State legislative efforts to regulate use and potential misuse of genetic information
The purpose of this study was to review existing and proposed legislation specifically intended to regulate the collection, use, and potential misuse of genetic data. The study encompasses laws relating to confidentiality, informed consent, discrimination, and related issues. It excludes from consid...
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| Veröffentlicht in: | American journal of human genetics 1992-09, Vol.51 (3), p.637-647 |
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| container_title | American journal of human genetics |
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| creator | MCEWEN, J. E REILLY, P. R |
| description | The purpose of this study was to review existing and proposed legislation specifically intended to regulate the collection, use, and potential misuse of genetic data. The study encompasses laws relating to confidentiality, informed consent, discrimination, and related issues. It excludes from consideration legislation relating to medical records generally that may bear indirectly on genetic information. It also excludes both legislation relating to the regulation of DNA data collection for law enforcement purposes and state laws relating to the confidentiality of data collected by newborn-screening programs. While relatively few laws that explicitly regulate the treatment of genetic information have been enacted to date, a considerable amount of activity is currently underway in the nation's legislatures. Although most of the bills under consideration are not comprehensive in scope, they reflect a growing societal awareness that the uncontrolled dissemination and use of genetic data entails significant risks. |
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E</creatorcontrib><creatorcontrib>REILLY, P. R</creatorcontrib><title>State legislative efforts to regulate use and potential misuse of genetic information</title><title>American journal of human genetics</title><addtitle>Am J Hum Genet</addtitle><description>The purpose of this study was to review existing and proposed legislation specifically intended to regulate the collection, use, and potential misuse of genetic data. The study encompasses laws relating to confidentiality, informed consent, discrimination, and related issues. It excludes from consideration legislation relating to medical records generally that may bear indirectly on genetic information. It also excludes both legislation relating to the regulation of DNA data collection for law enforcement purposes and state laws relating to the confidentiality of data collected by newborn-screening programs. While relatively few laws that explicitly regulate the treatment of genetic information have been enacted to date, a considerable amount of activity is currently underway in the nation's legislatures. Although most of the bills under consideration are not comprehensive in scope, they reflect a growing societal awareness that the uncontrolled dissemination and use of genetic data entails significant risks.</description><subject>BASIC BIOLOGICAL SCIENCES</subject><subject>Bioethics</subject><subject>Biological and medical sciences</subject><subject>CHROMOSOMES</subject><subject>Confidentiality - legislation & jurisprudence</subject><subject>Employment - legislation & jurisprudence</subject><subject>ETHICAL ASPECTS</subject><subject>General aspects. Genetic counseling</subject><subject>Genetic Diseases, Inborn</subject><subject>GENETIC MAPPING</subject><subject>Genetic Privacy</subject><subject>Genetic Testing - legislation & jurisprudence</subject><subject>Genetics, Medical - legislation & jurisprudence</subject><subject>Government Regulation</subject><subject>HUMAN CHROMOSOMES</subject><subject>Humans</subject><subject>INFORMATION</subject><subject>Informed Consent - legislation & jurisprudence</subject><subject>Insurance - legislation & jurisprudence</subject><subject>LEGAL ASPECTS</subject><subject>LEGISLATION</subject><subject>MAPPING 550400 -- Genetics</subject><subject>Medical genetics</subject><subject>Medical sciences</subject><subject>Minors</subject><subject>Parental Consent</subject><subject>PUBLIC INFORMATION</subject><subject>SOCIAL IMPACT</subject><subject>STATE GOVERNMENT</subject><subject>United States</subject><issn>0002-9297</issn><issn>1537-6605</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>1992</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpVkFtLxDAQhYso67r6E4Qg4lshlzZpXwRZvMGCD7rPIU2n3UiarE0q-O9t2bLo08CcM9-cmZNkSXImUs5xfposMcY0LWkpzpOLED4xJqTAbJEsSFbysqTLZPseVQRkoTXBqmi-AUHT-D4GFD3qoR3spA8BkHI12vsILhplUWfC1PQNasFBNBoZN851I8O7y-SsUTbA1VxXyfbp8WP9km7enl_XD5vUMyJiKogmwEhT0xpXGtclBVwzoqEAXhaVzhjkOucCKsF5g3kOtWqKmhOhC5FBxlbJ_YG7H6oOaj1m65WV-950qv-RXhn5X3FmJ1v_LQkvqKB4BNwcAD5EI4M2EfROe-dAR5ljIgSfTHfzlt5_DRCiHI_XYK1y4IcgBSNYlGIyXv-Nc8wxf3vUb2ddBa1s0yunTTja8pxRQSj7BVO8i4k</recordid><startdate>19920901</startdate><enddate>19920901</enddate><creator>MCEWEN, J. 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R</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-o317t-71c1e31fd2d0bc0d92e0d31ce8e698bc43e5c567eb766f065edaf8d617c874e43</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>1992</creationdate><topic>BASIC BIOLOGICAL SCIENCES</topic><topic>Bioethics</topic><topic>Biological and medical sciences</topic><topic>CHROMOSOMES</topic><topic>Confidentiality - legislation & jurisprudence</topic><topic>Employment - legislation & jurisprudence</topic><topic>ETHICAL ASPECTS</topic><topic>General aspects. Genetic counseling</topic><topic>Genetic Diseases, Inborn</topic><topic>GENETIC MAPPING</topic><topic>Genetic Privacy</topic><topic>Genetic Testing - legislation & jurisprudence</topic><topic>Genetics, Medical - legislation & jurisprudence</topic><topic>Government Regulation</topic><topic>HUMAN CHROMOSOMES</topic><topic>Humans</topic><topic>INFORMATION</topic><topic>Informed Consent - legislation & jurisprudence</topic><topic>Insurance - legislation & jurisprudence</topic><topic>LEGAL ASPECTS</topic><topic>LEGISLATION</topic><topic>MAPPING 550400 -- Genetics</topic><topic>Medical genetics</topic><topic>Medical sciences</topic><topic>Minors</topic><topic>Parental Consent</topic><topic>PUBLIC INFORMATION</topic><topic>SOCIAL IMPACT</topic><topic>STATE GOVERNMENT</topic><topic>United States</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>MCEWEN, J. E</creatorcontrib><creatorcontrib>REILLY, P. R</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>MEDLINE - Academic</collection><collection>OSTI.GOV</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>American journal of human genetics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>MCEWEN, J. E</au><au>REILLY, P. R</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>State legislative efforts to regulate use and potential misuse of genetic information</atitle><jtitle>American journal of human genetics</jtitle><addtitle>Am J Hum Genet</addtitle><date>1992-09-01</date><risdate>1992</risdate><volume>51</volume><issue>3</issue><spage>637</spage><epage>647</epage><pages>637-647</pages><issn>0002-9297</issn><eissn>1537-6605</eissn><coden>AJHGAG</coden><abstract>The purpose of this study was to review existing and proposed legislation specifically intended to regulate the collection, use, and potential misuse of genetic data. The study encompasses laws relating to confidentiality, informed consent, discrimination, and related issues. It excludes from consideration legislation relating to medical records generally that may bear indirectly on genetic information. It also excludes both legislation relating to the regulation of DNA data collection for law enforcement purposes and state laws relating to the confidentiality of data collected by newborn-screening programs. While relatively few laws that explicitly regulate the treatment of genetic information have been enacted to date, a considerable amount of activity is currently underway in the nation's legislatures. Although most of the bills under consideration are not comprehensive in scope, they reflect a growing societal awareness that the uncontrolled dissemination and use of genetic data entails significant risks.</abstract><cop>Chicago, IL</cop><pub>University of Chicago Press</pub><pmid>1496992</pmid><tpages>11</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0002-9297 |
| ispartof | American journal of human genetics, 1992-09, Vol.51 (3), p.637-647 |
| issn | 0002-9297 1537-6605 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_1682720 |
| source | MEDLINE; Elsevier ScienceDirect Journals Complete; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; PubMed Central |
| subjects | BASIC BIOLOGICAL SCIENCES Bioethics Biological and medical sciences CHROMOSOMES Confidentiality - legislation & jurisprudence Employment - legislation & jurisprudence ETHICAL ASPECTS General aspects. Genetic counseling Genetic Diseases, Inborn GENETIC MAPPING Genetic Privacy Genetic Testing - legislation & jurisprudence Genetics, Medical - legislation & jurisprudence Government Regulation HUMAN CHROMOSOMES Humans INFORMATION Informed Consent - legislation & jurisprudence Insurance - legislation & jurisprudence LEGAL ASPECTS LEGISLATION MAPPING 550400 -- Genetics Medical genetics Medical sciences Minors Parental Consent PUBLIC INFORMATION SOCIAL IMPACT STATE GOVERNMENT United States |
| title | State legislative efforts to regulate use and potential misuse of genetic information |
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