Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda

Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health...

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Veröffentlicht in:Curēus (Palo Alto, CA) CA), 2023-08, Vol.15 (8), p.e44388-e44388
Hauptverfasser: Hotez, Emily, Haley, Madeline, Martinez-Agosto, Julian A, Anderson, Jeffrey, Brown, Heather, Choi, Kristen, Croen, Lisa A, Dwyer, Patrick, Fernandes, Priyanka, Gassner, Dena, Giwa Onaiwu, Morénike, Gragnani, Candace M, Graham Holmes, Laura, Kapp, Steven, Kim, Dana, Massolo, Maria, Montgomery, Brianna, Natri, Heini M, Rava, Julianna A, Rosenau, Kashia A, Roth, Jeffrey, Rudolph, Dawn, Ryan, Jackie G, Shattuck, Paul, Shea, Lindsay, Williams, Zachary J, Wilson, Rujuta B, Kuo, Alice
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container_issue 8
container_start_page e44388
container_title Curēus (Palo Alto, CA)
container_volume 15
creator Hotez, Emily
Haley, Madeline
Martinez-Agosto, Julian A
Anderson, Jeffrey
Brown, Heather
Choi, Kristen
Croen, Lisa A
Dwyer, Patrick
Fernandes, Priyanka
Gassner, Dena
Giwa Onaiwu, Morénike
Gragnani, Candace M
Graham Holmes, Laura
Kapp, Steven
Kim, Dana
Massolo, Maria
Montgomery, Brianna
Natri, Heini M
Rava, Julianna A
Rosenau, Kashia A
Roth, Jeffrey
Rudolph, Dawn
Ryan, Jackie G
Shattuck, Paul
Shea, Lindsay
Williams, Zachary J
Wilson, Rujuta B
Kuo, Alice
description Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.
doi_str_mv 10.7759/cureus.44388
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The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. 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Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. 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subjects Autism
Big Data
Collaboration
Community
Developmental disabilities
Education
Feedback
Gender
Genetics
Internal Medicine
Intervention
Leadership
Literature reviews
Maternal & child health
Polls & surveys
Preventive Medicine
Primary care
Public Health
Qualitative research
Quality of life
Reproductive health
Response rates
Review boards
Well being
title Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
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