Favourable social functioning and health related quality of life of patients with JIA in early adulthood
Objective: To evaluate the social functioning and health related quality of life (HRQoL) in patients with juvenile idiopathic arthritis (JIA) in early adulthood. Methods: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976–1980 diagnosed as having...
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| Veröffentlicht in: | Annals of the rheumatic diseases 2005-06, Vol.64 (6), p.875-880 |
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| container_title | Annals of the rheumatic diseases |
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| creator | Arkela-Kautiainen, M Haapasaari, J Kautiainen, H Vilkkumaa, I Mälkiä, E Leirisalo-Repo, M |
| description | Objective: To evaluate the social functioning and health related quality of life (HRQoL) in patients with juvenile idiopathic arthritis (JIA) in early adulthood. Methods: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976–1980 diagnosed as having JIA. HRQoL was measured by the RAND 36-item health survey 1.0; spousal relationships and educational and employment status were assessed by questionnaire. The patients were invited to a follow up study. Age and sex matched controls from the community were identified in the Finnish population registry. Results: Of 187 patients identified, 123 participated. Spousal relationships, educational level, and employment status were similar to controls. HRQoL in JIA patients was similar to controls except on the physical functioning scale. At follow up 35% of patients were in remission. Patients with active disease had poorer HRQoL in the physical component than those in remission or controls. The extended oligoarthritis group had the lowest physical and mental score in HRQoL compared with the other JIA subgroups. The patient’s own evaluation was the explanatory factor in both the physical and mental component of HRQoL. Conclusion: Social functioning and HRQoL were similar in JIA patients and age, sex, and municipality matched controls. However, patients with extended oligoarthritis attained significantly lower scores in the physical and mental component of HRQoL than oligo- or polyarthritis patients. Special attention in everyday care should be paid to those patients who have active disease or the extended oligoarthritis type of disease. |
| doi_str_mv | 10.1136/ard.2004.026591 |
| format | Article |
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Methods: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976–1980 diagnosed as having JIA. HRQoL was measured by the RAND 36-item health survey 1.0; spousal relationships and educational and employment status were assessed by questionnaire. The patients were invited to a follow up study. Age and sex matched controls from the community were identified in the Finnish population registry. Results: Of 187 patients identified, 123 participated. Spousal relationships, educational level, and employment status were similar to controls. HRQoL in JIA patients was similar to controls except on the physical functioning scale. At follow up 35% of patients were in remission. Patients with active disease had poorer HRQoL in the physical component than those in remission or controls. The extended oligoarthritis group had the lowest physical and mental score in HRQoL compared with the other JIA subgroups. The patient’s own evaluation was the explanatory factor in both the physical and mental component of HRQoL. Conclusion: Social functioning and HRQoL were similar in JIA patients and age, sex, and municipality matched controls. However, patients with extended oligoarthritis attained significantly lower scores in the physical and mental component of HRQoL than oligo- or polyarthritis patients. Special attention in everyday care should be paid to those patients who have active disease or the extended oligoarthritis type of disease.</description><identifier>ISSN: 0003-4967</identifier><identifier>EISSN: 1468-2060</identifier><identifier>DOI: 10.1136/ard.2004.026591</identifier><identifier>PMID: 15897308</identifier><identifier>CODEN: ARDIAO</identifier><language>eng</language><publisher>London: BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><subject>Adult ; Age ; Arthritis ; Arthritis, Juvenile - psychology ; Arthritis, Juvenile - rehabilitation ; Biological and medical sciences ; Disease ; Diseases of the osteoarticular system ; Education ; Educational Status ; Employment ; Extended Report ; Female ; Finn-AIMS2 ; Finnish version of the arthritis impact measurement scales questionnaire ; health related quality of life ; Health Surveys ; Hospitals ; HRQoL ; Humans ; Inflammatory joint diseases ; Interpersonal Relations ; JIA ; juvenile arthritis ; juvenile idiopathic arthritis ; Logistic Models ; Male ; Marital Status ; MCS ; Medical sciences ; mental component scales ; Patients ; PCS ; physical component scales ; QoL ; Quality of Life ; RAND 36 item health survey 1.0 questionnaire ; RAND-36 ; Rehabilitation ; Severity of Illness Index ; social functioning ; Studies ; young adult ; Young adults</subject><ispartof>Annals of the rheumatic diseases, 2005-06, Vol.64 (6), p.875-880</ispartof><rights>Copyright 2005 by Annals of the Rheumatic Diseases</rights><rights>2005 INIST-CNRS</rights><rights>Copyright: 2005 Copyright 2005 by Annals of the Rheumatic Diseases</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b522t-112a8e7d5f88f084cc62e989f65a49aa65ce7153c26c33e4a4d912503ca1259c3</citedby><cites>FETCH-LOGICAL-b522t-112a8e7d5f88f084cc62e989f65a49aa65ce7153c26c33e4a4d912503ca1259c3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC1755522/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC1755522/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,724,777,781,882,27905,27906,53772,53774</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=16808618$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/15897308$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Arkela-Kautiainen, M</creatorcontrib><creatorcontrib>Haapasaari, J</creatorcontrib><creatorcontrib>Kautiainen, H</creatorcontrib><creatorcontrib>Vilkkumaa, I</creatorcontrib><creatorcontrib>Mälkiä, E</creatorcontrib><creatorcontrib>Leirisalo-Repo, M</creatorcontrib><title>Favourable social functioning and health related quality of life of patients with JIA in early adulthood</title><title>Annals of the rheumatic diseases</title><addtitle>Ann Rheum Dis</addtitle><description>Objective: To evaluate the social functioning and health related quality of life (HRQoL) in patients with juvenile idiopathic arthritis (JIA) in early adulthood. Methods: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976–1980 diagnosed as having JIA. HRQoL was measured by the RAND 36-item health survey 1.0; spousal relationships and educational and employment status were assessed by questionnaire. The patients were invited to a follow up study. Age and sex matched controls from the community were identified in the Finnish population registry. Results: Of 187 patients identified, 123 participated. Spousal relationships, educational level, and employment status were similar to controls. HRQoL in JIA patients was similar to controls except on the physical functioning scale. At follow up 35% of patients were in remission. Patients with active disease had poorer HRQoL in the physical component than those in remission or controls. The extended oligoarthritis group had the lowest physical and mental score in HRQoL compared with the other JIA subgroups. The patient’s own evaluation was the explanatory factor in both the physical and mental component of HRQoL. Conclusion: Social functioning and HRQoL were similar in JIA patients and age, sex, and municipality matched controls. However, patients with extended oligoarthritis attained significantly lower scores in the physical and mental component of HRQoL than oligo- or polyarthritis patients. Special attention in everyday care should be paid to those patients who have active disease or the extended oligoarthritis type of disease.</description><subject>Adult</subject><subject>Age</subject><subject>Arthritis</subject><subject>Arthritis, Juvenile - psychology</subject><subject>Arthritis, Juvenile - rehabilitation</subject><subject>Biological and medical sciences</subject><subject>Disease</subject><subject>Diseases of the osteoarticular system</subject><subject>Education</subject><subject>Educational Status</subject><subject>Employment</subject><subject>Extended Report</subject><subject>Female</subject><subject>Finn-AIMS2</subject><subject>Finnish version of the arthritis impact measurement scales questionnaire</subject><subject>health related quality of life</subject><subject>Health Surveys</subject><subject>Hospitals</subject><subject>HRQoL</subject><subject>Humans</subject><subject>Inflammatory joint diseases</subject><subject>Interpersonal Relations</subject><subject>JIA</subject><subject>juvenile arthritis</subject><subject>juvenile idiopathic arthritis</subject><subject>Logistic Models</subject><subject>Male</subject><subject>Marital Status</subject><subject>MCS</subject><subject>Medical sciences</subject><subject>mental component scales</subject><subject>Patients</subject><subject>PCS</subject><subject>physical component scales</subject><subject>QoL</subject><subject>Quality of Life</subject><subject>RAND 36 item health survey 1.0 questionnaire</subject><subject>RAND-36</subject><subject>Rehabilitation</subject><subject>Severity of Illness Index</subject><subject>social functioning</subject><subject>Studies</subject><subject>young adult</subject><subject>Young adults</subject><issn>0003-4967</issn><issn>1468-2060</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2005</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNqFkc1vEzEQxS0EoqFw5oYsITggbeqPtde-IFWBlFYVHAhcrYnX2zg469TeLeS_x1GiFrhwGlnzm6f3_BB6ScmUUi7PILVTRkg9JUwKTR-hCa2lqhiR5DGaEEJ4VWvZnKBnOa_LkyiqnqITKpRuOFETtJrDXRwTLIPDOVoPAXdjbwcfe9_fYOhbvHIQhhVOLsDgWnw7QvDDDscOB9-5_dzC4F0_ZPzTF_Dq8hz7HjtIYYehHctxjO1z9KSDkN2L4zxF3-YfF7NP1fWXi8vZ-XW1FIwNFaUMlGta0SnVEVVbK5nTSndSQK0BpLCuoYJbJi3nroa61ZQJwi2UoS0_Re8PuttxuXGtLb4SBLNNfgNpZyJ48_em9ytzE-8MbYQoForA26NAirejy4PZ-GxdCNC7OGYjG8UZk7SAr_8B1-Un-xKuaDWNqmWtVaHODpRNMefkunsrlJh9h6Z0aPYdmkOH5eLVnwke-GNpBXhzBCBbCF2C3vr8wElFlKR7rjpwPg_u1_0e0o8SgjfCfP4-M_rrYv5hcXFlZOHfHfjlZv1fl78Bk73Bqg</recordid><startdate>20050601</startdate><enddate>20050601</enddate><creator>Arkela-Kautiainen, M</creator><creator>Haapasaari, J</creator><creator>Kautiainen, H</creator><creator>Vilkkumaa, I</creator><creator>Mälkiä, E</creator><creator>Leirisalo-Repo, M</creator><general>BMJ Publishing Group Ltd and European League Against Rheumatism</general><general>BMJ</general><general>Elsevier Limited</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88I</scope><scope>8AF</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>BTHHO</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>K9-</scope><scope>K9.</scope><scope>LK8</scope><scope>M0R</scope><scope>M0S</scope><scope>M1P</scope><scope>M2P</scope><scope>M7P</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20050601</creationdate><title>Favourable social functioning and health related quality of life of patients with JIA in early adulthood</title><author>Arkela-Kautiainen, M ; Haapasaari, J ; Kautiainen, H ; Vilkkumaa, I ; Mälkiä, E ; Leirisalo-Repo, M</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b522t-112a8e7d5f88f084cc62e989f65a49aa65ce7153c26c33e4a4d912503ca1259c3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2005</creationdate><topic>Adult</topic><topic>Age</topic><topic>Arthritis</topic><topic>Arthritis, Juvenile - psychology</topic><topic>Arthritis, Juvenile - rehabilitation</topic><topic>Biological and medical sciences</topic><topic>Disease</topic><topic>Diseases of the osteoarticular system</topic><topic>Education</topic><topic>Educational Status</topic><topic>Employment</topic><topic>Extended Report</topic><topic>Female</topic><topic>Finn-AIMS2</topic><topic>Finnish version of the arthritis impact measurement scales questionnaire</topic><topic>health related quality of life</topic><topic>Health Surveys</topic><topic>Hospitals</topic><topic>HRQoL</topic><topic>Humans</topic><topic>Inflammatory joint diseases</topic><topic>Interpersonal Relations</topic><topic>JIA</topic><topic>juvenile arthritis</topic><topic>juvenile idiopathic arthritis</topic><topic>Logistic Models</topic><topic>Male</topic><topic>Marital Status</topic><topic>MCS</topic><topic>Medical sciences</topic><topic>mental component scales</topic><topic>Patients</topic><topic>PCS</topic><topic>physical component scales</topic><topic>QoL</topic><topic>Quality of Life</topic><topic>RAND 36 item health survey 1.0 questionnaire</topic><topic>RAND-36</topic><topic>Rehabilitation</topic><topic>Severity of Illness Index</topic><topic>social functioning</topic><topic>Studies</topic><topic>young adult</topic><topic>Young adults</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Arkela-Kautiainen, M</creatorcontrib><creatorcontrib>Haapasaari, J</creatorcontrib><creatorcontrib>Kautiainen, H</creatorcontrib><creatorcontrib>Vilkkumaa, I</creatorcontrib><creatorcontrib>Mälkiä, E</creatorcontrib><creatorcontrib>Leirisalo-Repo, M</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Science Database (Alumni Edition)</collection><collection>STEM Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>BMJ Journals</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>SciTech Premium Collection</collection><collection>Consumer Health Database (Alumni Edition)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>ProQuest Biological Science Collection</collection><collection>Consumer Health Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Science Database</collection><collection>Biological Science Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Annals of the rheumatic diseases</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Arkela-Kautiainen, M</au><au>Haapasaari, J</au><au>Kautiainen, H</au><au>Vilkkumaa, I</au><au>Mälkiä, E</au><au>Leirisalo-Repo, M</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Favourable social functioning and health related quality of life of patients with JIA in early adulthood</atitle><jtitle>Annals of the rheumatic diseases</jtitle><addtitle>Ann Rheum Dis</addtitle><date>2005-06-01</date><risdate>2005</risdate><volume>64</volume><issue>6</issue><spage>875</spage><epage>880</epage><pages>875-880</pages><issn>0003-4967</issn><eissn>1468-2060</eissn><coden>ARDIAO</coden><abstract>Objective: To evaluate the social functioning and health related quality of life (HRQoL) in patients with juvenile idiopathic arthritis (JIA) in early adulthood. Methods: The patient files of the Rheumatism Foundation Hospital were screened to identify patients born in 1976–1980 diagnosed as having JIA. HRQoL was measured by the RAND 36-item health survey 1.0; spousal relationships and educational and employment status were assessed by questionnaire. The patients were invited to a follow up study. Age and sex matched controls from the community were identified in the Finnish population registry. Results: Of 187 patients identified, 123 participated. Spousal relationships, educational level, and employment status were similar to controls. HRQoL in JIA patients was similar to controls except on the physical functioning scale. At follow up 35% of patients were in remission. Patients with active disease had poorer HRQoL in the physical component than those in remission or controls. The extended oligoarthritis group had the lowest physical and mental score in HRQoL compared with the other JIA subgroups. The patient’s own evaluation was the explanatory factor in both the physical and mental component of HRQoL. Conclusion: Social functioning and HRQoL were similar in JIA patients and age, sex, and municipality matched controls. However, patients with extended oligoarthritis attained significantly lower scores in the physical and mental component of HRQoL than oligo- or polyarthritis patients. Special attention in everyday care should be paid to those patients who have active disease or the extended oligoarthritis type of disease.</abstract><cop>London</cop><pub>BMJ Publishing Group Ltd and European League Against Rheumatism</pub><pmid>15897308</pmid><doi>10.1136/ard.2004.026591</doi><tpages>6</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adult Age Arthritis Arthritis, Juvenile - psychology Arthritis, Juvenile - rehabilitation Biological and medical sciences Disease Diseases of the osteoarticular system Education Educational Status Employment Extended Report Female Finn-AIMS2 Finnish version of the arthritis impact measurement scales questionnaire health related quality of life Health Surveys Hospitals HRQoL Humans Inflammatory joint diseases Interpersonal Relations JIA juvenile arthritis juvenile idiopathic arthritis Logistic Models Male Marital Status MCS Medical sciences mental component scales Patients PCS physical component scales QoL Quality of Life RAND 36 item health survey 1.0 questionnaire RAND-36 Rehabilitation Severity of Illness Index social functioning Studies young adult Young adults |
| title | Favourable social functioning and health related quality of life of patients with JIA in early adulthood |
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