Relatives' attitudes towards informing patients about the diagnosis of Alzheimer’s disease
Objectives: To evaluate relatives’ attitudes towards informing patients with Alzheimer’s disease (AD) about their diagnosis. Setting: A university hospital in Italy. Methods: The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructur...
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| Veröffentlicht in: | Journal of medical ethics 2003-02, Vol.29 (1), p.51-54 |
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| creator | Pucci, E Belardinelli, N Borsetti, G Giuliani, G |
| description | Objectives: To evaluate relatives’ attitudes towards informing patients with Alzheimer’s disease (AD) about their diagnosis. Setting: A university hospital in Italy. Methods: The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructured questionnaire. Spontaneous requests by relatives not to communicate issues concerning the diagnosis were also recorded. Results: Forty three (60.6%) relatives spontaneously requested that patients not be fully informed. After being interviewed, nobody thought that the patient should be given all the information. Justifications were related to the fear of the onset or worsening of depressive symptoms in the patient. Conclusions: In Italy relatives’ opposition to informing AD patients appears to be common. Knowledge of the relatives’ attitudes may be useful for clinicians but disclosure of diagnosis should be based on the clinical evaluation of the patient and on a prudent evaluation of the relationship between the patient and her/his relative caregiver. |
| doi_str_mv | 10.1136/jme.29.1.51 |
| format | Article |
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Setting: A university hospital in Italy. Methods: The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructured questionnaire. Spontaneous requests by relatives not to communicate issues concerning the diagnosis were also recorded. Results: Forty three (60.6%) relatives spontaneously requested that patients not be fully informed. After being interviewed, nobody thought that the patient should be given all the information. Justifications were related to the fear of the onset or worsening of depressive symptoms in the patient. Conclusions: In Italy relatives’ opposition to informing AD patients appears to be common. Knowledge of the relatives’ attitudes may be useful for clinicians but disclosure of diagnosis should be based on the clinical evaluation of the patient and on a prudent evaluation of the relationship between the patient and her/his relative caregiver.</description><identifier>ISSN: 0306-6800</identifier><identifier>EISSN: 1473-4257</identifier><identifier>DOI: 10.1136/jme.29.1.51</identifier><identifier>PMID: 12569197</identifier><identifier>CODEN: JMETDR</identifier><language>eng</language><publisher>England: BMJ Publishing Group Ltd and Institute of Medical Ethics</publisher><subject>Adult ; Age ; Aged ; Aged, 80 and over ; Alzheimer Disease - psychology ; Alzheimer's disease ; Alzheimers disease ; Attitude to Health ; Attitudes ; Bioethics ; Caregivers - psychology ; Customer relations ; Dementia ; Depressive disorders ; Diagnosis ; ethics ; Families & family life ; Family - psychology ; Family members ; Female ; Gender ; Health care industry ; Humans ; Interviews ; Italy ; Male ; Medical treatment ; Memory ; Memory disorders ; Mental illness ; Middle Aged ; Neurology ; Original ; Patients' rights ; physician/patient relations ; Physicians ; Studies ; Suicide ; Surveys and Questionnaires ; truth disclosure ; Truth Disclosure - ethics</subject><ispartof>Journal of medical ethics, 2003-02, Vol.29 (1), p.51-54</ispartof><rights>Copyright 2003 by the Journal of Medical Ethics</rights><rights>Copyright 2003 BMJ Publishing Group & Institute of Medical Ethics</rights><rights>COPYRIGHT 2003 BMJ Publishing Group Ltd.</rights><rights>COPYRIGHT 2003 BMJ Publishing Group Ltd.</rights><rights>Copyright: 2003 Copyright 2003 by the Journal of Medical Ethics</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b641t-7046814a6d6a99dc2216e0d28aff4dde49c697ce04d4c93bb7c8a50ad38e7b623</citedby><cites>FETCH-LOGICAL-b641t-7046814a6d6a99dc2216e0d28aff4dde49c697ce04d4c93bb7c8a50ad38e7b623</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/27719007$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/27719007$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>230,314,727,780,784,803,885,27922,27923,53789,53791,58015,58248</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/12569197$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Pucci, E</creatorcontrib><creatorcontrib>Belardinelli, N</creatorcontrib><creatorcontrib>Borsetti, G</creatorcontrib><creatorcontrib>Giuliani, G</creatorcontrib><title>Relatives' attitudes towards informing patients about the diagnosis of Alzheimer’s disease</title><title>Journal of medical ethics</title><addtitle>J Med Ethics</addtitle><description>Objectives: To evaluate relatives’ attitudes towards informing patients with Alzheimer’s disease (AD) about their diagnosis. Setting: A university hospital in Italy. Methods: The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructured questionnaire. Spontaneous requests by relatives not to communicate issues concerning the diagnosis were also recorded. Results: Forty three (60.6%) relatives spontaneously requested that patients not be fully informed. After being interviewed, nobody thought that the patient should be given all the information. Justifications were related to the fear of the onset or worsening of depressive symptoms in the patient. Conclusions: In Italy relatives’ opposition to informing AD patients appears to be common. Knowledge of the relatives’ attitudes may be useful for clinicians but disclosure of diagnosis should be based on the clinical evaluation of the patient and on a prudent evaluation of the relationship between the patient and her/his relative caregiver.</description><subject>Adult</subject><subject>Age</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Alzheimer Disease - psychology</subject><subject>Alzheimer's disease</subject><subject>Alzheimers disease</subject><subject>Attitude to Health</subject><subject>Attitudes</subject><subject>Bioethics</subject><subject>Caregivers - psychology</subject><subject>Customer relations</subject><subject>Dementia</subject><subject>Depressive disorders</subject><subject>Diagnosis</subject><subject>ethics</subject><subject>Families & family life</subject><subject>Family - psychology</subject><subject>Family members</subject><subject>Female</subject><subject>Gender</subject><subject>Health care industry</subject><subject>Humans</subject><subject>Interviews</subject><subject>Italy</subject><subject>Male</subject><subject>Medical treatment</subject><subject>Memory</subject><subject>Memory disorders</subject><subject>Mental illness</subject><subject>Middle Aged</subject><subject>Neurology</subject><subject>Original</subject><subject>Patients' rights</subject><subject>physician/patient relations</subject><subject>Physicians</subject><subject>Studies</subject><subject>Suicide</subject><subject>Surveys and Questionnaires</subject><subject>truth disclosure</subject><subject>Truth Disclosure - 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psychology</topic><topic>Alzheimer's disease</topic><topic>Alzheimers disease</topic><topic>Attitude to Health</topic><topic>Attitudes</topic><topic>Bioethics</topic><topic>Caregivers - psychology</topic><topic>Customer relations</topic><topic>Dementia</topic><topic>Depressive disorders</topic><topic>Diagnosis</topic><topic>ethics</topic><topic>Families & family life</topic><topic>Family - psychology</topic><topic>Family members</topic><topic>Female</topic><topic>Gender</topic><topic>Health care industry</topic><topic>Humans</topic><topic>Interviews</topic><topic>Italy</topic><topic>Male</topic><topic>Medical treatment</topic><topic>Memory</topic><topic>Memory disorders</topic><topic>Mental illness</topic><topic>Middle Aged</topic><topic>Neurology</topic><topic>Original</topic><topic>Patients' rights</topic><topic>physician/patient relations</topic><topic>Physicians</topic><topic>Studies</topic><topic>Suicide</topic><topic>Surveys and Questionnaires</topic><topic>truth disclosure</topic><topic>Truth Disclosure - 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Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of medical ethics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Pucci, E</au><au>Belardinelli, N</au><au>Borsetti, G</au><au>Giuliani, G</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Relatives' attitudes towards informing patients about the diagnosis of Alzheimer’s disease</atitle><jtitle>Journal of medical ethics</jtitle><addtitle>J Med Ethics</addtitle><date>2003-02</date><risdate>2003</risdate><volume>29</volume><issue>1</issue><spage>51</spage><epage>54</epage><pages>51-54</pages><issn>0306-6800</issn><eissn>1473-4257</eissn><coden>JMETDR</coden><abstract>Objectives: To evaluate relatives’ attitudes towards informing patients with Alzheimer’s disease (AD) about their diagnosis. Setting: A university hospital in Italy. Methods: The closest relatives of each of 71 subjects diagnosed for the first time as having AD were interviewed, using a semistructured questionnaire. Spontaneous requests by relatives not to communicate issues concerning the diagnosis were also recorded. Results: Forty three (60.6%) relatives spontaneously requested that patients not be fully informed. After being interviewed, nobody thought that the patient should be given all the information. Justifications were related to the fear of the onset or worsening of depressive symptoms in the patient. Conclusions: In Italy relatives’ opposition to informing AD patients appears to be common. Knowledge of the relatives’ attitudes may be useful for clinicians but disclosure of diagnosis should be based on the clinical evaluation of the patient and on a prudent evaluation of the relationship between the patient and her/his relative caregiver.</abstract><cop>England</cop><pub>BMJ Publishing Group Ltd and Institute of Medical Ethics</pub><pmid>12569197</pmid><doi>10.1136/jme.29.1.51</doi><tpages>4</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adult Age Aged Aged, 80 and over Alzheimer Disease - psychology Alzheimer's disease Alzheimers disease Attitude to Health Attitudes Bioethics Caregivers - psychology Customer relations Dementia Depressive disorders Diagnosis ethics Families & family life Family - psychology Family members Female Gender Health care industry Humans Interviews Italy Male Medical treatment Memory Memory disorders Mental illness Middle Aged Neurology Original Patients' rights physician/patient relations Physicians Studies Suicide Surveys and Questionnaires truth disclosure Truth Disclosure - ethics |
| title | Relatives' attitudes towards informing patients about the diagnosis of Alzheimer’s disease |
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