Adults With Intellectual Disabilities and Incontinence: Assessment and Toileting Issues
ABSTRACT Background Urinary and bowel incontinence are more common in adults with intellectual disability (ID), compared to the general population. Little is known about their incontinence experiences and toileting issues. The aim was to learn about their experiences and toileting issues. Method Inc...
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| Veröffentlicht in: | Journal of intellectual disability research 2025-02, Vol.69 (2), p.165-175 |
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| creator | Finlayson, Janet Skelton, Dawn A. Ord, Paul Roche, Fiona Marshall, Audrey Butcher, John Gore, Nick |
| description | ABSTRACT
Background
Urinary and bowel incontinence are more common in adults with intellectual disability (ID), compared to the general population. Little is known about their incontinence experiences and toileting issues. The aim was to learn about their experiences and toileting issues.
Method
Incontinence and toileting issues assessment was conducted with a community‐based sample of 22 adults with ID and urinary incontinence, with or without bowel incontinence. Assessment included the IPSS, ICIQ‐UI, and POTI checklists; bladder scans; and urine sample screening for presence of a urinary tract infection.
Results
The majority (19 adults, 86%) developed urinary incontinence during adulthood. Seven adults (32%) also experienced bowel incontinence, and constipation was the most commonly reported health condition (13 adults, 59%), other than urinary incontinence. Fifty per cent (11 adults) had been treated for a urinary tract infection within the previous 12 months.
Conclusion
There is an urgent need to develop accessible and reliable incontinence assessment materials with and for adults with ID and their supporters. These assessments should pay close attention to health conditions that can cause incontinence in this group and factors associated with incontinence which are more commonly experienced by adults with ID. These factors are potentially modifiable. |
| doi_str_mv | 10.1111/jir.13202 |
| format | Article |
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Background
Urinary and bowel incontinence are more common in adults with intellectual disability (ID), compared to the general population. Little is known about their incontinence experiences and toileting issues. The aim was to learn about their experiences and toileting issues.
Method
Incontinence and toileting issues assessment was conducted with a community‐based sample of 22 adults with ID and urinary incontinence, with or without bowel incontinence. Assessment included the IPSS, ICIQ‐UI, and POTI checklists; bladder scans; and urine sample screening for presence of a urinary tract infection.
Results
The majority (19 adults, 86%) developed urinary incontinence during adulthood. Seven adults (32%) also experienced bowel incontinence, and constipation was the most commonly reported health condition (13 adults, 59%), other than urinary incontinence. Fifty per cent (11 adults) had been treated for a urinary tract infection within the previous 12 months.
Conclusion
There is an urgent need to develop accessible and reliable incontinence assessment materials with and for adults with ID and their supporters. These assessments should pay close attention to health conditions that can cause incontinence in this group and factors associated with incontinence which are more commonly experienced by adults with ID. These factors are potentially modifiable.</description><identifier>ISSN: 0964-2633</identifier><identifier>ISSN: 1365-2788</identifier><identifier>EISSN: 1365-2788</identifier><identifier>DOI: 10.1111/jir.13202</identifier><identifier>PMID: 39581690</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Adult ; Adults ; Aged ; assessment ; bowel incontinence ; Comorbidity ; Constipation ; Constipation - physiopathology ; Evaluation ; faecal incontinence ; Fecal Incontinence - physiopathology ; Female ; Humans ; Incontinence ; Intellectual disabilities ; intellectual disability ; Intellectual Disability - physiopathology ; Male ; Middle Aged ; Original ; Supporters ; toileting issues ; Urinary incontinence ; Urinary Incontinence - physiopathology ; Urinary tract ; Urinary tract diseases ; Urinary tract infections ; Urine tests ; Urogenital system ; Young Adult</subject><ispartof>Journal of intellectual disability research, 2025-02, Vol.69 (2), p.165-175</ispartof><rights>2024 The Author(s). Journal of Intellectual Disability Research published by John Wiley & Sons and MENCAP.</rights><rights>2024. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c3342-e209d8c29dcda13b86d71157ca4f2e1e4491e05eec2a35dacfa941514349794c3</cites><orcidid>0000-0001-8445-3581</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjir.13202$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjir.13202$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>230,314,776,780,881,1411,27901,27902,30976,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39581690$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Finlayson, Janet</creatorcontrib><creatorcontrib>Skelton, Dawn A.</creatorcontrib><creatorcontrib>Ord, Paul</creatorcontrib><creatorcontrib>Roche, Fiona</creatorcontrib><creatorcontrib>Marshall, Audrey</creatorcontrib><creatorcontrib>Butcher, John</creatorcontrib><creatorcontrib>Gore, Nick</creatorcontrib><title>Adults With Intellectual Disabilities and Incontinence: Assessment and Toileting Issues</title><title>Journal of intellectual disability research</title><addtitle>J Intellect Disabil Res</addtitle><description>ABSTRACT
Background
Urinary and bowel incontinence are more common in adults with intellectual disability (ID), compared to the general population. Little is known about their incontinence experiences and toileting issues. The aim was to learn about their experiences and toileting issues.
Method
Incontinence and toileting issues assessment was conducted with a community‐based sample of 22 adults with ID and urinary incontinence, with or without bowel incontinence. Assessment included the IPSS, ICIQ‐UI, and POTI checklists; bladder scans; and urine sample screening for presence of a urinary tract infection.
Results
The majority (19 adults, 86%) developed urinary incontinence during adulthood. Seven adults (32%) also experienced bowel incontinence, and constipation was the most commonly reported health condition (13 adults, 59%), other than urinary incontinence. Fifty per cent (11 adults) had been treated for a urinary tract infection within the previous 12 months.
Conclusion
There is an urgent need to develop accessible and reliable incontinence assessment materials with and for adults with ID and their supporters. These assessments should pay close attention to health conditions that can cause incontinence in this group and factors associated with incontinence which are more commonly experienced by adults with ID. These factors are potentially modifiable.</description><subject>Adult</subject><subject>Adults</subject><subject>Aged</subject><subject>assessment</subject><subject>bowel incontinence</subject><subject>Comorbidity</subject><subject>Constipation</subject><subject>Constipation - physiopathology</subject><subject>Evaluation</subject><subject>faecal incontinence</subject><subject>Fecal Incontinence - physiopathology</subject><subject>Female</subject><subject>Humans</subject><subject>Incontinence</subject><subject>Intellectual disabilities</subject><subject>intellectual disability</subject><subject>Intellectual Disability - physiopathology</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Original</subject><subject>Supporters</subject><subject>toileting issues</subject><subject>Urinary incontinence</subject><subject>Urinary Incontinence - physiopathology</subject><subject>Urinary tract</subject><subject>Urinary tract diseases</subject><subject>Urinary tract infections</subject><subject>Urine tests</subject><subject>Urogenital system</subject><subject>Young Adult</subject><issn>0964-2633</issn><issn>1365-2788</issn><issn>1365-2788</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2025</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kUtrFEEUhQtRzBhd-AekwY0uOqlbj-4qNzLE10hAkEiWRU31naSGnuqkb7eSf-81E4MK1uYuzsfh1DlCPAd5BPyOt3k8Aq2keiAWoBtbq9a5h2IhfWNq1Wh9IJ4QbaWUDZjmsTjQ3jpovFyI82U39xNV53m6rFZlwr7HNM2xr95liuvc5ykjVbF0rKahTLlgSfimWhIh0Q7LdCueDblHFi-qFdGM9FQ82sSe8NndPRTfPrw_O_lUn375uDpZntZJa6NqVNJ3LinfpS6CXrumawFsm6LZKAQ0xgNKi5hU1LaLaRO9AQtGG996k_SheLv3vZrXO-wS5xljH67GvIvjTRhiDn8rJV-Gi-F7AGi1da5lh1d3DuNwzcmnsMuUuIdYcJgpaG62ka1TwOjLf9DtMI-F_8eUtWzmQDL1ek-lcSAacXOfBmT4tVfgvcLtXsy--DP-Pfl7IAaO98AP7vfm_07h8-rr3vInR66f-A</recordid><startdate>202502</startdate><enddate>202502</enddate><creator>Finlayson, Janet</creator><creator>Skelton, Dawn A.</creator><creator>Ord, Paul</creator><creator>Roche, Fiona</creator><creator>Marshall, Audrey</creator><creator>Butcher, John</creator><creator>Gore, Nick</creator><general>Wiley Subscription Services, Inc</general><general>John Wiley and Sons Inc</general><scope>24P</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0001-8445-3581</orcidid></search><sort><creationdate>202502</creationdate><title>Adults With Intellectual Disabilities and Incontinence: Assessment and Toileting Issues</title><author>Finlayson, Janet ; Skelton, Dawn A. ; Ord, Paul ; Roche, Fiona ; Marshall, Audrey ; Butcher, John ; Gore, Nick</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3342-e209d8c29dcda13b86d71157ca4f2e1e4491e05eec2a35dacfa941514349794c3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2025</creationdate><topic>Adult</topic><topic>Adults</topic><topic>Aged</topic><topic>assessment</topic><topic>bowel incontinence</topic><topic>Comorbidity</topic><topic>Constipation</topic><topic>Constipation - physiopathology</topic><topic>Evaluation</topic><topic>faecal incontinence</topic><topic>Fecal Incontinence - physiopathology</topic><topic>Female</topic><topic>Humans</topic><topic>Incontinence</topic><topic>Intellectual disabilities</topic><topic>intellectual disability</topic><topic>Intellectual Disability - physiopathology</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Original</topic><topic>Supporters</topic><topic>toileting issues</topic><topic>Urinary incontinence</topic><topic>Urinary Incontinence - physiopathology</topic><topic>Urinary tract</topic><topic>Urinary tract diseases</topic><topic>Urinary tract infections</topic><topic>Urine tests</topic><topic>Urogenital system</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Finlayson, Janet</creatorcontrib><creatorcontrib>Skelton, Dawn A.</creatorcontrib><creatorcontrib>Ord, Paul</creatorcontrib><creatorcontrib>Roche, Fiona</creatorcontrib><creatorcontrib>Marshall, Audrey</creatorcontrib><creatorcontrib>Butcher, John</creatorcontrib><creatorcontrib>Gore, Nick</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of intellectual disability research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Finlayson, Janet</au><au>Skelton, Dawn A.</au><au>Ord, Paul</au><au>Roche, Fiona</au><au>Marshall, Audrey</au><au>Butcher, John</au><au>Gore, Nick</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Adults With Intellectual Disabilities and Incontinence: Assessment and Toileting Issues</atitle><jtitle>Journal of intellectual disability research</jtitle><addtitle>J Intellect Disabil Res</addtitle><date>2025-02</date><risdate>2025</risdate><volume>69</volume><issue>2</issue><spage>165</spage><epage>175</epage><pages>165-175</pages><issn>0964-2633</issn><issn>1365-2788</issn><eissn>1365-2788</eissn><abstract>ABSTRACT
Background
Urinary and bowel incontinence are more common in adults with intellectual disability (ID), compared to the general population. Little is known about their incontinence experiences and toileting issues. The aim was to learn about their experiences and toileting issues.
Method
Incontinence and toileting issues assessment was conducted with a community‐based sample of 22 adults with ID and urinary incontinence, with or without bowel incontinence. Assessment included the IPSS, ICIQ‐UI, and POTI checklists; bladder scans; and urine sample screening for presence of a urinary tract infection.
Results
The majority (19 adults, 86%) developed urinary incontinence during adulthood. Seven adults (32%) also experienced bowel incontinence, and constipation was the most commonly reported health condition (13 adults, 59%), other than urinary incontinence. Fifty per cent (11 adults) had been treated for a urinary tract infection within the previous 12 months.
Conclusion
There is an urgent need to develop accessible and reliable incontinence assessment materials with and for adults with ID and their supporters. These assessments should pay close attention to health conditions that can cause incontinence in this group and factors associated with incontinence which are more commonly experienced by adults with ID. These factors are potentially modifiable.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>39581690</pmid><doi>10.1111/jir.13202</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0001-8445-3581</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Journal of intellectual disability research, 2025-02, Vol.69 (2), p.165-175 |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley; MEDLINE |
| subjects | Adult Adults Aged assessment bowel incontinence Comorbidity Constipation Constipation - physiopathology Evaluation faecal incontinence Fecal Incontinence - physiopathology Female Humans Incontinence Intellectual disabilities intellectual disability Intellectual Disability - physiopathology Male Middle Aged Original Supporters toileting issues Urinary incontinence Urinary Incontinence - physiopathology Urinary tract Urinary tract diseases Urinary tract infections Urine tests Urogenital system Young Adult |
| title | Adults With Intellectual Disabilities and Incontinence: Assessment and Toileting Issues |
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