Barriers to healthcare for Australian autistic adults

Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Hea...

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Veröffentlicht in:Autism : the international journal of research and practice 2024-02, Vol.28 (2), p.301-315
Hauptverfasser: Arnold, Samuel RC, Bruce, Georgia, Weise, Janelle, Mills, Caroline J, Trollor, Julian N, Coxon, Kristy
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container_end_page 315
container_issue 2
container_start_page 301
container_title Autism : the international journal of research and practice
container_volume 28
creator Arnold, Samuel RC
Bruce, Georgia
Weise, Janelle
Mills, Caroline J
Trollor, Julian N
Coxon, Kristy
description Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge.
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subjects Adult
Anxiety
Australia
Autism
Autism Spectrum Disorder
Autistic adults
Autistic Disorder
Barriers
Checklists
Gender
Gorillas
Health care
Health care access
Health Services Accessibility
Humans
Intellectual disabilities
Learning disabled people
Medical personnel
Original
Social support
title Barriers to healthcare for Australian autistic adults
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