Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure

To develop a valid, disease-specific, patient-reported outcome (PRO) measure for adolescents and adults with Friedreich ataxia (FA) for use in therapeutic trials. We conducted semistructured qualitative interviews and a national cross-sectional study of individuals with FA to determine the most prev...

Ausführliche Beschreibung

Bibliographische Detailangaben

Veröffentlicht in:	Neurology. Clinical practice 2023-10, Vol.13 (5), p.e200180
Hauptverfasser:	Seabury, Jamison, Rosero, Spencer, Varma, Anika, Weinstein, Jennifer, Engebrecht, Charlotte, Dilek, Nuran, Heatwole, John, Alexandrou, Danae, Cohen, Brittany, Larkindale, Jane, Lynch, David R, Park, Courtney, Subramony, Sub H, Wagner, Ellen, Walther, Susan, Wells, McKenzie, Zizzi, Christine, Heatwole, Chad
Format:	Artikel
Sprache:	eng
Online-Zugang:	Volltext
Tags:	Tag hinzufügen Keine Tags, Fügen Sie den ersten Tag hinzu!