Identifying the capabilities for creating next-generation registries: a guide for data leaders and a case for "registry science"

The increasing demands for curated, high-quality research data are driving the emergence of a novel registry type. The need to assemble, curate, and export this data grows, and the conventional simplicity of registry models is driving the need for advanced, multimodal data registries-the dawn of the...

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Veröffentlicht in:Journal of the American Medical Informatics Association : JAMIA 2024-04, Vol.31 (4), p.1001-1008
Hauptverfasser: Labkoff, Steven E, Quintana, Yuri, Rozenblit, Leon
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Sprache:eng
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