Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums
Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest...
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Veröffentlicht in: | International journal of impotence research 2023-09, Vol.35 (6), p.533-538 |
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container_title | International journal of impotence research |
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creator | Low, Patrick Wang, Lin Li, Kevin D. Shibley, W. Patrick Cedars, Benjamin E. Holler, Jordan T. Enriquez, Anthony Sadeghi-Nejad, Hossein Amend, Gregory M. Breyer, Benjamin N. |
description | Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (
n
= 75, 33.3%) and feelings of isolation (
n
= 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (
n
= 11, 21.2%) and dyspareunia (
n
= 4, 7.7%). Relationships experienced disruption (
n
= 14, 5.1%) or termination (
n
= 10, 3.6%). Posters received psychological treatment including psychotherapy (
n
= 20, 8.9%) and antidepressants (
n
= 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management. |
doi_str_mv | 10.1038/s41443-022-00589-x |
format | Article |
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n
= 75, 33.3%) and feelings of isolation (
n
= 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (
n
= 11, 21.2%) and dyspareunia (
n
= 4, 7.7%). Relationships experienced disruption (
n
= 14, 5.1%) or termination (
n
= 10, 3.6%). Posters received psychological treatment including psychotherapy (
n
= 20, 8.9%) and antidepressants (
n
= 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.</description><identifier>ISSN: 0955-9930</identifier><identifier>ISSN: 1476-5489</identifier><identifier>EISSN: 1476-5489</identifier><identifier>DOI: 10.1038/s41443-022-00589-x</identifier><identifier>PMID: 35710605</identifier><language>eng</language><publisher>London: Nature Publishing Group UK</publisher><subject>692/1807/2782 ; 692/699/2768/1575 ; 692/699/2768/515 ; Connective tissue diseases ; Erectile dysfunction ; Medicine ; Medicine & Public Health ; Mens health ; Mental depression ; Pain ; Penis ; Qualitative research ; Reproductive Medicine ; rology ; Sexual disorders ; Social isolation ; Social networks ; Social support ; Urology</subject><ispartof>International journal of impotence research, 2023-09, Vol.35 (6), p.533-538</ispartof><rights>The Author(s) 2022</rights><rights>The Author(s) 2022. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2022. The Author(s).</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c452t-ed927b435b2c7fd406bf1509ed39d2c59efbdb9f9a41390786d11b2d7a65558c3</citedby><cites>FETCH-LOGICAL-c452t-ed927b435b2c7fd406bf1509ed39d2c59efbdb9f9a41390786d11b2d7a65558c3</cites><orcidid>0000-0003-4319-4290</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,27924,27925</link.rule.ids></links><search><creatorcontrib>Low, Patrick</creatorcontrib><creatorcontrib>Wang, Lin</creatorcontrib><creatorcontrib>Li, Kevin D.</creatorcontrib><creatorcontrib>Shibley, W. Patrick</creatorcontrib><creatorcontrib>Cedars, Benjamin E.</creatorcontrib><creatorcontrib>Holler, Jordan T.</creatorcontrib><creatorcontrib>Enriquez, Anthony</creatorcontrib><creatorcontrib>Sadeghi-Nejad, Hossein</creatorcontrib><creatorcontrib>Amend, Gregory M.</creatorcontrib><creatorcontrib>Breyer, Benjamin N.</creatorcontrib><title>Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums</title><title>International journal of impotence research</title><addtitle>Int J Impot Res</addtitle><description>Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (
n
= 75, 33.3%) and feelings of isolation (
n
= 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (
n
= 11, 21.2%) and dyspareunia (
n
= 4, 7.7%). Relationships experienced disruption (
n
= 14, 5.1%) or termination (
n
= 10, 3.6%). Posters received psychological treatment including psychotherapy (
n
= 20, 8.9%) and antidepressants (
n
= 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.</description><subject>692/1807/2782</subject><subject>692/699/2768/1575</subject><subject>692/699/2768/515</subject><subject>Connective tissue diseases</subject><subject>Erectile dysfunction</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Mens health</subject><subject>Mental depression</subject><subject>Pain</subject><subject>Penis</subject><subject>Qualitative research</subject><subject>Reproductive Medicine</subject><subject>rology</subject><subject>Sexual disorders</subject><subject>Social isolation</subject><subject>Social networks</subject><subject>Social support</subject><subject>Urology</subject><issn>0955-9930</issn><issn>1476-5489</issn><issn>1476-5489</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>C6C</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><recordid>eNp9kc-K1jAUxYMozufoC7gKuHETvfnXNiuRwX8woItxHdI2nWZok5rb6tedr-Hr-SRGv0HRhXDhLu7vHA73EPKYwzMOsnmOiislGQjBAHRj2PEOOXBVV0yrxtwlBzBaM2MknJEHiDcAYIBX98mZ1DWHCvSBxKvRz24NHXXRTTsGpGmg6-jpgns3Job-uLmJ4j4va5qRhkiXwvu4Iv0S1pF-8HtOMfjvX78h7QN6h0WcPRaEplhmCtHTIeVtxofk3uAm9I9u9zn5-PrV1cVbdvn-zbuLl5esU1qszPdG1K2SuhVdPfQKqnbgGozvpelFp40f2r41g3GKSwN1U_Wct6KvXaW1bjp5Tl6cfJetnX3flSzZTXbJYXZ5t8kF-_clhtFep8-WgzJGG10cnt465PRp87jaOWDnp8lFnza0oqobJXStVUGf_IPepC2XdxaqqZRsjBBQKHGiupwQsx9-p-Fgf_ZpT33a0qf91ac9FpE8ibDA8drnP9b_Uf0ABYmmEA</recordid><startdate>20230901</startdate><enddate>20230901</enddate><creator>Low, Patrick</creator><creator>Wang, Lin</creator><creator>Li, Kevin D.</creator><creator>Shibley, W. 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Patrick</creatorcontrib><creatorcontrib>Cedars, Benjamin E.</creatorcontrib><creatorcontrib>Holler, Jordan T.</creatorcontrib><creatorcontrib>Enriquez, Anthony</creatorcontrib><creatorcontrib>Sadeghi-Nejad, Hossein</creatorcontrib><creatorcontrib>Amend, Gregory M.</creatorcontrib><creatorcontrib>Breyer, Benjamin N.</creatorcontrib><collection>Springer Nature OA Free Journals</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Database</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>International journal of impotence research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Low, Patrick</au><au>Wang, Lin</au><au>Li, Kevin D.</au><au>Shibley, W. Patrick</au><au>Cedars, Benjamin E.</au><au>Holler, Jordan T.</au><au>Enriquez, Anthony</au><au>Sadeghi-Nejad, Hossein</au><au>Amend, Gregory M.</au><au>Breyer, Benjamin N.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums</atitle><jtitle>International journal of impotence research</jtitle><stitle>Int J Impot Res</stitle><date>2023-09-01</date><risdate>2023</risdate><volume>35</volume><issue>6</issue><spage>533</spage><epage>538</epage><pages>533-538</pages><issn>0955-9930</issn><issn>1476-5489</issn><eissn>1476-5489</eissn><abstract>Peyronie’s disease (PD) is a fibrotic disorder of the tunica albuginea that may result in penile deformity, pain, a palpable plaque, and erectile dysfunction. In order to understand the psycho-sexual impacts of PD on patients and their partners, we selected three online forums containing the largest number of threads on PD. Threads focusing on the psycho-sexual impacts posted from January 1, 2011 to January 1, 2021 were compiled, and thematic analysis was performed on Dedoose. There were 277 unique posters, including 225 patients and 52 partners. Eighty-four categories and five themes were developed including information and social support, physical symptoms, psycho-sexual symptoms, treatment and effect, and impacts on partners and relationship. Emotional distress including depressed mood (
n
= 75, 33.3%) and feelings of isolation (
n
= 41, 18.2%) was prevalent. Partners developed sexual dysfunction including sexual dissatisfaction (
n
= 11, 21.2%) and dyspareunia (
n
= 4, 7.7%). Relationships experienced disruption (
n
= 14, 5.1%) or termination (
n
= 10, 3.6%). Posters received psychological treatment including psychotherapy (
n
= 20, 8.9%) and antidepressants (
n
= 17, 7.6%). Of these, 12 reported improvement and 11 stated no improvement. On these forums, psychological burden affecting individuals with PD and their partners is reported. Few seek help from a psychologist or therapist, and psychological distress may persist even after successful PD treatment. Further research is needed to identify strategies for effective psychological management.</abstract><cop>London</cop><pub>Nature Publishing Group UK</pub><pmid>35710605</pmid><doi>10.1038/s41443-022-00589-x</doi><tpages>6</tpages><orcidid>https://orcid.org/0000-0003-4319-4290</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | 692/1807/2782 692/699/2768/1575 692/699/2768/515 Connective tissue diseases Erectile dysfunction Medicine Medicine & Public Health Mens health Mental depression Pain Penis Qualitative research Reproductive Medicine rology Sexual disorders Social isolation Social networks Social support Urology |
title | Thematic analysis of the psycho-sexual symptoms in patients with Peyronie’s disease present on online forums |
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