Life story of Iranian parents of a child with phenylketonuria: a qualitative study

Parents of a child with phenylketonuria (PKU) face many challenges in childcare. It is crucial for health care workers to understand the situation of parents of a child with PKU and their needs. The purpose of this study was to explore the life story of parents with a child with PKU. This qualitativ...

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Veröffentlicht in:	Journal of community genetics 2023-08, Vol.14 (4), p.419-427
Hauptverfasser:	Mardani-Hamooleh, Marjan, Heidari, Haydeh
Format:	Artikel
Sprache:	eng
Schlagworte:	Biomedical and Life Sciences Biomedicine Epidemiology Gene Function Gene Therapy Human Genetics Medical personnel Phenylketonuria Public Health Qualitative research Social environment
Online-Zugang:	Volltext
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