out of 19 patients (overall anxiety decreased by a median of 8, IQR 1–13). Participants in the pilot study endorsed the inclusion of end-of-life issues in the QPL, despite some reservations expressed about this by health professionals in the individual interviews. We have identified a specific QPL that might facilitate useful dialogue between PC patients and their doctor. The QPL has strong support from patients, their carers and relevant health professionals.</abstract><cop>London</cop><pub>Nature Publishing Group UK</pub><pmid>14647140</pmid><doi>10.1038/sj.bjc.6601380</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| source | MEDLINE; Nature; PubMed (Medline); Free E-Journal (出版社公開部分のみ） |
| subjects | Adult Biological and medical sciences Biomedical and Life Sciences Biomedicine Cancer Research Caregivers Clinical Communication Drug Resistance Epidemiology Female Humans Male Medical sciences Middle Aged Molecular Medicine Neoplasms - psychology Neoplasms - therapy Oncology Palliative Care Patient Participation Physician-Patient Relations Surveys and Questionnaires Tumors |
| title | Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients |
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