Barriers to healthcare for Australian autistic adults
Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Hea...
Gespeichert in:
Veröffentlicht in: | Autism : the international journal of research and practice 2024-02, Vol.28 (2), p.301-315 |
---|---|
Hauptverfasser: | , , , , , |
Format: | Artikel |
Sprache: | eng |
Schlagworte: | |
Online-Zugang: | Volltext |
Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
container_end_page | 315 |
---|---|
container_issue | 2 |
container_start_page | 301 |
container_title | Autism : the international journal of research and practice |
container_volume | 28 |
creator | Arnold, Samuel RC Bruce, Georgia Weise, Janelle Mills, Caroline J Trollor, Julian N Coxon, Kristy |
description | Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults.
Lay abstract
This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. |
doi_str_mv | 10.1177/13623613231168444 |
format | Article |
fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10851652</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_13623613231168444</sage_id><sourcerecordid>2923292145</sourcerecordid><originalsourceid>FETCH-LOGICAL-c467t-628a982a292f989196efebfc8ed5aa021272e61685594b101ad0f0a5640c06593</originalsourceid><addsrcrecordid>eNp1kctOwzAQRS0EoqXwAWxQJDZsAh6_Eq9QqXhJldjA2pomTpsqTYqdIPH3OGopL7GwbHnO3JmrS8gp0EuAJLkCrhhXwBkHUKkQYo8MQSiIE0rlfniHetwDA3Lk_ZKGXyHhkAx4AioIJEMib9C50joftU20sFi1iwydjYrGRePOtw6rEusIu7b0bZlFmHdV64_JQYGVtyfbe0Re7m6fJw_x9On-cTKexplQSRsrlqJOGTLNCp1q0MoWdlZkqc0lImXAEmZVWF1KLWZAAXNaUJRK0IwqqfmIXG90191sZfPM1v1CZu3KFbp302BpflbqcmHmzZsBmkpQkgWFi62Ca14761uzKn1mqwpr23TesBRA8zRRMqDnv9Bl07k6-DPBAA8HRE_Bhspc472zxW4boKZPxfxJJfScfbex6_iMIQCXG8Dj3H6N_V_xAy3hkxk</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2923292145</pqid></control><display><type>article</type><title>Barriers to healthcare for Australian autistic adults</title><source>Access via SAGE</source><source>MEDLINE</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><creator>Arnold, Samuel RC ; Bruce, Georgia ; Weise, Janelle ; Mills, Caroline J ; Trollor, Julian N ; Coxon, Kristy</creator><creatorcontrib>Arnold, Samuel RC ; Bruce, Georgia ; Weise, Janelle ; Mills, Caroline J ; Trollor, Julian N ; Coxon, Kristy</creatorcontrib><description>Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults.
Lay abstract
This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge.</description><identifier>ISSN: 1362-3613</identifier><identifier>ISSN: 1461-7005</identifier><identifier>EISSN: 1461-7005</identifier><identifier>DOI: 10.1177/13623613231168444</identifier><identifier>PMID: 37161777</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Adult ; Anxiety ; Australia ; Autism ; Autism Spectrum Disorder ; Autistic adults ; Autistic Disorder ; Barriers ; Checklists ; Gender ; Gorillas ; Health care ; Health care access ; Health Services Accessibility ; Humans ; Intellectual disabilities ; Learning disabled people ; Medical personnel ; Original ; Social support</subject><ispartof>Autism : the international journal of research and practice, 2024-02, Vol.28 (2), p.301-315</ispartof><rights>The Author(s) 2023</rights><rights>The Author(s) 2023 2023 The National Autistic Society, SAGE Publications</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c467t-628a982a292f989196efebfc8ed5aa021272e61685594b101ad0f0a5640c06593</citedby><cites>FETCH-LOGICAL-c467t-628a982a292f989196efebfc8ed5aa021272e61685594b101ad0f0a5640c06593</cites><orcidid>0000-0003-0783-5898 ; 0000-0002-6682-9749 ; 0000-0003-2900-223X ; 0000-0002-7685-2977</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/13623613231168444$$EPDF$$P50$$Gsage$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/13623613231168444$$EHTML$$P50$$Gsage$$Hfree_for_read</linktohtml><link.rule.ids>230,315,782,786,887,21826,27931,27932,31006,43628,43629</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/37161777$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Arnold, Samuel RC</creatorcontrib><creatorcontrib>Bruce, Georgia</creatorcontrib><creatorcontrib>Weise, Janelle</creatorcontrib><creatorcontrib>Mills, Caroline J</creatorcontrib><creatorcontrib>Trollor, Julian N</creatorcontrib><creatorcontrib>Coxon, Kristy</creatorcontrib><title>Barriers to healthcare for Australian autistic adults</title><title>Autism : the international journal of research and practice</title><addtitle>Autism</addtitle><description>Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults.
Lay abstract
This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge.</description><subject>Adult</subject><subject>Anxiety</subject><subject>Australia</subject><subject>Autism</subject><subject>Autism Spectrum Disorder</subject><subject>Autistic adults</subject><subject>Autistic Disorder</subject><subject>Barriers</subject><subject>Checklists</subject><subject>Gender</subject><subject>Gorillas</subject><subject>Health care</subject><subject>Health care access</subject><subject>Health Services Accessibility</subject><subject>Humans</subject><subject>Intellectual disabilities</subject><subject>Learning disabled people</subject><subject>Medical personnel</subject><subject>Original</subject><subject>Social support</subject><issn>1362-3613</issn><issn>1461-7005</issn><issn>1461-7005</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kctOwzAQRS0EoqXwAWxQJDZsAh6_Eq9QqXhJldjA2pomTpsqTYqdIPH3OGopL7GwbHnO3JmrS8gp0EuAJLkCrhhXwBkHUKkQYo8MQSiIE0rlfniHetwDA3Lk_ZKGXyHhkAx4AioIJEMib9C50joftU20sFi1iwydjYrGRePOtw6rEusIu7b0bZlFmHdV64_JQYGVtyfbe0Re7m6fJw_x9On-cTKexplQSRsrlqJOGTLNCp1q0MoWdlZkqc0lImXAEmZVWF1KLWZAAXNaUJRK0IwqqfmIXG90191sZfPM1v1CZu3KFbp302BpflbqcmHmzZsBmkpQkgWFi62Ca14761uzKn1mqwpr23TesBRA8zRRMqDnv9Bl07k6-DPBAA8HRE_Bhspc472zxW4boKZPxfxJJfScfbex6_iMIQCXG8Dj3H6N_V_xAy3hkxk</recordid><startdate>20240201</startdate><enddate>20240201</enddate><creator>Arnold, Samuel RC</creator><creator>Bruce, Georgia</creator><creator>Weise, Janelle</creator><creator>Mills, Caroline J</creator><creator>Trollor, Julian N</creator><creator>Coxon, Kristy</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>AFRWT</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-0783-5898</orcidid><orcidid>https://orcid.org/0000-0002-6682-9749</orcidid><orcidid>https://orcid.org/0000-0003-2900-223X</orcidid><orcidid>https://orcid.org/0000-0002-7685-2977</orcidid></search><sort><creationdate>20240201</creationdate><title>Barriers to healthcare for Australian autistic adults</title><author>Arnold, Samuel RC ; Bruce, Georgia ; Weise, Janelle ; Mills, Caroline J ; Trollor, Julian N ; Coxon, Kristy</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c467t-628a982a292f989196efebfc8ed5aa021272e61685594b101ad0f0a5640c06593</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Adult</topic><topic>Anxiety</topic><topic>Australia</topic><topic>Autism</topic><topic>Autism Spectrum Disorder</topic><topic>Autistic adults</topic><topic>Autistic Disorder</topic><topic>Barriers</topic><topic>Checklists</topic><topic>Gender</topic><topic>Gorillas</topic><topic>Health care</topic><topic>Health care access</topic><topic>Health Services Accessibility</topic><topic>Humans</topic><topic>Intellectual disabilities</topic><topic>Learning disabled people</topic><topic>Medical personnel</topic><topic>Original</topic><topic>Social support</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Arnold, Samuel RC</creatorcontrib><creatorcontrib>Bruce, Georgia</creatorcontrib><creatorcontrib>Weise, Janelle</creatorcontrib><creatorcontrib>Mills, Caroline J</creatorcontrib><creatorcontrib>Trollor, Julian N</creatorcontrib><creatorcontrib>Coxon, Kristy</creatorcontrib><collection>Sage Journals GOLD Open Access 2024</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Autism : the international journal of research and practice</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Arnold, Samuel RC</au><au>Bruce, Georgia</au><au>Weise, Janelle</au><au>Mills, Caroline J</au><au>Trollor, Julian N</au><au>Coxon, Kristy</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Barriers to healthcare for Australian autistic adults</atitle><jtitle>Autism : the international journal of research and practice</jtitle><addtitle>Autism</addtitle><date>2024-02-01</date><risdate>2024</risdate><volume>28</volume><issue>2</issue><spage>301</spage><epage>315</epage><pages>301-315</pages><issn>1362-3613</issn><issn>1461-7005</issn><eissn>1461-7005</eissn><abstract>Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults.
Lay abstract
This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>37161777</pmid><doi>10.1177/13623613231168444</doi><tpages>15</tpages><orcidid>https://orcid.org/0000-0003-0783-5898</orcidid><orcidid>https://orcid.org/0000-0002-6682-9749</orcidid><orcidid>https://orcid.org/0000-0003-2900-223X</orcidid><orcidid>https://orcid.org/0000-0002-7685-2977</orcidid><oa>free_for_read</oa></addata></record> |
fulltext | fulltext |
identifier | ISSN: 1362-3613 |
ispartof | Autism : the international journal of research and practice, 2024-02, Vol.28 (2), p.301-315 |
issn | 1362-3613 1461-7005 1461-7005 |
language | eng |
recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10851652 |
source | Access via SAGE; MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA) |
subjects | Adult Anxiety Australia Autism Autism Spectrum Disorder Autistic adults Autistic Disorder Barriers Checklists Gender Gorillas Health care Health care access Health Services Accessibility Humans Intellectual disabilities Learning disabled people Medical personnel Original Social support |
title | Barriers to healthcare for Australian autistic adults |
url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-04T08%3A55%3A49IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Barriers%20to%20healthcare%20for%20Australian%20autistic%20adults&rft.jtitle=Autism%20:%20the%20international%20journal%20of%20research%20and%20practice&rft.au=Arnold,%20Samuel%20RC&rft.date=2024-02-01&rft.volume=28&rft.issue=2&rft.spage=301&rft.epage=315&rft.pages=301-315&rft.issn=1362-3613&rft.eissn=1461-7005&rft_id=info:doi/10.1177/13623613231168444&rft_dat=%3Cproquest_pubme%3E2923292145%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2923292145&rft_id=info:pmid/37161777&rft_sage_id=10.1177_13623613231168444&rfr_iscdi=true |