Refusing to provide a prenatal test: can it ever be ethical?
A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the...
Gespeichert in:
| Veröffentlicht in: | BMJ 2006-11, Vol.333 (7577), p.1066-1068 |
|---|---|
| Hauptverfasser: | , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 1068 |
|---|---|
| container_issue | 7577 |
| container_start_page | 1066 |
| container_title | BMJ |
| container_volume | 333 |
| creator | Duncan, Rony E Foddy, Bennett Delatycki, Martin B |
| description | A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the diagnosis will not result in medical benefit for the child |
| doi_str_mv | 10.1136/bmj.38950.645799.55 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_1647358</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>68157103</sourcerecordid><originalsourceid>FETCH-LOGICAL-b5115-3699eef3f91c676d5ffd479885298989ed39454c7d54153d5a1666c36aa599483</originalsourceid><addsrcrecordid>eNqNkWuL1DAUhoMo7jDuLxCkKPqtNafJyUVEkcErywpewS8h06a7me20Y9IO-u9N7bCrgij5cALnObf3JeQ20AKAiYfr7aZgSiMtBEepdYF4jSyAC5WjYuw6WVCNOlfA1BE5jnFDKS2ZVFrgTXIEEoDKUizI43euGaPvzrKhz3ah3_vaZTb9XGcH22aDi8OjrLJd5ofM7V3I1i5zw7mvbPv0FrnR2Da640Ncko8vnn9YvcpP3r58vXp2kq8RAHMmtHauYY2GSkhRY9PUXGqlsNQqPVczzZFXskYOyGq0IISomLAWteaKLcmTue9uXG9dXbluCLY1u-C3Nnw3vfXm90znz81ZvzcguGQ4NXhwaBD6r2M6yWx9rFzb2s71YzRCAUqg7J9goriQSdUlufsHuOnH0CUVTEk5ZchKkaB7f4NASkUndaaZbKaq0McYXHN5GFAzmW2S2ean2WY22yCmqju_anJVc7A2AfcPgI3JrCbYrvLxilOlAqqm8fnM-Ti4b5d5Gy6MkEyiOf20MuoN6PefT8F8SXwx89NW_7PpD8pZzFI</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1778051153</pqid></control><display><type>article</type><title>Refusing to provide a prenatal test: can it ever be ethical?</title><source>MEDLINE</source><source>BMJ Journals - NESLi2</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>Jstor Complete Legacy</source><source>Alma/SFX Local Collection</source><creator>Duncan, Rony E ; Foddy, Bennett ; Delatycki, Martin B</creator><creatorcontrib>Duncan, Rony E ; Foddy, Bennett ; Delatycki, Martin B</creatorcontrib><description>A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the diagnosis will not result in medical benefit for the child</description><edition>International edition</edition><identifier>ISSN: 0959-8138</identifier><identifier>ISSN: 0959-8146</identifier><identifier>ISSN: 0959-535X</identifier><identifier>EISSN: 1468-5833</identifier><identifier>EISSN: 1756-1833</identifier><identifier>DOI: 10.1136/bmj.38950.645799.55</identifier><identifier>PMID: 17110726</identifier><identifier>CODEN: BMJOAE</identifier><language>eng</language><publisher>London: British Medical Journal Publishing Group</publisher><subject>Age ; Analysis and Comment ; Biological and medical sciences ; Children & youth ; Confidentiality ; Disease prevention ; Diseases ; Ethical aspects ; Ethics, Medical ; Female ; Fetuses ; General aspects ; Genetic disorders ; Genetic testing ; Genetic Testing - ethics ; Humans ; Huntington Disease - diagnosis ; Huntingtons disease ; Medical ethics ; Medical sciences ; Miscellaneous ; Parents & parenting ; Pregnancy ; Prenatal care ; Prenatal development ; Prenatal Diagnosis - ethics ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Refusal ; Refusal to Treat - legislation & jurisprudence ; Testing</subject><ispartof>BMJ, 2006-11, Vol.333 (7577), p.1066-1068</ispartof><rights>BMJ Publishing Group Ltd 2006</rights><rights>2006 INIST-CNRS</rights><rights>Copyright: 2006 (c) BMJ Publishing Group Ltd 2006</rights><rights>Copyright BMJ Publishing Group Nov 18, 2006</rights><rights>BMJ Publishing Group Ltd 2006 2006 BMJ Publishing Group Ltd</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b5115-3699eef3f91c676d5ffd479885298989ed39454c7d54153d5a1666c36aa599483</citedby></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttp://bmj.com/content/333/7577/1066.full.pdf$$EPDF$$P50$$Gbmj$$H</linktopdf><linktohtml>$$Uhttp://bmj.com/content/333/7577/1066.full$$EHTML$$P50$$Gbmj$$H</linktohtml><link.rule.ids>114,115,230,314,776,780,881,3182,23551,27903,27904,30978,30979,77346,77377</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=18281083$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/17110726$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Duncan, Rony E</creatorcontrib><creatorcontrib>Foddy, Bennett</creatorcontrib><creatorcontrib>Delatycki, Martin B</creatorcontrib><title>Refusing to provide a prenatal test: can it ever be ethical?</title><title>BMJ</title><addtitle>BMJ</addtitle><description>A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the diagnosis will not result in medical benefit for the child</description><subject>Age</subject><subject>Analysis and Comment</subject><subject>Biological and medical sciences</subject><subject>Children & youth</subject><subject>Confidentiality</subject><subject>Disease prevention</subject><subject>Diseases</subject><subject>Ethical aspects</subject><subject>Ethics, Medical</subject><subject>Female</subject><subject>Fetuses</subject><subject>General aspects</subject><subject>Genetic disorders</subject><subject>Genetic testing</subject><subject>Genetic Testing - ethics</subject><subject>Humans</subject><subject>Huntington Disease - diagnosis</subject><subject>Huntingtons disease</subject><subject>Medical ethics</subject><subject>Medical sciences</subject><subject>Miscellaneous</subject><subject>Parents & parenting</subject><subject>Pregnancy</subject><subject>Prenatal care</subject><subject>Prenatal development</subject><subject>Prenatal Diagnosis - ethics</subject><subject>Public health. Hygiene</subject><subject>Public health. Hygiene-occupational medicine</subject><subject>Refusal</subject><subject>Refusal to Treat - legislation & jurisprudence</subject><subject>Testing</subject><issn>0959-8138</issn><issn>0959-8146</issn><issn>0959-535X</issn><issn>1468-5833</issn><issn>1756-1833</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2006</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><sourceid>7QJ</sourceid><recordid>eNqNkWuL1DAUhoMo7jDuLxCkKPqtNafJyUVEkcErywpewS8h06a7me20Y9IO-u9N7bCrgij5cALnObf3JeQ20AKAiYfr7aZgSiMtBEepdYF4jSyAC5WjYuw6WVCNOlfA1BE5jnFDKS2ZVFrgTXIEEoDKUizI43euGaPvzrKhz3ah3_vaZTb9XGcH22aDi8OjrLJd5ofM7V3I1i5zw7mvbPv0FrnR2Da640Ncko8vnn9YvcpP3r58vXp2kq8RAHMmtHauYY2GSkhRY9PUXGqlsNQqPVczzZFXskYOyGq0IISomLAWteaKLcmTue9uXG9dXbluCLY1u-C3Nnw3vfXm90znz81ZvzcguGQ4NXhwaBD6r2M6yWx9rFzb2s71YzRCAUqg7J9goriQSdUlufsHuOnH0CUVTEk5ZchKkaB7f4NASkUndaaZbKaq0McYXHN5GFAzmW2S2ean2WY22yCmqju_anJVc7A2AfcPgI3JrCbYrvLxilOlAqqm8fnM-Ti4b5d5Gy6MkEyiOf20MuoN6PefT8F8SXwx89NW_7PpD8pZzFI</recordid><startdate>20061118</startdate><enddate>20061118</enddate><creator>Duncan, Rony E</creator><creator>Foddy, Bennett</creator><creator>Delatycki, Martin B</creator><general>British Medical Journal Publishing Group</general><general>British Medical Association</general><general>BMJ Publishing Group LTD</general><general>BMJ Publishing Group</general><general>BMJ Publishing Group Ltd</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88I</scope><scope>8AF</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ASE</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>BTHHO</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FPQ</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>HCIFZ</scope><scope>K6X</scope><scope>K9.</scope><scope>LK8</scope><scope>M2O</scope><scope>M2P</scope><scope>M7P</scope><scope>MBDVC</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>7QJ</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>20061118</creationdate><title>Refusing to provide a prenatal test: can it ever be ethical?</title><author>Duncan, Rony E ; Foddy, Bennett ; Delatycki, Martin B</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b5115-3699eef3f91c676d5ffd479885298989ed39454c7d54153d5a1666c36aa599483</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2006</creationdate><topic>Age</topic><topic>Analysis and Comment</topic><topic>Biological and medical sciences</topic><topic>Children & youth</topic><topic>Confidentiality</topic><topic>Disease prevention</topic><topic>Diseases</topic><topic>Ethical aspects</topic><topic>Ethics, Medical</topic><topic>Female</topic><topic>Fetuses</topic><topic>General aspects</topic><topic>Genetic disorders</topic><topic>Genetic testing</topic><topic>Genetic Testing - ethics</topic><topic>Humans</topic><topic>Huntington Disease - diagnosis</topic><topic>Huntingtons disease</topic><topic>Medical ethics</topic><topic>Medical sciences</topic><topic>Miscellaneous</topic><topic>Parents & parenting</topic><topic>Pregnancy</topic><topic>Prenatal care</topic><topic>Prenatal development</topic><topic>Prenatal Diagnosis - ethics</topic><topic>Public health. Hygiene</topic><topic>Public health. Hygiene-occupational medicine</topic><topic>Refusal</topic><topic>Refusal to Treat - legislation & jurisprudence</topic><topic>Testing</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Duncan, Rony E</creatorcontrib><creatorcontrib>Foddy, Bennett</creatorcontrib><creatorcontrib>Delatycki, Martin B</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Science Database (Alumni Edition)</collection><collection>STEM Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Index</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>BMJ Journals</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>SciTech Premium Collection</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>ProQuest Biological Science Collection</collection><collection>Research Library</collection><collection>Science Database</collection><collection>Biological Science Database</collection><collection>Research Library (Corporate)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>BMJ</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Duncan, Rony E</au><au>Foddy, Bennett</au><au>Delatycki, Martin B</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Refusing to provide a prenatal test: can it ever be ethical?</atitle><jtitle>BMJ</jtitle><addtitle>BMJ</addtitle><date>2006-11-18</date><risdate>2006</risdate><volume>333</volume><issue>7577</issue><spage>1066</spage><epage>1068</epage><pages>1066-1068</pages><issn>0959-8138</issn><issn>0959-8146</issn><issn>0959-535X</issn><eissn>1468-5833</eissn><eissn>1756-1833</eissn><coden>BMJOAE</coden><abstract>A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the diagnosis will not result in medical benefit for the child</abstract><cop>London</cop><pub>British Medical Journal Publishing Group</pub><pmid>17110726</pmid><doi>10.1136/bmj.38950.645799.55</doi><tpages>3</tpages><edition>International edition</edition><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0959-8138 |
| ispartof | BMJ, 2006-11, Vol.333 (7577), p.1066-1068 |
| issn | 0959-8138 0959-8146 0959-535X 1468-5833 1756-1833 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_1647358 |
| source | MEDLINE; BMJ Journals - NESLi2; Applied Social Sciences Index & Abstracts (ASSIA); Jstor Complete Legacy; Alma/SFX Local Collection |
| subjects | Age Analysis and Comment Biological and medical sciences Children & youth Confidentiality Disease prevention Diseases Ethical aspects Ethics, Medical Female Fetuses General aspects Genetic disorders Genetic testing Genetic Testing - ethics Humans Huntington Disease - diagnosis Huntingtons disease Medical ethics Medical sciences Miscellaneous Parents & parenting Pregnancy Prenatal care Prenatal development Prenatal Diagnosis - ethics Public health. Hygiene Public health. Hygiene-occupational medicine Refusal Refusal to Treat - legislation & jurisprudence Testing |
| title | Refusing to provide a prenatal test: can it ever be ethical? |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-25T16%3A38%3A11IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Refusing%20to%20provide%20a%20prenatal%20test:%20can%20it%20ever%20be%20ethical?&rft.jtitle=BMJ&rft.au=Duncan,%20Rony%20E&rft.date=2006-11-18&rft.volume=333&rft.issue=7577&rft.spage=1066&rft.epage=1068&rft.pages=1066-1068&rft.issn=0959-8138&rft.eissn=1468-5833&rft.coden=BMJOAE&rft_id=info:doi/10.1136/bmj.38950.645799.55&rft_dat=%3Cproquest_pubme%3E68157103%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=1778051153&rft_id=info:pmid/17110726&rfr_iscdi=true |