Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD)

Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD)

Illness intrusiveness refers to the subjective cognitive appraisal of a chronic health condition interfering in daily, valued activities and may be highly relevant for parents of children with atypical genital appearance due to differences of sex development (DSD). However, a measure of illness intr...

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Veröffentlicht in:Journal of pediatric psychology 2024-04, Vol.49 (7), p.482-490
Hauptverfasser: DeLone, Alexandra M, Fisher, Rachel S, Traino, Katherine A, Basile, Nathan L, Buchanan, Cindy L, Cheng, Earl Y, Poppas, Dix P, Baraldi, Amanda N, Wisniewski, Amy B, Mullins, Larry L
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container_end_page 490
container_issue 7
container_start_page 482
container_title Journal of pediatric psychology
container_volume 49
creator DeLone, Alexandra M
Fisher, Rachel S
Traino, Katherine A
Basile, Nathan L
Buchanan, Cindy L
Cheng, Earl Y
Poppas, Dix P
Baraldi, Amanda N
Wisniewski, Amy B
Mullins, Larry L
description Illness intrusiveness refers to the subjective cognitive appraisal of a chronic health condition interfering in daily, valued activities and may be highly relevant for parents of children with atypical genital appearance due to differences of sex development (DSD). However, a measure of illness intrusiveness has not been validated for this population. The current study aimed to evaluate the factor structure of the Illness Intrusiveness Scale for Parents (IIS-P) and examine convergent validity. Participants included 102 parents (Mage = 33.39 years, SD = 6.48; 58% mothers) of 65 children (
doi_str_mv 10.1093/jpepsy/jsae027
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Support emerged for both 1- and 2-factor solutions of the IIS-P in parents of children with DSD. The decision to evaluate illness intrusiveness as a total score or to examine the subscales of daily living and community connectedness should be tailored to the unique aims of researchers and clinicians. Future research should conduct a confirmatory factor analysis with both 1- and 2-factor models with larger, more diverse samples of caregivers.</description><identifier>ISSN: 0146-8693</identifier><identifier>ISSN: 1465-735X</identifier><identifier>EISSN: 1465-735X</identifier><identifier>DOI: 10.1093/jpepsy/jsae027</identifier><identifier>PMID: 38578612</identifier><language>eng</language><publisher>United States: Oxford University Press</publisher><subject>Regular</subject><ispartof>Journal of pediatric psychology, 2024-04, Vol.49 (7), p.482-490</ispartof><rights>The Author(s) 2024. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. 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title Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD)
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