Refusing to provide a prenatal test: can it ever be ethical?

A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the...

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Veröffentlicht in:	BMJ 2006-11, Vol.333 (7577), p.1066-1068
Hauptverfasser:	Duncan, Rony E, Foddy, Bennett, Delatycki, Martin B
Format:	Artikel
Sprache:	eng
Schlagworte:	Age Analysis and Comment Biological and medical sciences Children & youth Confidentiality Disease prevention Diseases Ethical aspects Ethics, Medical Female Fetuses General aspects Genetic disorders Genetic testing Genetic Testing - ethics Humans Huntington Disease - diagnosis Huntingtons disease Medical ethics Medical sciences Miscellaneous Parents & parenting Pregnancy Prenatal care Prenatal development Prenatal Diagnosis - ethics Public health. Hygiene Public health. Hygiene-occupational medicine Refusal Refusal to Treat - legislation & jurisprudence Testing
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Beschreibung
Zusammenfassung:	A couple in which the man carries the mutation for Huntington's disease request prenatal testing during their first pregnancy. Though they would not terminate an affected pregnancy, they would like the information. There is no treatment available that can change the course of the disease so the diagnosis will not result in medical benefit for the child
ISSN:	0959-8138 0959-8146 0959-535X 1468-5833 1756-1833
DOI:	10.1136/bmj.38950.645799.55