Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda
Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health...
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creator | Hotez, Emily Haley, Madeline Martinez-Agosto, Julian A Anderson, Jeffrey Brown, Heather Choi, Kristen Croen, Lisa A Dwyer, Patrick Fernandes, Priyanka Gassner, Dena Giwa Onaiwu, Morénike Gragnani, Candace M Graham Holmes, Laura Kapp, Steven Kim, Dana Massolo, Maria Montgomery, Brianna Natri, Heini M Rava, Julianna A Rosenau, Kashia A Roth, Jeffrey Rudolph, Dawn Ryan, Jackie G Shattuck, Paul Shea, Lindsay Williams, Zachary J Wilson, Rujuta B Kuo, Alice |
description | Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion. |
doi_str_mv | 10.7759/cureus.44388 |
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The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.</description><identifier>ISSN: 2168-8184</identifier><identifier>EISSN: 2168-8184</identifier><identifier>DOI: 10.7759/cureus.44388</identifier><language>eng</language><publisher>Palo Alto: Cureus Inc</publisher><subject>Autism ; Big Data ; Collaboration ; Community ; Developmental disabilities ; Education ; Feedback ; Gender ; Genetics ; Internal Medicine ; Intervention ; Leadership ; Literature reviews ; Maternal & child health ; Polls & surveys ; Preventive Medicine ; Primary care ; Public Health ; Qualitative research ; Quality of life ; Reproductive health ; Response rates ; Review boards ; Well being</subject><ispartof>Curēus (Palo Alto, CA), 2023-08, Vol.15 (8), p.e44388-e44388</ispartof><rights>Copyright © 2023, Hotez et al. This work is published under https://creativecommons.org/licenses/by/3.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Copyright © 2023, Hotez et al. 2023 Hotez et al.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c320t-46d0574441b336ccd46ebc87f6a52000b06ce072410b5aa10f8be1aa7bb77ad93</citedby><cites>FETCH-LOGICAL-c320t-46d0574441b336ccd46ebc87f6a52000b06ce072410b5aa10f8be1aa7bb77ad93</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC10541233/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,27924,27925,53791,53793</link.rule.ids></links><search><creatorcontrib>Hotez, Emily</creatorcontrib><creatorcontrib>Haley, Madeline</creatorcontrib><creatorcontrib>Martinez-Agosto, Julian A</creatorcontrib><creatorcontrib>Anderson, Jeffrey</creatorcontrib><creatorcontrib>Brown, Heather</creatorcontrib><creatorcontrib>Choi, Kristen</creatorcontrib><creatorcontrib>Croen, Lisa A</creatorcontrib><creatorcontrib>Dwyer, Patrick</creatorcontrib><creatorcontrib>Fernandes, Priyanka</creatorcontrib><creatorcontrib>Gassner, Dena</creatorcontrib><creatorcontrib>Giwa Onaiwu, Morénike</creatorcontrib><creatorcontrib>Gragnani, Candace M</creatorcontrib><creatorcontrib>Graham Holmes, Laura</creatorcontrib><creatorcontrib>Kapp, Steven</creatorcontrib><creatorcontrib>Kim, Dana</creatorcontrib><creatorcontrib>Massolo, Maria</creatorcontrib><creatorcontrib>Montgomery, Brianna</creatorcontrib><creatorcontrib>Natri, Heini M</creatorcontrib><creatorcontrib>Rava, Julianna A</creatorcontrib><creatorcontrib>Rosenau, Kashia A</creatorcontrib><creatorcontrib>Roth, Jeffrey</creatorcontrib><creatorcontrib>Rudolph, Dawn</creatorcontrib><creatorcontrib>Ryan, Jackie G</creatorcontrib><creatorcontrib>Shattuck, Paul</creatorcontrib><creatorcontrib>Shea, Lindsay</creatorcontrib><creatorcontrib>Williams, Zachary J</creatorcontrib><creatorcontrib>Wilson, Rujuta B</creatorcontrib><creatorcontrib>Kuo, Alice</creatorcontrib><title>Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda</title><title>Curēus (Palo Alto, CA)</title><description>Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. 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Maria ; Montgomery, Brianna ; Natri, Heini M ; Rava, Julianna A ; Rosenau, Kashia A ; Roth, Jeffrey ; Rudolph, Dawn ; Ryan, Jackie G ; Shattuck, Paul ; Shea, Lindsay ; Williams, Zachary J ; Wilson, Rujuta B ; Kuo, Alice</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c320t-46d0574441b336ccd46ebc87f6a52000b06ce072410b5aa10f8be1aa7bb77ad93</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Autism</topic><topic>Big Data</topic><topic>Collaboration</topic><topic>Community</topic><topic>Developmental disabilities</topic><topic>Education</topic><topic>Feedback</topic><topic>Gender</topic><topic>Genetics</topic><topic>Internal Medicine</topic><topic>Intervention</topic><topic>Leadership</topic><topic>Literature reviews</topic><topic>Maternal & child health</topic><topic>Polls & surveys</topic><topic>Preventive Medicine</topic><topic>Primary care</topic><topic>Public 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Alice</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda</atitle><jtitle>Curēus (Palo Alto, CA)</jtitle><date>2023-08-30</date><risdate>2023</risdate><volume>15</volume><issue>8</issue><spage>e44388</spage><epage>e44388</epage><pages>e44388-e44388</pages><issn>2168-8184</issn><eissn>2168-8184</eissn><abstract>Introduction: Autistic individuals, now representing one in 36 individuals in the U.S., experience disproportionate physical health challenges relative to non-autistic individuals. The Health Resources and Services Administration's (HRSA) Autism Intervention Research Network on Physical Health (AIR-P) is an interdisciplinary, multi-center Research Network that aims to increase the health, well-being, and quality of life of autistic individuals. The current paper builds on the initial AIR-P Research Agenda (proposed in Year 1) and provides an updated vision for the Network.Methods: Updates to the Research Agenda were made via the administration of a Qualtrics survey, and disseminated widely to all AIR-P entities, including the Research Node Leaders, Steering Committee, Autistic Researcher Review Board, and collaborating academic and non-academic entities. Network members were tasked with evaluating the Year 1 Research Agenda and proposing additional priorities.Results: Within each Research Node, all Year 1 priorities were endorsed as continued priorities for research on autism and physical health. Specific topics, including co-occurring conditions and self-determination, advocacy, and decision-making, were particularly endorsed. Opportunities for exploratory studies and intervention research were identified across Research Nodes. Qualitative responses providing feedback on additional research priorities were collected.Conclusion: The updated AIR-P Research Agenda represents an important step toward enacting large-scale health promotion efforts for autistic individuals across the lifespan. This updated agenda builds on efforts to catalyze autism research in historically underrepresented topic areas while adopting a neurodiversity-oriented approach to health promotion.</abstract><cop>Palo Alto</cop><pub>Cureus Inc</pub><doi>10.7759/cureus.44388</doi><oa>free_for_read</oa></addata></record> |
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subjects | Autism Big Data Collaboration Community Developmental disabilities Education Feedback Gender Genetics Internal Medicine Intervention Leadership Literature reviews Maternal & child health Polls & surveys Preventive Medicine Primary care Public Health Qualitative research Quality of life Reproductive health Response rates Review boards Well being |
title | Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda |
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