Are disease-specific patient-reported outcomes measures (PROMs) used in cardiogenetics? A systematic review

Patient-reported outcome measures (PROMs) are used to facilitate patient-centered care (PCC). While studies in patients with cardiac conditions have revealed poorer health-related quality of life (HRQoL) and elevated emotional stress, studies in inherited cardiac conditions (ICC) seem rare. A system...

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Veröffentlicht in:	European journal of human genetics : EJHG 2024-06, Vol.32 (6), p.607-618
Hauptverfasser:	van Pottelberghe, Saar, Kupper, Nina, Scheirlynck, Esther, Amin, Ahmad S, Wilde, Arthur A M, Hofman, Nynke, Callus, Edward, Biller, Ruth, Nekkebroeck, Julie, Van Dooren, Sonia, Hes, Frederik J, van der Crabben, Saskia N
Format:	Artikel
Sprache:	eng
Schlagworte:	Cardiomyopathy Congestive heart failure Morbidity Patients Population studies Quality of life Review Systematic review
Online-Zugang:	Volltext
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