Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives

Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) have high rates of co-occurring mental health (MH) conditions. The time during transition from pediatric to adult health and mental health care can be a very challenging, with risk of loss of services leading to poor...

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Veröffentlicht in:Community mental health journal 2024-08, Vol.60 (6), p.1104-1116
Hauptverfasser: Mirzaian, Christine B., Deavenport-Saman, Alexis, Hudson, Sharon M., Betz, Cecily L.
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container_end_page 1116
container_issue 6
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container_title Community mental health journal
container_volume 60
creator Mirzaian, Christine B.
Deavenport-Saman, Alexis
Hudson, Sharon M.
Betz, Cecily L.
description Youth and young adults (YYA) with intellectual and developmental disabilities (IDD) have high rates of co-occurring mental health (MH) conditions. The time during transition from pediatric to adult health and mental health care can be a very challenging, with risk of loss of services leading to poor outcomes. This study aimed to explore barriers to transition from pediatric to adult health and mental health care and services for individuals with IDD and co-occurring MH conditions, by eliciting the view of stakeholders, including disability advocates. Qualitative analysis was conducted using grounded theory, and themes were coded based upon the social-ecological model (SEM). We generated themes into multiple levels: the individual level, the family level, the provider level, the systems of care level, and the societal level. Stakeholders expressed a critical need to improve coordination between systems, and to increase provider availability to care for YYA with IDD and co-occurring MH conditions.
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source Sociological Abstracts; Applied Social Sciences Index & Abstracts (ASSIA); SpringerLink Journals - AutoHoldings
subjects Advocacy
Americans with Disabilities Act 1990-US
Children & youth
Clinical outcomes
Community and Environmental Psychology
Comorbidity
Coordination
Developmental disabilities
Ecological studies
Families & family life
Grounded theory
Interest groups
Medicine
Medicine & Public Health
Mental disorders
Mental health care
Mental health services
Original Paper
Pediatrics
Psychiatry
Qualitative research
Stakeholders
Teenagers
Young adults
Youth
title Barriers to Mental Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities and Co-occurring Mental Health Conditions: Stakeholders’ Perspectives
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