Evidence based medicine and justice: a framework for looking at the impact of EBM upon vulnerable or disadvantaged groups
This article examines the implicit promises of fairness in evidence based medicine (EBM), namely to avoid discrimination through objective processes, and to distribute effective treatments fairly. The relationship between EBM and vulnerable groups (such as those disadvantaged by virtue of poverty, e...
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Veröffentlicht in: | Journal of medical ethics 2004-04, Vol.30 (2), p.141-145 |
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description | This article examines the implicit promises of fairness in evidence based medicine (EBM), namely to avoid discrimination through objective processes, and to distribute effective treatments fairly. The relationship between EBM and vulnerable groups (such as those disadvantaged by virtue of poverty, ethnicity, age, gender, mental health problems or similar) is examined. Several aspects of EBM are explored: the way evidence is created (commissioning and design of, and participation in research), and the way evidence is applied in clinical care and health policy. This analysis suggests that EBM turns our attention away from social and cultural factors that influence health and focuses on a narrow biomedical and individualistic model of health. Those with the greatest burden of ill health are left disenfranchised, as there is little research that is relevant to them, there is poor access to treatments, and attention is diverted away from activities that might have a much greater impact on their health. |
doi_str_mv | 10.1136/jme.2003.007062 |
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Those with the greatest burden of ill health are left disenfranchised, as there is little research that is relevant to them, there is poor access to treatments, and attention is diverted away from activities that might have a much greater impact on their health.</description><identifier>ISSN: 0306-6800</identifier><identifier>EISSN: 1473-4257</identifier><identifier>DOI: 10.1136/jme.2003.007062</identifier><identifier>PMID: 15082806</identifier><identifier>CODEN: JMETDR</identifier><language>eng</language><publisher>England: BMJ Publishing Group Ltd and Institute of Medical Ethics</publisher><subject>Bioethics ; Cancer ; Clinical trials ; Consumer research ; Cost of Illness ; Culture ; ethics ; Ethics, Research ; Ethnicity ; Evidence based medicine ; Evidence-Based Medicine - ethics ; Experimentation ; Gender ; Health Care Rationing - ethics ; Health Priorities - economics ; Health Priorities - ethics ; Health Services Accessibility - economics ; Health Services Accessibility - ethics ; Humans ; justice ; Medical ethics ; Medical research ; Medicine ; Older adults ; Participation ; Population ; Prejudice ; Psychoeducational intervention ; Research design ; Research methodology ; Social Justice - ethics ; Socioeconomic factors ; Studies ; Symposium on Evidence Based Medicine ; vulnerable groups ; Vulnerable Populations</subject><ispartof>Journal of medical ethics, 2004-04, Vol.30 (2), p.141-145</ispartof><rights>Copyright 2004 by the Journal of Medical Ethics</rights><rights>Copyright 2004 BMJ Publishing Group & Institute of Medical Ethics</rights><rights>COPYRIGHT 2004 BMJ Publishing Group Ltd.</rights><rights>Copyright: 2004 Copyright 2004 by the Journal of Medical Ethics</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b482t-d08e9c202d0215eeac31dc1dfd85c36ef45ee7e86dd873ffeb64d03c5704c7543</citedby><cites>FETCH-LOGICAL-b482t-d08e9c202d0215eeac31dc1dfd85c36ef45ee7e86dd873ffeb64d03c5704c7543</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/27719164$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/27719164$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>230,314,727,780,784,803,885,27924,27925,53791,53793,58017,58250</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/15082806$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Rogers, W A</creatorcontrib><title>Evidence based medicine and justice: a framework for looking at the impact of EBM upon vulnerable or disadvantaged groups</title><title>Journal of medical ethics</title><addtitle>J Med Ethics</addtitle><description>This article examines the implicit promises of fairness in evidence based medicine (EBM), namely to avoid discrimination through objective processes, and to distribute effective treatments fairly. The relationship between EBM and vulnerable groups (such as those disadvantaged by virtue of poverty, ethnicity, age, gender, mental health problems or similar) is examined. Several aspects of EBM are explored: the way evidence is created (commissioning and design of, and participation in research), and the way evidence is applied in clinical care and health policy. This analysis suggests that EBM turns our attention away from social and cultural factors that influence health and focuses on a narrow biomedical and individualistic model of health. Those with the greatest burden of ill health are left disenfranchised, as there is little research that is relevant to them, there is poor access to treatments, and attention is diverted away from activities that might have a much greater impact on their health.</description><subject>Bioethics</subject><subject>Cancer</subject><subject>Clinical trials</subject><subject>Consumer research</subject><subject>Cost of Illness</subject><subject>Culture</subject><subject>ethics</subject><subject>Ethics, Research</subject><subject>Ethnicity</subject><subject>Evidence based medicine</subject><subject>Evidence-Based Medicine - ethics</subject><subject>Experimentation</subject><subject>Gender</subject><subject>Health Care Rationing - ethics</subject><subject>Health Priorities - economics</subject><subject>Health Priorities - ethics</subject><subject>Health Services Accessibility - economics</subject><subject>Health Services Accessibility - ethics</subject><subject>Humans</subject><subject>justice</subject><subject>Medical ethics</subject><subject>Medical research</subject><subject>Medicine</subject><subject>Older adults</subject><subject>Participation</subject><subject>Population</subject><subject>Prejudice</subject><subject>Psychoeducational intervention</subject><subject>Research design</subject><subject>Research methodology</subject><subject>Social Justice - 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ethics</topic><topic>Experimentation</topic><topic>Gender</topic><topic>Health Care Rationing - ethics</topic><topic>Health Priorities - economics</topic><topic>Health Priorities - ethics</topic><topic>Health Services Accessibility - economics</topic><topic>Health Services Accessibility - ethics</topic><topic>Humans</topic><topic>justice</topic><topic>Medical ethics</topic><topic>Medical research</topic><topic>Medicine</topic><topic>Older adults</topic><topic>Participation</topic><topic>Population</topic><topic>Prejudice</topic><topic>Psychoeducational intervention</topic><topic>Research design</topic><topic>Research methodology</topic><topic>Social Justice - ethics</topic><topic>Socioeconomic factors</topic><topic>Studies</topic><topic>Symposium on Evidence Based Medicine</topic><topic>vulnerable groups</topic><topic>Vulnerable Populations</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rogers, W A</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Science Database (Alumni Edition)</collection><collection>Social Science Database (Alumni Edition)</collection><collection>STEM Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>Philosophy Collection</collection><collection>Philosophy Database</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>Arts Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>BMJ Journals</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>SciTech Premium Collection</collection><collection>Art, Design & Architecture Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Arts & Humanities Database</collection><collection>Medical Database</collection><collection>Research Library</collection><collection>Science Database</collection><collection>Social Science Database</collection><collection>Research Library (Corporate)</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of medical ethics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Rogers, W A</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Evidence based medicine and justice: a framework for looking at the impact of EBM upon vulnerable or disadvantaged groups</atitle><jtitle>Journal of medical ethics</jtitle><addtitle>J Med Ethics</addtitle><date>2004-04</date><risdate>2004</risdate><volume>30</volume><issue>2</issue><spage>141</spage><epage>145</epage><pages>141-145</pages><issn>0306-6800</issn><eissn>1473-4257</eissn><coden>JMETDR</coden><abstract>This article examines the implicit promises of fairness in evidence based medicine (EBM), namely to avoid discrimination through objective processes, and to distribute effective treatments fairly. 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Those with the greatest burden of ill health are left disenfranchised, as there is little research that is relevant to them, there is poor access to treatments, and attention is diverted away from activities that might have a much greater impact on their health.</abstract><cop>England</cop><pub>BMJ Publishing Group Ltd and Institute of Medical Ethics</pub><pmid>15082806</pmid><doi>10.1136/jme.2003.007062</doi><tpages>5</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Bioethics Cancer Clinical trials Consumer research Cost of Illness Culture ethics Ethics, Research Ethnicity Evidence based medicine Evidence-Based Medicine - ethics Experimentation Gender Health Care Rationing - ethics Health Priorities - economics Health Priorities - ethics Health Services Accessibility - economics Health Services Accessibility - ethics Humans justice Medical ethics Medical research Medicine Older adults Participation Population Prejudice Psychoeducational intervention Research design Research methodology Social Justice - ethics Socioeconomic factors Studies Symposium on Evidence Based Medicine vulnerable groups Vulnerable Populations |
title | Evidence based medicine and justice: a framework for looking at the impact of EBM upon vulnerable or disadvantaged groups |
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